At the age of 9, my daughter was diagnosed with ulcerative colitis. We have been battling this disease for a year and a half. Constantly goin to the restroom, having accidents. We took her out of school for a short period of time so she wouldnt get picked on. We have been on azulfidine, pentasa, and now taking apriso and imuran. Nothing seems to help her at all except prednisone. In which her doctor doesnt want her to continue the prednisone because of the side effects. She has lost about 20lbs, has headaches all the time, and no energy at all. It is really heartbreaking to see her like this and not being able to help her or understand why none of the medicines are helping. Her doctor states that our next step is remicade or colostomy. The thoughts of her only being 10 yrs old and having a colostomy is not something i want to even consider. So i am considering remicade, but have read some scarey side effects. So my question is, What has the outcome been for anyone else with a child around my daughters age on remicade?