An update on my son, he has been doing well, taking 6mp with no side effects I can see, had an iron infusion last week as his iron is crazily low.
His bloods came back showing the levels in the 6mp were not right - tg is low and 6mmp is high ( I am thinking these are components of the 6mp that have to be at the right levels)????????
The dr has recommended lowing this dose, and starting on Allipurinol as well which should correct the levels? Has anyone had experience with this?
Do the blood tests check for liver and bone marrow changes from the 6mp, I did read these can be affected from the drug?
And my last question:ybiggrin: my son is relatively healthy, happy and energetic, because he doesn't have alot of symptoms, I really hate the thought of giving him these drugs.....I know that if I don't, things could flare up again, but does anyone else feel just so scared and upset thinking about these drugs we are giving our children? And what effects they will have when they are older?
Thank you for reading x
His bloods came back showing the levels in the 6mp were not right - tg is low and 6mmp is high ( I am thinking these are components of the 6mp that have to be at the right levels)????????
The dr has recommended lowing this dose, and starting on Allipurinol as well which should correct the levels? Has anyone had experience with this?
Do the blood tests check for liver and bone marrow changes from the 6mp, I did read these can be affected from the drug?
And my last question:ybiggrin: my son is relatively healthy, happy and energetic, because he doesn't have alot of symptoms, I really hate the thought of giving him these drugs.....I know that if I don't, things could flare up again, but does anyone else feel just so scared and upset thinking about these drugs we are giving our children? And what effects they will have when they are older?
Thank you for reading x