Update

Josephine · Jan 31, 2014

Thank you Jennifer for your support and everyone in this community.

Just had phone call from IBD nurse. My consultant is on holiday and won't be back until Friday.

What she said was "To keep on with diet, see what MRI shown out tomorrow and if pain get worse on both side of large bowel last weekend", she want to get myself admit hospital again.

Sound fun.

Amanda89 · Jan 31, 2014

Hi Josephine,

Sorry I can't offer much advice, but just wanted to send a message to say I hope your MRI goes well tomorrow and fingers crossed you don't need to readmit yourself to hospital. Nothing worse than being stuck in a hospital bed

Josephine · Feb 12, 2014

Update, is MRI of Small Bowl was clear so ii have appt with Dr.Joy in 6th of March.

pink&green · Feb 12, 2014

Glad MRI was clear keep us posted on Dr. visit.

Amanda89 · Feb 13, 2014

Good to here! Let us know how your appointment goes

Josephine · Mar 6, 2014

Well I had appointment with Dr.Joy at James Cook Hospital. He was run hour late with his appointments. So my appointment was at 10 am, got see at 10.55 for 5 mins chat which brief to said least.

I did not feel had chance to have property chat about things or voice my issues.
Course of action is: Need taper down off steroids, bloods were taken and near future to have Flexible Sigmoidcolon test for large bowel. Also to have appointment made IBD Nurse 4-6 weeks and obvious to carry on with Azathioprine.

Josephine · Mar 6, 2014

Also got the feeling that went he found that I am still taken steroids and I said about month of starting aza things were great obvious on high dosage steroids but after6 weeks (admit hospital) things went down hill. I think he think that stupid or I lied about pain, etc.

Josephine · Mar 13, 2014

I have appointment for 'Limited scope' on the Large bowel on the 25th of this month and also submit a stool sample Monday just gone.

On positive note, I just decide to phone IBD nurse about stool test and is 47 which half of what was six months ago. Which good and she mention that it could be ibs. I am still going attend the scope appointment just to make sure nothing is miss.

Josephine · Mar 18, 2014

Two days ago, I have being get red blood spots but little cluster all over my body, also today I have mouth ulcer/cranker sore. End of large bowel is sore. Bleed gums.xx IBS I am supposed in remission. Hmm