Hello, welcome to the forum
Do you mind me asking what treatments you have tried so far?
In the short term, you may require a short course of steroids to get things under control, I'm not sure if you can have pred with seizures, but there is another steroid called budesonide which has much fewer side effects which may be suitable for you.
If you haven't already tried it, you could ask your medical team about humira, which works the same way as remicade, it may not be suitable due to your other problems, but it won't hurt to ask about it. Other biologics that may be an option are stelera or cizima.
If you find that this isn't something you can use, you could enquire about vedolizumab (entyvio). This is a newer biologic that specifically targets the gut, its not quite got the success rates of the other biologics, but I do know of a few Crohn's patients who have responded really well to it. I've been on it for a year now and although I still have problems I'm definitely better than before. Due to the way it works, it has slightly less risk than the other biologics, so your body may tolerate it better, and it also has a much better long term safety profile.
With regard to the weight loss, you might benefit from using a supplement drink like ensure, which can be used as a sole source of nutrition if you're really struggling to eat or as an addition to your diet for some extra calories. In the UK we have to have these prescribed by a dietitian but I think in the US you can get them from a pharmacy.
I hope this helps a bit, please let us know how you're getting on and please don't hesitate to come back if you have any more questions or concerns or if you just want to vent. We're all in the same boat here and even though we don't have all the answers we will do our best to help and at least try to point you in the right direction. There is no such thing as a silly question and no one here will judge you if you're finding things difficult.