Gluten
After posting this, I got an ileostomy. I had to become incredibly careful about fibre, a small amount and my stoma would block. But then several months ago, I had to have surgery which resulted in me getting a new stoma. This one doesn't block anywhere near as easily. I was so cautious at first, but I'm gradually trying foods I haven't eaten for so long and increasing the amount of fibre in my diet.Unsafe: anything containing insoluble fibre (whole grain cereals like bran; raw vegies, beans, nuts and seeds), but only in large quanities - a small amount each day is ok. Anything really rich. A lot of typically unsafe foods, like alcohol, coffee or spicy food I don't like anyway so I'm not sure if they're unsafe for me. Also the volume of food matters for me - large portions of anything are unsafe!
Safe: pretty much everything else - refined/white cereals and grains; sugary foods (cakes, bicuits, etc.); fruits and veg that are safe for me are root vegetables/bananas/tinned fruit/avocado; protein: fish, dairy products, eggs and meat; drinks: juice, fizzy drinks, squash, milk; milk-based puddings are great when I don't feel like eating. Peanut butter is safe and useful for getting in calories.
I thought bananas were a safe food for most people. Do they usually give you trouble? And how many is too many? Hope you feel better soon.Ate too many bananas yesterday.
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I had a banana and a half.I thought bananas were a safe food for most people. Do they usually give you trouble? And how many is too many? Hope you feel better soon.
What kind of food allergy test?I have a doctor who will be doing a food aloeegy test.
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Yes! Me too. I always think it's something else but boy do they ever give me bad gas pains. Has anyone experienced extremely painful gas pains in your back ? I don't know how to help it and I can't breathe while it's happening I can only cry and wait for it to go away.Just found out I can't do eggs.
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I strongly feel this way. There are some days I can eat whatever I want and only several days later I can't eat that food anymore whether it was a vegetable, fruit, a burger or a glass of milk. I was just recently diagnosed with crohns so I am still learning I've started a food journal. But i can't seem to find any pattern with the same foods. I work as a barista. And I love coffee.. I thought I was doing good at first and was able to still drink caffeine but recently I switched to decaf as I have noticed way less pain.Question to all those who listed unsafe food:
What are the other factors that cause your flare-ups?
Truth is that there is NO proof that any food alone causes the flare-up.
But if your intestines are already damaged from past flare-ups then it is possible for some food to cause problems. Not because of the food itself but because your intestines are unable to absorb certain foods. Also things like tomatoes will surely cause pain to already damaged intestines because of their acidity.
My question is: do you think any food causes you problems WHEN you are perfectly healthy? (with completely healed intestines)
Problem is that most of the people, even when they are feeling better, have some degree of damage from past flare-ups.
I would especially like to hear from those who have undergone resection (as myself) and whose intestines are now completely healed. (I have Crohn's)
I have tried many different food after the operations and have not had even the slightest problems. Doctors also say: "Eat everything". (I still avoid certain foods just in case)
So I think it's hardly a food that causes or triggers the disease. (this probably also explains so many differences in people's diets)
Would like to hear your thoughts on this.
Thanks
I feel this way too like nothing I eat will stay inside of me. But the hunger pains make me feel weak and nauseous so I'm totally useless those days where I can't eat anything.1- Crohns
2-Any Alcohol, but specifically anything Hoppy (Sierra Nevada is the WORST) anything greasy, anything fried, Lettuce and raw veggies.
3- Normally, just stay away from the above, but am in a bad flare up right now, so quite honestly am trying to starve myself because anything makes the pain really really bad.
I've been living off rich teas, well dunked, this week!Fantastic thread!
1. Crohns
2. Any red meat, oranges, all seeds, all nuts, a lot of raw veggies, bread of any kind, raw onions, spiced cured meats like salami, chorizo etc, cream, smoked salmon, wholemeal anything, brown rice, fizzy drinks, crisps (whether its Doritos or Walkers), beer, yeast-y things
3. Chicken, potatoes, cheeses, yoghurts, eggs, pitta bread, wraps (tortillas etc), most fish, white rice, cucumber, rice cakes, vodka, strangely McDonalds chicken nuggets, chicken noodle soup, Rich Tea biscuits and Digestive biscuits (like graham crackers in the US?)
