Hi -
I am wondering if anyone has a preschool aged child that has been diagnosed with Crohn's that has not experienced any pain? From what I understand, "pain" is a hallmark feature of Crohn's.
My son was diagnosed with Crohn's after our pediatric GI did an endoscopy and colonoscopy. Even though the pathologist report came out negative and he was a non-responder to Apriso and Prednisone, she still insists he has Crohn's based on what she saw visually (blood, lesions, inflammation). He's had explosive diarrhea ~3x/day since Halloween (3 months now). The diarrhea is usually clear like water and full of floaty mucous. Sometimes there is a pebble. And sometimes there's even a mushy pickle size yellowish poop. His belly gets so distended and hard to the touch because of gas and it is very loud and growly (he calls it his monster in side of him).
Blood word was negative for Celiac (as well as pathology report). The only positive on the blood work was his Sed Rate (a 15). He's been on Flagyl, and Apriso, and Prednisone. We are tapering off of the prednisone now because there has been no effect (other than turning him into a crazy animal). Other than the inconvenience of diarrhea and an occasional rash on his butt, he is perfectly normal (no pain, no fatigue, no rectal bleeding).
The only other bit of info that I think is worth mentioning, and that our doc has blown off, is that this started exactly two days after returning from Hawaii. While in Hawaii, my son swam in the kiddie pool a lot (the kiddie pool that was full of diaper wearing toddlers). My son drank A LOT of pool water. Not only while he was trying to blow bubbles (he was inhaling instead), but he was also drinking out of a bucket before we realized he was drinking "for real". My gut says that he drank a bug OR that he drank so much chlorine that he "neutralized" his gut. Is that even possible? I have recently reached out to our hotel to ask if there were any "pool poop shut downs" and I've also asked for the exact recipe of chemicals that they use in their pool.
Any input or thoughts would be much appreciated!:ysmile:
melomelisa
I am wondering if anyone has a preschool aged child that has been diagnosed with Crohn's that has not experienced any pain? From what I understand, "pain" is a hallmark feature of Crohn's.
My son was diagnosed with Crohn's after our pediatric GI did an endoscopy and colonoscopy. Even though the pathologist report came out negative and he was a non-responder to Apriso and Prednisone, she still insists he has Crohn's based on what she saw visually (blood, lesions, inflammation). He's had explosive diarrhea ~3x/day since Halloween (3 months now). The diarrhea is usually clear like water and full of floaty mucous. Sometimes there is a pebble. And sometimes there's even a mushy pickle size yellowish poop. His belly gets so distended and hard to the touch because of gas and it is very loud and growly (he calls it his monster in side of him).
Blood word was negative for Celiac (as well as pathology report). The only positive on the blood work was his Sed Rate (a 15). He's been on Flagyl, and Apriso, and Prednisone. We are tapering off of the prednisone now because there has been no effect (other than turning him into a crazy animal). Other than the inconvenience of diarrhea and an occasional rash on his butt, he is perfectly normal (no pain, no fatigue, no rectal bleeding).
The only other bit of info that I think is worth mentioning, and that our doc has blown off, is that this started exactly two days after returning from Hawaii. While in Hawaii, my son swam in the kiddie pool a lot (the kiddie pool that was full of diaper wearing toddlers). My son drank A LOT of pool water. Not only while he was trying to blow bubbles (he was inhaling instead), but he was also drinking out of a bucket before we realized he was drinking "for real". My gut says that he drank a bug OR that he drank so much chlorine that he "neutralized" his gut. Is that even possible? I have recently reached out to our hotel to ask if there were any "pool poop shut downs" and I've also asked for the exact recipe of chemicals that they use in their pool.
Any input or thoughts would be much appreciated!:ysmile:
melomelisa