So Johnny's fecal cal has been slowly going upwards. It was in the 280's last time they tested, which isn't bad but the trend was definitely moving upwards every 3 months. He is also EBV negative, so he has never had mono and apparently there is new evidence that shows that the Lymphoma risk goes up if mono is contracted while on 6mp. So with those two issues combined, GI suggested a med change. GI ordered scopes and MRI, initially he suggested Methotrexate but do to a spot of inflammation that showed up on the MRI, he is now suggesting Humira or Remicade. We have decided to go with Humira, simply because we can administer it at home and no lengthy infusions. We would like to start on the syringes but we may have to use the pens and I am not sure if that is an issue with the pharmacy or our insurance but we are hoping to get the syringes.
I am a little down that we have to move on to Humira but after a recent X-ray of his knees we found out his growth plates are still open so hopefully we can get a few more inches out of him!!
I would love any suggestions!! We can still switch to Remicade.
Thanks
I am a little down that we have to move on to Humira but after a recent X-ray of his knees we found out his growth plates are still open so hopefully we can get a few more inches out of him!!
I would love any suggestions!! We can still switch to Remicade.
Thanks