The list is constantly changing though!
I think the point is to show how different we all are, yet there are still foods that are generally irritating.Am I the only one that finds this thread a bit nonsensical? Where's the correlation and the science?
It's like most people are responding just to "join the party". Providing absolutely zero insight and analysis. Illogical, carelessly slopped together posts are just a waste of occupied bytes on a server hard drive.
People need to know the detailed scientific research on why foods are aggravating their condition. For this they would get more out of reading books like the The Paleo Approach or The Perfect Health Diet.
Someone should lock this sucker up and remove the sticky.
Just my 2c.
I actually thought you were having us on when I read your example of science, Paleo, really?People need to know the detailed scientific research on why foods are aggravating their condition. For this they would get more out of reading books like the The Paleo Approach or The Perfect Health Diet.
pulp bugs me big timeLately, I have been enjoying coconut water. I accidentally got some with pulp. Does pulp bother any of you?
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Cranberries yes, coconut never had so I wouldn't know.What about cranberries or coconut?
I had IV of iron during a month, helped a lot with bood work and strength1)IBD not yet classified further.
(below before I got really bad and everything seems to upset me!)
2)Any form of tortilla chips/Doritos, fresh pineapple, multi grain crackers. Salad last thing with evening meal, likewise melted cheese. Raw carrots if eaten alone.
3)White bread rolls, 99% of the time and crisps/potato chips.
Not very helpful I know.
Samatha,Good idea David!
1. Crohn's
2. Tomatoes(actually, anything red in colour) corn, red meat, any raw vegetables but especially lettuce, coffee, anything acidic, anything spicy, fast food burgers, milk, nuts, popcorn, fresh fruit, anything whole wheat, alcohol.
3. Pretty much anything white in colour. breads, pasta, rice, potatoes, chicken noodle soup and raman, flattened pop, chicken with no skin.. I don't have much of an appetite lately as I'm still flaring, so I don't really eat anything but this stuff.
Seems like everyone's list is along the same lines, for the most part.
=(
Same hereSamatha,
I do hope that u hav found out that u don't hav MS! al t best cheers
me too, I feel so silly as I m 63 & I hav only just realised! after eggs (boiled, omelette, or scrambled) 10 mins later hav about 5 v loud strong sneezes & then after about 20 mins diarhorea. I love eggs "t perfectly packaged protein product" . I may try again a couple of times cos for breakfast I had a nice drink of water & 6 mins later trying to change my ileostomy bag v bad watery diarhorea & all I had in my stomach I reckon was bile & water.Just found out I can't do eggs.
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wot sort of fd allergy test & wot did it show mate?I have a doctor who will be doing a food aloeegy test.
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Dear WVAm I the only one that finds this thread a bit nonsensical? Where's the correlation and the science?
It's like most people are responding just to "join the party". Providing absolutely zero insight and analysis. Illogical, carelessly slopped together posts are just a waste of occupied bytes on a server hard drive.
People need to know the detailed scientific research on why foods are aggravating their condition. For this they would get more out of reading books like the The Paleo Approach or The Perfect Health Diet.
Someone should lock this sucker up and remove the sticky.
Just my 2c.
Miki of course when intestines r raw t body reacts to everything. Don't want to scare u but hav u thought that mayb u r back where u were b4 ur Crohns was a problem? ie u can eat fds now that u shud avoid but it might take a while 4 t problem to get bad enough to cause really noticeable symptoms. al t best enjoy ur Crohns break & if u ever hav to I recommend don't hesitate to accept a stoma - t pains gone.Question to all those who listed unsafe food:
What are the other factors that cause your flare-ups?
Truth is that there is NO proof that any food alone causes the flare-up.
