Hiya!
synopsis: 37 yo female. I'm not yet diagnosed, Crohn's is just "hinted at" at this point, based on symptoms, and the colonoscopy is coming in just 3 days (eek!). I have had one DVT in my lower left leg, and read that hypercoagulbility can come with Crohn's - has anyone else experienced this?
long version: In October of 2012, after dealing with what I thought was a never ending charlie horse in my left calf, I was diagnosed with a deep vein thrombosis (DVT). I was found to have one copy of a gene called Factor V Leiden, that makes you more prone to clots, started on warfarin, and told that I would be on it for life as I had had no other factors contributing to the formation of the clot.
Since then, I've suffered with chest pain off and on, which has been determined to "likely" be a combination of muscular issues and reflux, as my heart looks great and they haven't seen a pulmonary embolism (blood clot in the lungs) on any CTs.
Then the tummy trouble started in Dec of last year. I had severe pain in my lower right tummy area, and my husband took me to the ED, where they did an oral and IV contrast CT scan that showed my appendix was fine, but I had a very inflamed and partially burst cecal diverticulum (diverticulitis is the disease name). I was in the hospital for a couple days on IV antibiotics, but no surgery, then sent home on oral augmentin. I had D all through the augmentin treatment, but after it ended, the D got much worse, and 2 days later, I spiked a fever of 102. Back to the ED, where a stool sample showed I had contracted C-Diff. Another 4 days in the hospital as I was terribly ill with that, then finally home on oral Flagyl.
Amazingly, I was "well," with normal bowel movements, for quite a few weeks! Then the D started up again. I cried, believing the C-Diff was back. This time I just went to my GP, who ordered a ton of blood and stool samples, but surprising everything came back fine! No C-diff, no nothing in the stool. And my blood work looked good too. Then I got dehydrated from all the D (it's hard to keep up with!) so off to ED for a couple of liters via IV, where they ordered MORE stool samples, more bloods...again, everything was great! Follow up with GP and she sent me straight to a GI.
GI went over all my tests so far, and ordered a few more, including celiacs, and fecal calprotecin. Celiacs came back a definite negative, and calprotecin levels were within the "normal" range, but he still feels there may "some sort of inflammation process" going on, hence the colonoscopy.
I have now had D for about 6 weeks. Well, yesterday I had a nearly normal stool and I thought "maybe I've been making all this up! maybe this nothing!" Ha! The pain was back last night and the D is back this morning, dang it all.
All of that to ask, while the lovely Lovenox burns my belly (it is the short acting blood thinner I have to use instead of warfarin leading up to the colonoscopy, it is an injection in your belly and it stings!) Has anyone else had blood clots as part of their history?
TIA!!
synopsis: 37 yo female. I'm not yet diagnosed, Crohn's is just "hinted at" at this point, based on symptoms, and the colonoscopy is coming in just 3 days (eek!). I have had one DVT in my lower left leg, and read that hypercoagulbility can come with Crohn's - has anyone else experienced this?
long version: In October of 2012, after dealing with what I thought was a never ending charlie horse in my left calf, I was diagnosed with a deep vein thrombosis (DVT). I was found to have one copy of a gene called Factor V Leiden, that makes you more prone to clots, started on warfarin, and told that I would be on it for life as I had had no other factors contributing to the formation of the clot.
Since then, I've suffered with chest pain off and on, which has been determined to "likely" be a combination of muscular issues and reflux, as my heart looks great and they haven't seen a pulmonary embolism (blood clot in the lungs) on any CTs.
Then the tummy trouble started in Dec of last year. I had severe pain in my lower right tummy area, and my husband took me to the ED, where they did an oral and IV contrast CT scan that showed my appendix was fine, but I had a very inflamed and partially burst cecal diverticulum (diverticulitis is the disease name). I was in the hospital for a couple days on IV antibiotics, but no surgery, then sent home on oral augmentin. I had D all through the augmentin treatment, but after it ended, the D got much worse, and 2 days later, I spiked a fever of 102. Back to the ED, where a stool sample showed I had contracted C-Diff. Another 4 days in the hospital as I was terribly ill with that, then finally home on oral Flagyl.
Amazingly, I was "well," with normal bowel movements, for quite a few weeks! Then the D started up again. I cried, believing the C-Diff was back. This time I just went to my GP, who ordered a ton of blood and stool samples, but surprising everything came back fine! No C-diff, no nothing in the stool. And my blood work looked good too. Then I got dehydrated from all the D (it's hard to keep up with!) so off to ED for a couple of liters via IV, where they ordered MORE stool samples, more bloods...again, everything was great! Follow up with GP and she sent me straight to a GI.
GI went over all my tests so far, and ordered a few more, including celiacs, and fecal calprotecin. Celiacs came back a definite negative, and calprotecin levels were within the "normal" range, but he still feels there may "some sort of inflammation process" going on, hence the colonoscopy.
I have now had D for about 6 weeks. Well, yesterday I had a nearly normal stool and I thought "maybe I've been making all this up! maybe this nothing!" Ha! The pain was back last night and the D is back this morning, dang it all.
All of that to ask, while the lovely Lovenox burns my belly (it is the short acting blood thinner I have to use instead of warfarin leading up to the colonoscopy, it is an injection in your belly and it stings!) Has anyone else had blood clots as part of their history?
TIA!!