- Location
- I'm a southern girl
Okay, I have read and researched to the point of just about getting a brain bleed and I think I really want to give LDN a go. We meet with S's doctor on Tuesday. His original suggestion was to start him on AZA. Actually he's already called it in to the pharmacy and I just haven't gone to pick it up. After much research it just doesn't sit well with me or my husband.
Right now my son's quality of life is great. If you ask him on a scale of 1 to 10 he says he's at a 9 1/2. He has stomach pain a couple of times a day that last about 30 seconds and a couple of "itchy" feelings on his right side during the day. None of this prevents him from going to school or playing sports, etc. Having said this, I'm aware that more could be going on on the inside of him that doesn't necessarily reflect on the outside. He has the perianal abscess that we keep an eye on. He's currently on Entocort (2 weeks) and Flagyl (3 weeks).
I have no idea how his doctor will react to us wanting to try LDN and some diet modifications before we try some of the more hardcore meds. I plan on printing out the suggested materials for supporting documentation. Of course, we also find out the results of the small bowel follow through so this whole plan could go to hell in a hand basket in no time I guess. We just feel like we should give this more low-risk approach a shot before jumping into Aza.
I need a reality check here. Am I being irresponsible in this approach??
Shelley
Mom to S - 10 year old boy diagnosed with Crohn's 2/2012
Right now my son's quality of life is great. If you ask him on a scale of 1 to 10 he says he's at a 9 1/2. He has stomach pain a couple of times a day that last about 30 seconds and a couple of "itchy" feelings on his right side during the day. None of this prevents him from going to school or playing sports, etc. Having said this, I'm aware that more could be going on on the inside of him that doesn't necessarily reflect on the outside. He has the perianal abscess that we keep an eye on. He's currently on Entocort (2 weeks) and Flagyl (3 weeks).
I have no idea how his doctor will react to us wanting to try LDN and some diet modifications before we try some of the more hardcore meds. I plan on printing out the suggested materials for supporting documentation. Of course, we also find out the results of the small bowel follow through so this whole plan could go to hell in a hand basket in no time I guess. We just feel like we should give this more low-risk approach a shot before jumping into Aza.
I need a reality check here. Am I being irresponsible in this approach??
Shelley
Mom to S - 10 year old boy diagnosed with Crohn's 2/2012