Helloooo all! :hug:
I haven't read anything here in ages so I'm clueless as to how all are doing.
I shall do so after I post.
Old Violet continues SYMPTOM FREE after six months on pred.
Some will recall her invalid status of last winter/spring.
Within six hours of starting pred in April she was dramatically better. SIX HOURS.
She started at 30mg day in April and is now on 15mg/5mg alternating days and is doing as well on this dose as she was on the higher doses. I am still titrating/dropping and the goal is to eventually maintain on 5mg day.
We tried to go to 15/0. On the third "0" day she was a dishrag again.
She stabilized within 3hr of giving 5mg of pred. She needs a daily boost.
This goes to my theory that hypocortisolism was an underlying factor all along.
As does the fact that she has experienced no adverse effects on pred; rather, it corrected all her issues which were too numerous to list here.
She recently had her homecoming dance (photos on my profile page
), misses no school, is in all AP classes and has 100 avgs in all of them except English (86%).
Her response to pred is ATYPICAL and not to be taken by newbies as likely extrapolative; she has a borderline hypocortisolism in play here and is why she reacted so well to pred.
I haven't read anything here in ages so I'm clueless as to how all are doing.
I shall do so after I post.
Old Violet continues SYMPTOM FREE after six months on pred.
Some will recall her invalid status of last winter/spring.
Within six hours of starting pred in April she was dramatically better. SIX HOURS.
She started at 30mg day in April and is now on 15mg/5mg alternating days and is doing as well on this dose as she was on the higher doses. I am still titrating/dropping and the goal is to eventually maintain on 5mg day.
We tried to go to 15/0. On the third "0" day she was a dishrag again.
She stabilized within 3hr of giving 5mg of pred. She needs a daily boost.
This goes to my theory that hypocortisolism was an underlying factor all along.
As does the fact that she has experienced no adverse effects on pred; rather, it corrected all her issues which were too numerous to list here.
She recently had her homecoming dance (photos on my profile page
), misses no school, is in all AP classes and has 100 avgs in all of them except English (86%).Her response to pred is ATYPICAL and not to be taken by newbies as likely extrapolative; she has a borderline hypocortisolism in play here and is why she reacted so well to pred.
