- Location
- Manchester UK
Well my story is probably like everyone else's to a degree.
I was a 24 year old free wheeling, loving guy who's only problem was which group of friends should I go out with at night.
Then I could not get off the toilet 30/40 times a day, I would eat a sandwich and bang on the toilet, cramps fear and smelly poo type stuff firing out of me.
I worked for my parents so they sought off understood and after repeated visits to my doctor they paid for me to go see a specialist privately.
Young man he said you have Crohns disease after a look up my bum.
Crohns I replied??????????
After the shock wore off and the mass injections of steroids the toilet visits stopped. My face was round, my moods all over the place.
After the steroids stopped I was admitted to the hospital 10 times in 4 months.
Azathioprine gave me pancreas problems.
Methotrexate an inflamed liver.
Then after 12 rough years I was in remission, cycling 50-90 miles a day, living, loving back to the Glenn people had known.
Two years in and the pain started ,back on the toilet,hello old friend I thought back to haunt me.
So I cracked up admitted myself to a Psychiatric hospital 3 times in 18 months.(I wanted help but I wanted it all to go away)
My old friends visited and smiled while I floated in my drug induced state.
My mother said pull your self together as she could not cope. Alas I said I am not a pair off curtains. We laugh about it now.:lol2:
Started my own successful little business with my parents help, the drugs worked a bit life ticked on I booked a live it large holiday with my old friends who had stayed by me to India.
Oh but guess who came to play 1 week before we went ....Yeh Mr.Crohns and he brought a friend//// a orange size mass that kept abscessing...
I persuaded them not to operate and give me a bag.The drugs worked. :ghug:
Later I went to Europe with my oldest friend in his camper van for a month his promise because I missed India, the best maddest holiday ever.
Six months later I was greedy again ,blood clot on the lung from my mass they said with a touch of pneumonia...Lol life sucked, well it did not as the morphine was good.:ylol:
Gave my business up back to £85.00 a week. Retrained as a barber cut throat shaver.
Met a lady who I am with now a year later.
Six months into the relationship had my ileum removed as the infliximab and humira stopped working.
Three years later they could not get the camera up my bum as my old friend was working overtime(Mr.Crohns)I had a left hand side ileostomy.My biggest fear was with me,it was hard but with the support from nearest and dearest I am dealing with stoma Bert.(Oh and stoma nurse Julie)
No more pain, I am working fulltime in a demanding job that I love, the kids and Mrs drive me crazy (I would not swop them for the world)
I get grumpy but love life.
I am going back on Humira next week as that's right he has come back, aching joints, ulcers on my stoma and tiredness.
There are a lot of things I know about life :
My family and 3 dogs love me.
My true friends are always there
I have travelled more than most.
I share a special bond with special people who are fighters and wont let Crohns beat us.
Pain goes and makes us strong.
I miss farting because I have a bag.
There are people worse of than myself, even if I don't always think that.
Mr.Crohns walks and talks to me, he is not my friend or foe and has made me the person I am.
I have watched more night time TV than most people.
So sorry about going on so much, its actually the second time I have told anyone about me and Mr.Crohns.
I was a 24 year old free wheeling, loving guy who's only problem was which group of friends should I go out with at night.
Then I could not get off the toilet 30/40 times a day, I would eat a sandwich and bang on the toilet, cramps fear and smelly poo type stuff firing out of me.
I worked for my parents so they sought off understood and after repeated visits to my doctor they paid for me to go see a specialist privately.
Young man he said you have Crohns disease after a look up my bum.
Crohns I replied??????????
After the shock wore off and the mass injections of steroids the toilet visits stopped. My face was round, my moods all over the place.
After the steroids stopped I was admitted to the hospital 10 times in 4 months.
Azathioprine gave me pancreas problems.
Methotrexate an inflamed liver.
Then after 12 rough years I was in remission, cycling 50-90 miles a day, living, loving back to the Glenn people had known.
Two years in and the pain started ,back on the toilet,hello old friend I thought back to haunt me.
So I cracked up admitted myself to a Psychiatric hospital 3 times in 18 months.(I wanted help but I wanted it all to go away)
My old friends visited and smiled while I floated in my drug induced state.
My mother said pull your self together as she could not cope. Alas I said I am not a pair off curtains. We laugh about it now.:lol2:
Started my own successful little business with my parents help, the drugs worked a bit life ticked on I booked a live it large holiday with my old friends who had stayed by me to India.
Oh but guess who came to play 1 week before we went ....Yeh Mr.Crohns and he brought a friend//// a orange size mass that kept abscessing...
I persuaded them not to operate and give me a bag.The drugs worked. :ghug:
Later I went to Europe with my oldest friend in his camper van for a month his promise because I missed India, the best maddest holiday ever.
Six months later I was greedy again ,blood clot on the lung from my mass they said with a touch of pneumonia...Lol life sucked, well it did not as the morphine was good.:ylol:
Gave my business up back to £85.00 a week. Retrained as a barber cut throat shaver.
Met a lady who I am with now a year later.
Six months into the relationship had my ileum removed as the infliximab and humira stopped working.
Three years later they could not get the camera up my bum as my old friend was working overtime(Mr.Crohns)I had a left hand side ileostomy.My biggest fear was with me,it was hard but with the support from nearest and dearest I am dealing with stoma Bert.(Oh and stoma nurse Julie)
No more pain, I am working fulltime in a demanding job that I love, the kids and Mrs drive me crazy (I would not swop them for the world)
I get grumpy but love life.
I am going back on Humira next week as that's right he has come back, aching joints, ulcers on my stoma and tiredness.
There are a lot of things I know about life :
My family and 3 dogs love me.
My true friends are always there
I have travelled more than most.
I share a special bond with special people who are fighters and wont let Crohns beat us.
Pain goes and makes us strong.
I miss farting because I have a bag.
There are people worse of than myself, even if I don't always think that.
Mr.Crohns walks and talks to me, he is not my friend or foe and has made me the person I am.
I have watched more night time TV than most people.
So sorry about going on so much, its actually the second time I have told anyone about me and Mr.Crohns.
