Ok, so I had been waiting for results of my last capsule endo and I finally got them Wednesday afternoon. I would have posted yesterday but I mentioned I had some serious computer issues but I digress.
Basically the study came back clean. No inflammation, no lesions/ulcers, no scar tissue, no stricturing. Nothing.
_Normally_ I as would most of us be jumping for joy. The problem is I still feel like crap and am having symptoms.
I missed a call from my GI yesterday evening but she gave me a direct number so I don't have to play phone tag. She mentioned the fact that the study was negative and that she was really baffled now. _Join the club_ ... She wants to discuss our next steps and plans. I had sent a rather lengthy email to her Tuesday night with ideas of what we can try and do. So I'm guessing we'll go over those.
I don't often cry. I just don't do it but after that phone call I basically lost it. I feel like the doctors I've dealt with over the past 2 years (this GI excluded) haven't taken me seriously until I get sick enough to be admitted to the hospital and that's just not right. So now I'm thinking great they _really_ won't take me seriously. I start wondering if my only option left is to basically let things go for now until it gets really bad again and based on previous experience it'll happen and then this doctor can figure it out. The other part of me thinks I don't and shouldn't have to get so sick to be taken seriously. It's just maddening.
I'm beginning to question the Crohns diagnosis, you hear these guys go back and forth so often you have to start to question it yourself. Ugh.
Anyways, needless to say I'm not doing well emotionally because I just don't know where to go next. I am placing calls to my PCP to see what we can do with the nutrition portion of the situation since that is more then likely a culprit with this massive exhaustion. I'm also going to go over everything that's gone on to see if yet another set of eye balls on the issue can come up with any new ideas or therapies. I honestly can't keep living like this. I'm also going to call the GI back to see what she has to say.
I'm fortunate to have a really good support group in place in you all, my friends and family otherwise I'd be in really bad shape methinks haha.
Basically the study came back clean. No inflammation, no lesions/ulcers, no scar tissue, no stricturing. Nothing.
_Normally_ I as would most of us be jumping for joy. The problem is I still feel like crap and am having symptoms.
I missed a call from my GI yesterday evening but she gave me a direct number so I don't have to play phone tag. She mentioned the fact that the study was negative and that she was really baffled now. _Join the club_ ... She wants to discuss our next steps and plans. I had sent a rather lengthy email to her Tuesday night with ideas of what we can try and do. So I'm guessing we'll go over those.
I don't often cry. I just don't do it but after that phone call I basically lost it. I feel like the doctors I've dealt with over the past 2 years (this GI excluded) haven't taken me seriously until I get sick enough to be admitted to the hospital and that's just not right. So now I'm thinking great they _really_ won't take me seriously. I start wondering if my only option left is to basically let things go for now until it gets really bad again and based on previous experience it'll happen and then this doctor can figure it out. The other part of me thinks I don't and shouldn't have to get so sick to be taken seriously. It's just maddening.
I'm beginning to question the Crohns diagnosis, you hear these guys go back and forth so often you have to start to question it yourself. Ugh.
Anyways, needless to say I'm not doing well emotionally because I just don't know where to go next. I am placing calls to my PCP to see what we can do with the nutrition portion of the situation since that is more then likely a culprit with this massive exhaustion. I'm also going to go over everything that's gone on to see if yet another set of eye balls on the issue can come up with any new ideas or therapies. I honestly can't keep living like this. I'm also going to call the GI back to see what she has to say.
I'm fortunate to have a really good support group in place in you all, my friends and family otherwise I'd be in really bad shape methinks haha.
so sorry. like you say, a test result like that should make you happy, but when you're feeling so poorly it just adds to the frustration!