But if your intestines are already damaged from past flare-ups then it is possible for some food to cause problems. Not because of the food itself but because your intestines are unable to absorb certain foods. Also things like tomatoes will surely cause pain to already damaged intestines because of their acidity.
My question is: do you think any food causes you problems WHEN you are perfectly healthy? (with completely healed intestines)
Problem is that most of the people, even when they are feeling better, have some degree of damage from past flare-ups.
I would especially like to hear from those who have undergone resection (as myself) and whose intestines are now completely healed. (I have Crohn's)
I have tried many different food after the operations and have not had even the slightest problems. Doctors also say: "Eat everything". (I still avoid certain foods just in case)
So I think it's hardly a food that causes or triggers the disease. (this probably also explains so many differences in people's diets)
Would like to hear your thoughts on this.
Thanks
agreed Colin but without t washabi unfortunately. When I had my ileostomy iwas starving & some idiot but wel meaning dietician cancelled my meal order cos I wrote meat ( I just wanted a taste of t sauce). 4 floors below was café w sushi which I know I cud hav eaten but I had no=one to go & fetch it for me cos I always used to cancel visitors cos I was too sick to talk. not nxt time, t drs, nurses sum of them treat u a lot better if u hav visitors. t nasty nurse I never say him except when a visitor arrived 7 then suddenly he was so solicitous. xcuse me remembering bad times, other nurses were brilliant, offered midnite massages,. etcWanted to add something:
Sushi... I have had sushi 3 times since my last flare. It seems to be the ONLY meal that sits totally well with my entire system, even with massive amounts of wasabi (which I love because it's the only hot thing I can eat.) But of course, it's basically fish and rice with some seaweed, all gentle stuff.
Going to try to remember this in the future when I'm starving during a flare! :thumleft:
Jap rates v low in their own country for IBD. when they cum to west their rates slowly match westerners. Incidentally 'jap' isn't meant to be disrespectful, its just anything to save sum energy typing.On that note I'm completely the opposite I think it was wasabi that triggered my crohn's in the 1st place I was totally fine until I had a really really spicy thai meal in london last yr then bang it all went downhill from there (LOL)!!! I know it probably wasn't that but it would be interesting to see how many japanese suffer from crohn's
I may b heading sarah's way w short gut syndrome. I admire her restraint & discipline. gee I cud daydream al day about 1 BM/day. How heavenly! Does she hav ileostomy? like me I m holding well on Redicade. al t best to u alSarah has short bowel syndrome and has found that a vegan diet with little fat or oils suits her best. She has narrowed it down to finding that food with 1.5grms of vegetable fat or less per serving is safe for her and this combination has her down to pooping once a day, which she is absolutely thrilled about!
Well worth the effort and sacrifice according to her.
Dusty. xxx
Elimination Diet bks frm Prince Alfred Hospital brilliant reading. So helpful even if u cant follow it properly it certainly helps.Hi Eefs. A lot of people use an elimination diets. It's tough cos you have to cut what you have right back to the bare minimum and introduce new foods gradually and systematically. Keeping a food diary also helps.
It's worth it for the relief it can bring.
