I hope everyone is doing well out there! I've been lurking around a little, but since our move to California and trying to get settled in I haven't posted much.
Since my surgery, and starting Tysabri in March I've still been having all sorts of problems having D upwards between 10-20 times a day, loss of appetite, nausea and feeling very tired. I haven't had a Tysabri infusion since September because of moving and insurance problems and things like that. It took me a while to get a new GI out here, so I saw him last week after a 2 month wait. He didn't feel comfortable treating me with my complicated history, so he referred me to a Crohn's specialist here in San Diego at UCSD.
I saw two doctors today. One was a GI who was studying to become an IBD specialist, and the other was a Crohn's specialist who was awesome. They spent all kinds of time with me today (about an hour and a half) talking and listening to me. They agree that something is going on (regardless of my last GI saying i'm i remssion with all of these problems) So for the next month I'm going to be having a few tests done, but I'm just so relieved that someone is finally listening and I don't feel like a nutcase anymore! He said the best case scenario is that I'm just not absorbing bile salts like I should, but he wants to rule out other possible causes just in case. I'm very hapy someone is finally listening to me!
Since my surgery, and starting Tysabri in March I've still been having all sorts of problems having D upwards between 10-20 times a day, loss of appetite, nausea and feeling very tired. I haven't had a Tysabri infusion since September because of moving and insurance problems and things like that. It took me a while to get a new GI out here, so I saw him last week after a 2 month wait. He didn't feel comfortable treating me with my complicated history, so he referred me to a Crohn's specialist here in San Diego at UCSD.
I saw two doctors today. One was a GI who was studying to become an IBD specialist, and the other was a Crohn's specialist who was awesome. They spent all kinds of time with me today (about an hour and a half) talking and listening to me. They agree that something is going on (regardless of my last GI saying i'm i remssion with all of these problems) So for the next month I'm going to be having a few tests done, but I'm just so relieved that someone is finally listening and I don't feel like a nutcase anymore! He said the best case scenario is that I'm just not absorbing bile salts like I should, but he wants to rule out other possible causes just in case. I'm very hapy someone is finally listening to me!
