crohnsinct
Well-known member
Hi Y'all,
My college aged Crohnie just went back to school in a flare. The GI has decided to stop Remicade and move her to Entyvio. Because Entyvio takes so long to kick in and she has been on steroids too much over the last 15 months he wants her to use Tacrolimus to control disease until Entyvio kicks in.
She has taken only two doses and texted me saying she feels really sick. Not anything she could put her finger on exactly like extreme nausea etc. Just woke twice to have a BM (but that could be Crohn's), woke at 3 and couldn't get back to sleep, extreme headache in lower back of head and now just feeling really poorly. Of course this could all be because of her flare to so no way of knowing for sure. She has only had two doses, well now three because she took another dose after texting me.
She doesn't typically experience side effects from meds or have any of those rare complications.
I am wondering if any of you have experience with Tacro and if this sounds typical.
My college aged Crohnie just went back to school in a flare. The GI has decided to stop Remicade and move her to Entyvio. Because Entyvio takes so long to kick in and she has been on steroids too much over the last 15 months he wants her to use Tacrolimus to control disease until Entyvio kicks in.
She has taken only two doses and texted me saying she feels really sick. Not anything she could put her finger on exactly like extreme nausea etc. Just woke twice to have a BM (but that could be Crohn's), woke at 3 and couldn't get back to sleep, extreme headache in lower back of head and now just feeling really poorly. Of course this could all be because of her flare to so no way of knowing for sure. She has only had two doses, well now three because she took another dose after texting me.
She doesn't typically experience side effects from meds or have any of those rare complications.
I am wondering if any of you have experience with Tacro and if this sounds typical.