Yumo!1. Crohn's
2. Dairy, any red meat that isn't ground up (with the exception of the fat on steak), stick & hot spices, salt, skin on poultry, vegetables that aren't steamed or boiled, fiber from wheat, soy, chocolate sent me to the hospital, cakes, cookies - anything made with flour and baking soda - I guess caffeine - I'll have to ween myself off, food coloring, preservatives (the more cleansed my system - the more sensitive I become, soda, pizza - I can feel the crust expanding in my intestines - youch, onions - SHELL FISH KILLS ME ALIVE
3. oats, oatmeal with raw sugar and butter, granola oats left to soak in applesauce and a touch of powdered cinnamon, fruit bread made w/frozen white bread - butter - pears - raw sugar rolled up and baked - my desert; corn bread w/creamed corn added, tuna and salmon pate on saltines/saltless, peanut butter (creamy - jelly not jam) strawberries on bisquik biscuits - 1/2 of biscuit, potatoes any way - add butter. Fried foods on the stove (not deep fried) don't seem to bother me - McDonalds french fries are a saving grace when dehydrated in the summer to retain water (I have a huge problem with dehydration - must be the caffeine) Doritoes - white - they must break down easy because chips just kill my intestinal tract, soft boiled eggs, all cooked vegetables, pea soup, speghetti sause and spegheti don't seem to bother me from a can - I watch the oregano when home cooked, white noodles but not homemade egg noodles - they swell up too - white bagels and deli ham, roast beef, turkey w/cream cheese - (real light on cheese for me) Green tea, 100% Coconut milk, 1 tablespoon organic coconut oil per day, sea salt if needed, hotdogs on cheap buns, french bread with butter & provolone melted on it and parmigiana, no string vegetables, custard, tapioca, jello with real whipped cream (again light on the cream)
thanks v interesting. wot is SCD, GAPS, Seignalet etc. Here in Oz I havnt heard of thisSome foods seem safe and are not. Starches like rice, or pasta ("bland" foods) don't do their damage for many hours after eating, so people think they're safe. They are complex carbohydrates which we can't easily digest, so they pass through the small intestine and go to feed the bad bacteria in the colon. This bad bacteria is the source of the symptoms. Many doctors in different countries have figured this out independently, so you have various names for the no-starch diet - SCD, GAPS, Seignalet, etc. They're not exactly the same, but they are variations on the same theme: sugars and starches are killing us. Eliminate them from your diet, and you'll be really surprised how many symptoms disappear.
So here are my answers:
1. CD, for 45 years
2. All starches and sugars except maybe fructose. Milk. Cruciferous vegs (cabbage et al). Raw seafood.
3. BROTH including the fat. Meats, fish, eggs, esp. soft-boiled. Well-cooked vegetables. Coconut. PAPAYA. Grated carrots. Ceasar salad (without croutons).
m also an ileo. I used to carry air freshner & was so happy when little girl said "Why can I smell oranges Mummy?" cos b4 ileo I stank "like I was rotting inside" as bro said which is exactly wot was happening. I heard of guy who said he liked natural women not ones that looked liked they did not poop but "Passed perfectly packaged perfumed soap " (or product)What amazes me when I read this thread is how many foods listed as safe on other's lists are so unsafe for me! Popcorn for instance has me rushing to the loo within minutes...even though I have an ileostomy, unsafe foods create chaos that sometimes even the pouch cannot contain! Tinned fish , if eaten with toast doesn't cause too many problems but anything carbonated ferments whatever is waiting to be released...
I guess a lot of the differences are caused by the amount of bowel left and the state of mind. My GI tells me that I also have IBS as well as Crohns so I have to try to be very calm, not easy when you feel the onset of an 'incident' begin whilst out.
I was very embarrassed recently when I was unable to use the disabled loo and after emptying my bag in the regular toilets, someone using the handbasins said loudly' God, what a dreadful smell'. I hid in the loo until I hoped they'd left. I always carry a small air freshener now.
Such a relief to be able to share without embarrassment!
me too, raspberries but not blackberries. I tell u if not 4 this thread I wud think I was a fuss pot hyperchondiacI have Crohn's or UC (doctors are unsure) and my newest Gastro put me on this Low-Fodmap diet and I have noticed a huge difference in how I feel. It's very odd, can have raspberries but not blackberries, red bell peppers but not green. I do recommend it because I have done low-residue and non-dairy and this is the best I have felt in a long time. (Still non-dairy but now Gluten-free on the low-fodmap) Can't eat a huge variety but I'd rather not feel like I was being stabbed and just eat some blueberries than feel like death and have real bread. (well....most of the time)
She might want to keep a food diary to see the foods that irritate her guts.I think that there are a lot more entries here since the initial summary list was made in 2011. Anyone tried to update it? This is a terrific resource to me. My daughter just was diagnosed with Crohn's and we are trying to figure out how to help her with diet. Thanks! Madnance