Hi all,
I have been having ongoing health problems for almost the past 10 years...
Tonsils removed at 21 following 2 years of almost continuous tonsilitis...
Papaloma removed from my cervix at 22 ....
DX of polycystic ovarian disease & the removal of my right ovary at 23.....
Discovery of a breast lump at 26... the biopsy of the breast lump caused a total of 8 infections one after the other in the breast... the surgeon didnt remove it untill I turned 28... they then found that the cells in the lump were abnormal and showed cancer markers....
At the time I was being treated for the breast infections I started getting Diarrhea... and stomach cramps... and joint pain... eye pain and fatigue etc etc etc ... the blood tests began to show raised platets, anemia, Vitamin D deficiancy, liver problems etc etc etc and after a looooonnnggg period ( over a year) of the doctor telling me that there is nothing wrong with me that he could find...I changed doctors & was reffered immediately to a GI specialist....
I underwent a barrage of tests including MRI, CT, X Ray, Colognoscopy, Endocopy.. and the list goes on... all of those test showed up ... nothing at all.....
Thank god my GI was persistant and booked me for a Pill cam and a second colognoscopy....
They found inflammation in the small intestines plus three small ulcers... The colognoscopy showed nothing visually... but the biopsy showed inflammation.
I was FINALLY DX with Crohn's in Feb 2011....
Its been a long road but I feel like a sook when I see all of the posts about resections, ostomy etc...
I am on Salofalk (Pentasa in america?) 2MG over the max dose & it has made NO difference whatsoever....
My GI doesn't want to put me on steriods or immune supps (I agree with her) due to cancer markers in the breast lump I had removed.... & I can't afford the steriod with lesser side effects (I cant remember the name but it starts with B) as I am on Government benefits at the moment due to being so unwell... (funny isn;t it... in order to function properly and go back to work I need the meds.... but due to being on unemployment I can't afford the meds....) So we are at a treatment roadblock....
We have decided to treat the symptoms rather than the illness... so...
I am on a whole lot of vitamins for the malabsorption...
Gastro Stop for the diarrhea (but only when i leave the house)
Pramin for the nausea..
& Pain meds for my joints & cramping...
I still feel bloody aweful 90% of the time and am starting to wonder if the cancer risk is worth taking the drugs for some releif...
No major complications as yet... just a really bad kidney stone that I was hospitalised with last week... I anticipate there will be a few more of those...
Well thats it for now... its just nice to find somewhere to talk/post to people who 'Get' it...
I seem to be surrounded by people who think I should just 'buck up' and get on with life... kinda hard to do when you need to be within meters of the nearest toilet constantly... wiping till you bleed... no energy at all... in pain 99% of the day... all the while feeling nauseas as hell... then to add insult to injury your friend with conjuncdivitis gets all the... aweee.. you should take it easy... you poor thing!!!
Beacause it is not a immediately visable disability/illness... people just think your whining.... I imagine they would see it differently if they had just spent a year with a continuos bought of gastro....
But enough of that.... I hope you are all well & in remission!!! Or at the very least... on the road to remission!!!
Jessey
I have been having ongoing health problems for almost the past 10 years...
Tonsils removed at 21 following 2 years of almost continuous tonsilitis...
Papaloma removed from my cervix at 22 ....
DX of polycystic ovarian disease & the removal of my right ovary at 23.....
Discovery of a breast lump at 26... the biopsy of the breast lump caused a total of 8 infections one after the other in the breast... the surgeon didnt remove it untill I turned 28... they then found that the cells in the lump were abnormal and showed cancer markers....
At the time I was being treated for the breast infections I started getting Diarrhea... and stomach cramps... and joint pain... eye pain and fatigue etc etc etc ... the blood tests began to show raised platets, anemia, Vitamin D deficiancy, liver problems etc etc etc and after a looooonnnggg period ( over a year) of the doctor telling me that there is nothing wrong with me that he could find...I changed doctors & was reffered immediately to a GI specialist....
I underwent a barrage of tests including MRI, CT, X Ray, Colognoscopy, Endocopy.. and the list goes on... all of those test showed up ... nothing at all.....
Thank god my GI was persistant and booked me for a Pill cam and a second colognoscopy....
They found inflammation in the small intestines plus three small ulcers... The colognoscopy showed nothing visually... but the biopsy showed inflammation.
I was FINALLY DX with Crohn's in Feb 2011....
Its been a long road but I feel like a sook when I see all of the posts about resections, ostomy etc...
I am on Salofalk (Pentasa in america?) 2MG over the max dose & it has made NO difference whatsoever....
My GI doesn't want to put me on steriods or immune supps (I agree with her) due to cancer markers in the breast lump I had removed.... & I can't afford the steriod with lesser side effects (I cant remember the name but it starts with B) as I am on Government benefits at the moment due to being so unwell... (funny isn;t it... in order to function properly and go back to work I need the meds.... but due to being on unemployment I can't afford the meds....) So we are at a treatment roadblock....
We have decided to treat the symptoms rather than the illness... so...
I am on a whole lot of vitamins for the malabsorption...
Gastro Stop for the diarrhea (but only when i leave the house)
Pramin for the nausea..
& Pain meds for my joints & cramping...
I still feel bloody aweful 90% of the time and am starting to wonder if the cancer risk is worth taking the drugs for some releif...
No major complications as yet... just a really bad kidney stone that I was hospitalised with last week... I anticipate there will be a few more of those...
Well thats it for now... its just nice to find somewhere to talk/post to people who 'Get' it...
I seem to be surrounded by people who think I should just 'buck up' and get on with life... kinda hard to do when you need to be within meters of the nearest toilet constantly... wiping till you bleed... no energy at all... in pain 99% of the day... all the while feeling nauseas as hell... then to add insult to injury your friend with conjuncdivitis gets all the... aweee.. you should take it easy... you poor thing!!!
Beacause it is not a immediately visable disability/illness... people just think your whining.... I imagine they would see it differently if they had just spent a year with a continuos bought of gastro....
But enough of that.... I hope you are all well & in remission!!! Or at the very least... on the road to remission!!!
Jessey
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it really is greatly appreciated epecially after another helping of 'friendly advice' I received today from someone who doesnt 'get' it lol