This group is for those who have been diagnosed with Ulcerative Proctitis. It's not only to give support, but to share information from past experiences.
Nope, not different. You are suffering and it sucks. :hug: I hope you will find relief with the Asacol. Many people here have done well with it for their proctitis.I have Mild Proctitis so slightly different I guess. Had follow up with GI and been put onto something called Asacol, I think?
Interestingly he told me as mine is mild, I may find I rarely get any symptoms at all, just occasionally, if that
Thank you. I was surprised to hear simply Proctitis (aswell as UP) are a type of IBD. I have always thought UC and crohns were the only 2.Nope, not different. You are suffering and it sucks. :hug: I hope you will find relief with the Asacol. Many people here have done well with it for their proctitis.
Fingers crossed. I don't know if mine is ulcerative Proctitis yet as no biopsy results are back. Doubtful with it being so mild and none of the severe symptoms I have seen some have. (apart from mucus). But that is interesting they didnt pick it up last weekI was on Asacol for a few years until I was told that it wasn't working for me anymore. I believe that UP is classed with UC. I hadn't heard of it either till last year 2013 when my GI diagnosed me with it. However, I thought it was interesting that last week when I had my colonoscopy my doctor made no mention of my having UP.
Glad to hear that yours is mild. Hopefully you'll be able to stay that way for awhile!
Got to go back Thursday to pick them up, but I am pretty certain the gastroenterologist said they're tabletsRick........are you on tablets or suppositories ?
Got to go back Thursday to pick them up, but I am pretty certain the gastroenterologist said they're tablets
Good luck!!! Hope everything goes well for you!Started today,decreasing for 4wks ,then probably MRI scan to see if it's done the trick.
Fingers x'd I'll have few or no side effects.
I've used Asacol supps since dx'd, with Proctitis 8yrs ago.Crohns has travelled higher up the large bowel and supps. and foam don't reach that far.My lower bowel is all clear for now. Small mercies :dusty:Have you tried a rectal mesalamine enema? Some folks just can't get results from oral mesalamine and get quick results putting the mesalamine were the problem is. I'd do that before steroids...much lower chances of side-effects.
Day three......Taking pred at 6am as advised so that it doesn't interfere too much with sleep.Waking at 4am last two mornings and very tired by lunch time.Head feels thick and slightly achey.Not taking my usual Co-codamol as not sure if I should ???Good luck!!! Hope everything goes well for you!
Well i remember before having my colonoscopy and being told i had proctitis, about 2months before the scope I had a very high inflammation reading on my faecal calprotectin test of around 742. So when I had the scope and was told i had proctitis, the inflammation was still there but he said it was a mild form of it. My gastro consultant then explained to me that as the inflammation has stayed there for 2months (probably longer given my symtpoms) he did not think it was an acute case. Simply said as it is mild I may find my symptoms hit me very rarely compared to others and prescribed me mesalamine/asacol and told me to take them when i flare up, if i remember rightThere is acute proctitis and ulcerative proctitis. Acute proctitis is NOT IBD, but ulcerative proctitis *is* IBD. Acute proctitis can be caused by all sorts of things and generally is a one-off sort of condition, whereas ulcerative proctitis is generally a chronic disease and may require maintenance medication, which is why, I assume, it would be a question on a form for your job. Ulcerative proctitis also carries a higher risk of cancer over time than another male of your age who does not have it.
No wont make a difference. I have already told them i have a condition and they just want me to let them know what it is. More than likely it is so they know if i am off with a flare up, they know whyI'm almost sure that Proctitis is under the same umbrella as any other IBD diagnosis.If you type Proctitis into the search box,it'll explain.Would it make a difference to your job,one way or the other ?
I started with Proctitis 8yrs ago and managed quite well,but Crohns (mild,hopefully) has reared it's ugly head now.
My calpro was 742 when i had it done end of July beginning of August. Hence why i had the colonoscopy in October and found mild Proctitis.Hi all and Happy New Year.....Just a real quick update.
Had apt with GI on 18th Dec.He said my large bowel was pretty clear.I gave him a list of my symptoms starting with worst/regular,down to occasional. Although my colonoscopy in September indicated inflammation around my splenic flexure,the GI said he thought I had IBS,but wanted a calpro test.His secretary rang yesterday to tell me my result levels are 300.He wants me on the dreaded steroids (not happy)and an MRI scan.I'm going to collect my script tomorrow......Any thoughts ?
Well awaiting biopsies. He said after exam that proctitis if acute, can be caused by bacteria, such as campylobacter, shigella, cryptosporidium etc but also said that when they tested my stool for calprotectin and infection, the infection test was negative for everything, but obviously still showed high inflammation.It sounds like most likely it's Ulcerative Proctitis Rick. But, I would make sure to check with your doctor to be sure.
I notice you have had inflammation still show up for a period of time, do you have any idea how long the inflammation has to be present for it to be considered chronic or acute?Just a quick update.......Been on Pred for two weeks,tapering.Apart from feeling generally run down,I've had bouts of being really unwell every five days or so.Pain,nausea,D,sweats,lots of mucus last week and lots of blood today.It only lasts for 2 or 3 hours in the early morning,then settles down to a sore stomach.This is not new for me,but happens every 2 or 3 months for no apparent reason.I have a Cat scan apt. on 5th Feb.I thought the Pred. would be clearing the inflammation by now ? Calp. elevation was only 300. Thanks in advance.I hope you are all well.
No.Is Inflammatory Bowel Disease considered a disability in any way, no matter how minor a disability it may be?
I ask because as stated I had to inform my employer of any disabilities I have, and IBD/Bowel conditions were under the disability heading.
News to me...
Suppositories only help the rectum. Is your active disease higher up? I am also surprised that your doctor would have you stop using them since they are helping you.Hello everyone
thank you for the replies.
The doctor talked about budesonide in oral form. I thought that was only for Crohns in the small intestine and first part of the large intestine.
It does not seem to make sense. If the 5-ASA suppositories were working for me I wonder why he does not want to give them to me.