Greetings.
Back in 1987 I had suffered for a full month before I got medical attention. Losing 30 lbs along the way, I made my way to the dr. and fortunately, across the street there was a lab I went to and had a colonoscopy. Worst pain in the world, of course, my bowel was totally ulcerated, and that was when I was first diagnosed with Ulcerative Colitis. Over the next nearly 4 years I was in and out of Sunnybrooke Hospital in Toronto and rest the bowel, iv this and no solid food that and on departure from the hospital, I was given large doses of
{PREDNISONE}. among other drugs...asacol, comes to mind.
So, because of the massive amounts of prednisone, it deteriorated my hips. "A-Vascular-Necrosis" and on another hospital admission and ultrasound tests, to locate the flare up, it was determined that I had AVN and the next thing I have this huge Orthopedic Surgery team around my bed telling me that I have to stop taking prednisone and have "elective surgery". So, then my GI comes in and says that I have to have elective surgery on my colon (Total Procto-Colectomy), in order to stop having to take the prednisone and then to subsequently have the left hip replaced, and then the right hip to have minor surgery, not as far gone as the left.
So these surgeries were performed, and I had the ileoanal pouch connection, with the ileostomy bag for 3 months and then removed and on I went, into the sunset of hell. So, quick to the chase, I move to the US and marry in WV in 1999. In 2006 I have this horrible pain, and I am really bad. My doctor sends me to the Gastroenterologist here in the Charleston, WV area and he runs tests on me. His diagnosis is that I had Crohns!
How could that be? I was diagnosed with UC back in 1987 and in 1990 I had it totally removed from my body, thereby ending any further so called complications.
He said that I had be misdiagnosed. What a shocker that was! What to do? I still don't know what to do.
You see, it is one thing to be diagnosed with Crohns. It is another thing to have Crohns, with no large intestine. I am in the bathroom frequently throughout the day anyway, and this, on top of it all is overwhelming.
My health is not good at all. I am always tired, I have high blood pressure, could be the coffee and the extra weight I have put on. I have an active thyroid and that contributes. I feel like a complete victim and frustrated. So, there you have it. I am in a very unique situation. Perhaps there is another out there in my shoes. I would greatly appreciate some effective help in giving me some suggestions to my ongoing predicament.
Thank you.
Sincerely,
steveman99
Back in 1987 I had suffered for a full month before I got medical attention. Losing 30 lbs along the way, I made my way to the dr. and fortunately, across the street there was a lab I went to and had a colonoscopy. Worst pain in the world, of course, my bowel was totally ulcerated, and that was when I was first diagnosed with Ulcerative Colitis. Over the next nearly 4 years I was in and out of Sunnybrooke Hospital in Toronto and rest the bowel, iv this and no solid food that and on departure from the hospital, I was given large doses of
{PREDNISONE}. among other drugs...asacol, comes to mind.
So, because of the massive amounts of prednisone, it deteriorated my hips. "A-Vascular-Necrosis" and on another hospital admission and ultrasound tests, to locate the flare up, it was determined that I had AVN and the next thing I have this huge Orthopedic Surgery team around my bed telling me that I have to stop taking prednisone and have "elective surgery". So, then my GI comes in and says that I have to have elective surgery on my colon (Total Procto-Colectomy), in order to stop having to take the prednisone and then to subsequently have the left hip replaced, and then the right hip to have minor surgery, not as far gone as the left.
So these surgeries were performed, and I had the ileoanal pouch connection, with the ileostomy bag for 3 months and then removed and on I went, into the sunset of hell. So, quick to the chase, I move to the US and marry in WV in 1999. In 2006 I have this horrible pain, and I am really bad. My doctor sends me to the Gastroenterologist here in the Charleston, WV area and he runs tests on me. His diagnosis is that I had Crohns!
How could that be? I was diagnosed with UC back in 1987 and in 1990 I had it totally removed from my body, thereby ending any further so called complications.
He said that I had be misdiagnosed. What a shocker that was! What to do? I still don't know what to do.
You see, it is one thing to be diagnosed with Crohns. It is another thing to have Crohns, with no large intestine. I am in the bathroom frequently throughout the day anyway, and this, on top of it all is overwhelming.
My health is not good at all. I am always tired, I have high blood pressure, could be the coffee and the extra weight I have put on. I have an active thyroid and that contributes. I feel like a complete victim and frustrated. So, there you have it. I am in a very unique situation. Perhaps there is another out there in my shoes. I would greatly appreciate some effective help in giving me some suggestions to my ongoing predicament.
Thank you.
Sincerely,
steveman99
