Hi guys.
Feeling utterly fed up tonight. Many of us crohnies in the UK are still reeling from the travesty that is the British media. I have a very supportive family and boyfriend and after I made a blog post with a response and a picture of me showing my surgery scars an old friend told me how proud he was of me which was very nice to hear. At the end of it all though, I feel pretty isolated still.
I've been getting more and more symptoms lately, the old familiar pain is back and earlier I had to Sprint to the bathroom to avoid an accident. I do try to talk to my family about it but it's hard. I know that my mum worries a lot about me, and it makes her feel bad that she has to go to work and I'm left alone in the house every day and I hate that. I know she's my mum and she loves me and wants to help, but I hate seeing how it upsets her and my dad. My boyfriend does his best, but half the time he just doesn't know what to say, and I don't blame him, it must be difficult trying to respond to someone who's constantly in pain.
I'm currently dealing with weight loss and even when I'm not in pain I'm struggling to eat because I have orthodontic braces in which are making my mouth very sore. So the old stares and whispers are back. Tonight my stomach feels like its tearing itself to shreds and I can't take any of my decent pain killers because of my fibromyalgia meds.
I've recently been taken off sick pay and allowed to start applying for jobs, but that was before this new flare had really started, and now I'm worried that it'll affect my health assessment for university. If I fail this one it will be the third year in a row that I've missed going because of crohns, the first year I had to leave after just 2 1/2 months and the second I failed the health assessment. I don't know what I would do if I failed again.
I know that there are people worse off than me, but I can't remember a day since I was 12 where I've not felt ill or had some new diagnosis to get used to. It feels like every time I get used to one thing another comes out of the blue to knock me back down.
Sorry for the negativity, just needed to get it off my chest.
Feeling utterly fed up tonight. Many of us crohnies in the UK are still reeling from the travesty that is the British media. I have a very supportive family and boyfriend and after I made a blog post with a response and a picture of me showing my surgery scars an old friend told me how proud he was of me which was very nice to hear. At the end of it all though, I feel pretty isolated still.
I've been getting more and more symptoms lately, the old familiar pain is back and earlier I had to Sprint to the bathroom to avoid an accident. I do try to talk to my family about it but it's hard. I know that my mum worries a lot about me, and it makes her feel bad that she has to go to work and I'm left alone in the house every day and I hate that. I know she's my mum and she loves me and wants to help, but I hate seeing how it upsets her and my dad. My boyfriend does his best, but half the time he just doesn't know what to say, and I don't blame him, it must be difficult trying to respond to someone who's constantly in pain.
I'm currently dealing with weight loss and even when I'm not in pain I'm struggling to eat because I have orthodontic braces in which are making my mouth very sore. So the old stares and whispers are back. Tonight my stomach feels like its tearing itself to shreds and I can't take any of my decent pain killers because of my fibromyalgia meds.
I've recently been taken off sick pay and allowed to start applying for jobs, but that was before this new flare had really started, and now I'm worried that it'll affect my health assessment for university. If I fail this one it will be the third year in a row that I've missed going because of crohns, the first year I had to leave after just 2 1/2 months and the second I failed the health assessment. I don't know what I would do if I failed again.
I know that there are people worse off than me, but I can't remember a day since I was 12 where I've not felt ill or had some new diagnosis to get used to. It feels like every time I get used to one thing another comes out of the blue to knock me back down.
Sorry for the negativity, just needed to get it off my chest.