Hi everyone! I am new to this forum. I was wondering if anyone else has been diagnosed with two types of colitis? I have been sick for 2 1/2 years with intestinal issues, pain in joints extreme tiredness, dry eyes, unusual bruising, cognitive issues, neck and back pain. After many, many tests the different specialists I saw each came up with different diagnoses. The only one each agreed on were Hashimotos and dry eyes. In Dec 2015, I ended up in the hospital after 3 1/2 weeks of diarrhea, vomiting, blood in the stools,and extreme tiredness. I have lost 39 lbs in less than a year. After 4 days in the hospital and a cat scan and a endoscope and colonoscopy, I was diagnosed with crohns disease and was started on prednisone. When the biopsies came back, my reg doctor told me it was ulcerative colitis and referred me to a GI doctor for treatment. I saw the GI doctor and she explained UC and put me on pentasa. I was starting to feel better with less diarrhea. The day after I took the last prednisone pill, I broke out in a rash. I contacted my ppc and the GI doctors but they were both gone on vacation. A different GI doctor (who was on call) called me and said he did not agree with the UC diagnosis and wanted me to come in ASAP for another colonnoscopy and to stop all medications. I did have another colonoscopy. After those biopsy results came back, he told me that I had ischemic colitis while I was in the hospital and now I have lymphocytic colitis. He said it is rare but it happens He also said i didn't need medications. Since I stopped taking the prednisone and pentasa, the diarrhehear has come back and all the symptoms are slowly returning. I am so confused! How can two pathologists come up with two different diagnoses? Help! I just want to feel better. Has this happened to anyone else? Thank you for listening. Big hugs to all of you!
-
Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.
Two colitis diagnosis . . . confused ???
- Thread starter SandyS
- Start date
Those biopsies can be reviewed again by one or more pathologists.
You really need to see what your family doctor thinks of it all as
Well as your regular GI specialist.
It is possible to have more than one condition but these results need to be reviewed by other pathologists.
It is interesting to note that you were doing well on the medication befor it stopped.
Hopefully your regular doctors will be back at work soon.
Feel better soon
You really need to see what your family doctor thinks of it all as
Well as your regular GI specialist.
It is possible to have more than one condition but these results need to be reviewed by other pathologists.
It is interesting to note that you were doing well on the medication befor it stopped.
Hopefully your regular doctors will be back at work soon.
Feel better soon
Thank you for your responses and kind words! I have appointments with my ppc and GI doctor at the end of this month. Hopefully, they can explain it to me. I will let everyone know what they say and ask for a different pathologist to review the biopsy reports. Does anyone know if its possible that either ischemic or lymphocytic colitis can cause symptoms that I have been experiencing for 2 1/2 years( intestinal issues, diarrhea, back and neck ache, dry eyes, tiredness, joint pain, cognitive issues and weight loss? Both my ppc and GI doc said UC would explain my symptoms.
I want to thank you all again. It is so nice to part of a group that understands! ::ysmile::ysmile::ysmile:
I want to thank you all again. It is so nice to part of a group that understands! ::ysmile::ysmile::ysmile:
fuzzy butterfly
Well-known member
Hi SandyS. Wishing you the best and hope they can give you a definate diagnois. Then get you on the right treatment to get you feeling better. Please lets us know how you get on..
Hi everyone! Just a quick update. I went to my PPC and my GI doc and they both confirmed I had Ischemic colitis and have lymphocytic colitis. I was prescribed Entocort and cholestyramine powder. I am feeling better everyday and my diarrhea is getting under control. I do not drink milk anymore and have cut way back on dairy and coffee and no raw veggies. I want to thank everyone for their support and their kind words when I was feeling so confused and discouraged! Big hugs to you all !!
fuzzy butterfly
Well-known member
So glad your on the mend. Thats great news 
. Hope all continues to improve for you.
I find those powders help me with the big D. Iv been on them for a few months now. Best wishes n plz keep us updated on how you are doing Sandys
. Hope all continues to improve for you.I find those powders help me with the big D. Iv been on them for a few months now. Best wishes n plz keep us updated on how you are doing Sandys