Wondering if anyone has experience with this. . . . planning to call the doc in the morning.
My 15 yr old was put on Pred back when she was 1st dx in August. Been on 80mg, and now finally decreasing by 10mg/week. She's had 2 Remicades so far, next is due Nov 15th. She's down to 30mg/day but is still very full of water/very puffy. Today she was showing me that her left foot is also swollen, and it wasn't before. She has gained 40lbs since the beginning of August.
I thought that swelling with just one extremity wasn't the best of signs. She isn't having any "new" symptoms like shortness of breath, just upset to see more swelling. She's very upset that the puffiness doesn't seem to be decreasing, even though her dose is in half.
Any comments on the leg swelling? Also, how long did it take your kids to get back a "normal" appearance after being on the prednisone. She is feeling like she will never look like herself again!
My 15 yr old was put on Pred back when she was 1st dx in August. Been on 80mg, and now finally decreasing by 10mg/week. She's had 2 Remicades so far, next is due Nov 15th. She's down to 30mg/day but is still very full of water/very puffy. Today she was showing me that her left foot is also swollen, and it wasn't before. She has gained 40lbs since the beginning of August.
I thought that swelling with just one extremity wasn't the best of signs. She isn't having any "new" symptoms like shortness of breath, just upset to see more swelling. She's very upset that the puffiness doesn't seem to be decreasing, even though her dose is in half.
Any comments on the leg swelling? Also, how long did it take your kids to get back a "normal" appearance after being on the prednisone. She is feeling like she will never look like herself again!