• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Undiagnosed years

I started having symptoms about 12 ish years ago . was very irregular bloating ,cramps and occasionally being sick . Maybe once or twice a year . Fast forward 12 years and I thought I better get things checked out . I was having numb feet ,mouth ulcers,costocronditis,breathlessness,brain fog . B12 was tested and was under 44 . So started injections . Doc wouldnt let it rest and was determined to find out more . Colonoscopy,endoscopy found gastritis and hernia . No IBD til mri . They found small bowel crohns june 2019 at the age of 50 . I’m now on imraldi and the dose is increased to once a week from now as second mri in dec 2019 found little improvement. Saw consultant this week and I’m currently on antibiotics as he thinks I have sibo . He mentioned chatting to surgeon( just a chat ) and dietician . And is also testing for coeliac . Although I’m sure that test was done a few years ago and was ok .
im lucky I guess to get to this age without severe symptoms. Consultant said if any severe pain and fever straight to A and E . So not sure what he may have seen on last mri which warranted that remark .
I would think that he is worried about intestinal blockage. Symptoms include severe pain, fever, and sometimes vomiting. It's an emergency.