My 9 year old son has been doing so well with EEN, drinking up to 10 drinks a day and feeling quite good. We started 6mp last Monday, and for the last 3 days he has been feeling sick, not wanting to drink the drinks (gone from 10 or more a day down to 5) and generally has become teary and upset at the entire thing....as have I.
The doctor said we needed to start the meds during EEN, is that the usual thing that happens? Or should we have finished the 8 weeks first then started the meds?
We are going to hospital on Nov 7 for an iron infusion, bloods to check the meds and another pillcam scope to see if this liquid diet has helped...that will be 10 weeks in total..I'm really worried he will start losing weight, and all the good progress he has made will be to no avail...
If he can't keep the drinks down, what next???? I feel so totally sick about this.....thanks xx
PS I have felt really strong and positive but now it's making me realise what a horrible thing Crohns is, and how he is suffering....it's so not fair..
Hope your babes are doing okay xxx
The doctor said we needed to start the meds during EEN, is that the usual thing that happens? Or should we have finished the 8 weeks first then started the meds?
We are going to hospital on Nov 7 for an iron infusion, bloods to check the meds and another pillcam scope to see if this liquid diet has helped...that will be 10 weeks in total..I'm really worried he will start losing weight, and all the good progress he has made will be to no avail...
If he can't keep the drinks down, what next???? I feel so totally sick about this.....thanks xx
PS I have felt really strong and positive but now it's making me realise what a horrible thing Crohns is, and how he is suffering....it's so not fair..
Hope your babes are doing okay xxx