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This is frustrating!

I posted last month how I am supposedly in remission, but still having troubles. I'm still going to the bathroom 10-20 times a day, loss of appetite, can only eat pretty much once a day, and just very fatigued.

I finally got my stool sample results back and they all came back freaking negative!! we were really hoping (i know that sounds stupid) that I had C-diff and could treat it and get me to feeling better. Nope! all negative.

I can't get into see the GI until sept 19th, but unfortunately am in the process of moving to CAli and won't be here for it.

The other day when I had my Tysabri infusion, I was only there for 2 hours and i had to get up 6 times to go to the bathroom. At least she saw that I wasn't kidding and something is wrong. She asked me what i was going to do since I can't see the Gi. What is there to do? they can't give me answers, so I will just have to keep on keepin' on I guess!

Super frustrated. Oh well though, i guess.
 
I am so sorry to hear about that. Short of going to a GI I have no advice other than to eat liquids if your flaring. If not try liquids for 1 day? I am in a false remission cause I am tapering off pred. But as soon as I go lower I know I'll eventually be making a bee line for the bathroom.
 
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