Hello!
I am a newbie here and wanted to share my story. It is sort of odd and thought I might get some insight from you knowledgable folks.
So it all started a few months ago when I started having a lot of bleeding with bowel movements. This went on for a few days and then I started running a fever and had flu-like symptoms. At that point, it was Saturday of course, I went into the ER. The Dr. did an exam and looked externally and didn't see anything so he prescribed me some painkillers and gave me a reference to a GI. Well the Vicodin helped the fever and flu-like issues but the bleeding was still happening off and on. I made an appoint with the GI, but it was a month out. So I muddled through.
At my GI appointment, he took my history and whatnot and then looked at at my rectum and saw that I had a hemorrhoid. He thought that was my problem and the cause of my bleeding. He gave me some tips and had me come back in a month to see his CNP. I did what he said, more fiber, ect. It didn't help. I still had pain from the hemorrhoid and bleeding off and on. The CNP gave me hydrocortisone suppositories but they didn't do much either. So the next step was a colonoscopy. At this point I really didn't think anything serious was going on and the colonoscopy would be clear.
Well I went for the colonoscopy and when I woke up the Dr. said that my colon looked great so he went a little farther up and found inflammation and ulcers in the ileum. He said they looked like Crohn's and the pathology would be back the next day. The next day the results were in fact consistent with Crohn's. He called me in a rx for prednisone. 40mg for two weeks and then 20mg for two weeks. A couple of weeks after the colonoscopy I went in and saw the CNP and she gave me more pred to continue to taper and Pentasa at 1000mg 4x a day.
Of course, in the meantime, I have been doing a ton of research on Crohn's and I feel like I have a pretty good understanding of the disease. But I know next to nothing about MY case. The weirdness comes in because I don't have the frequent diarrhea that many people do. I have some pain but not debilitatingly so. Bleeding is my main symptom. So that confuses me a bit because on one hand since I don't feel that sick I think maybe my case isn't that bad. But on the other hand the bleeding is bad. Since being on the pred, I haven't had any bleeding and the pain I did have is getting better, so that is good news.
Maybe someone else out there has a similar case and could give some insight. I don't know. I just wanted to share I guess. Sorry this got so long and thanks if you stuck it out this long
I am a newbie here and wanted to share my story. It is sort of odd and thought I might get some insight from you knowledgable folks.
So it all started a few months ago when I started having a lot of bleeding with bowel movements. This went on for a few days and then I started running a fever and had flu-like symptoms. At that point, it was Saturday of course, I went into the ER. The Dr. did an exam and looked externally and didn't see anything so he prescribed me some painkillers and gave me a reference to a GI. Well the Vicodin helped the fever and flu-like issues but the bleeding was still happening off and on. I made an appoint with the GI, but it was a month out. So I muddled through.
At my GI appointment, he took my history and whatnot and then looked at at my rectum and saw that I had a hemorrhoid. He thought that was my problem and the cause of my bleeding. He gave me some tips and had me come back in a month to see his CNP. I did what he said, more fiber, ect. It didn't help. I still had pain from the hemorrhoid and bleeding off and on. The CNP gave me hydrocortisone suppositories but they didn't do much either. So the next step was a colonoscopy. At this point I really didn't think anything serious was going on and the colonoscopy would be clear.
Well I went for the colonoscopy and when I woke up the Dr. said that my colon looked great so he went a little farther up and found inflammation and ulcers in the ileum. He said they looked like Crohn's and the pathology would be back the next day. The next day the results were in fact consistent with Crohn's. He called me in a rx for prednisone. 40mg for two weeks and then 20mg for two weeks. A couple of weeks after the colonoscopy I went in and saw the CNP and she gave me more pred to continue to taper and Pentasa at 1000mg 4x a day.
Of course, in the meantime, I have been doing a ton of research on Crohn's and I feel like I have a pretty good understanding of the disease. But I know next to nothing about MY case. The weirdness comes in because I don't have the frequent diarrhea that many people do. I have some pain but not debilitatingly so. Bleeding is my main symptom. So that confuses me a bit because on one hand since I don't feel that sick I think maybe my case isn't that bad. But on the other hand the bleeding is bad. Since being on the pred, I haven't had any bleeding and the pain I did have is getting better, so that is good news.
Maybe someone else out there has a similar case and could give some insight. I don't know. I just wanted to share I guess. Sorry this got so long and thanks if you stuck it out this long