G
goldsmurf
Guest
Hello all-
My wife went to the local clinic about 8 weeks ago for severe abdominal pain, which we orig thought was related to a January miscarriage. OB sent her home saying it was nothing to worry about.
Week later, pain had become ridiculous, we went to Urgent Care. Did CT scan (which iwe did not see at that time, just a GP). We're given scrips for pain and anti-biotic, told to come back and see a GI doc.
Week later, went in to see GI doc. Talked with him for about a hour and a half, he thought it was infectious colitis, and that we should finish out the antibiotics. Toward the end of the conversation I said "have you looked at the CT scan?" He pulled it up. It was plain as day that 80% of the colon was inflamed (from terminal ileum, continuing toward rectum, but stopping short by like a foot), with about a pencil's worth of room in the middle.
He said: we need a colonoscopy right away. Next day, went in for the scope. Nasty pictures of badly inflamed colon, ulcers. Couldn't get into terminal ileum for fear of damaging the colon. Doc diagnosed Crohn's. She was admitted and put on IV steroids and pain meds.
Left hospital a week later. Doc prescribed 40mg of prednisone and mesalmine.
Went to a different GI doc for 2nd opinion. He does a barium x-ray and tells s the terminal ileum is also inflamed (no surprise here) but also tells us that the Prometheus test came back with negatives for all 7 tests (the prometheus test was done at the previous doc, but no one mentioned it to us). So that's a little odd.
So I said screw this, we're going to Mayo. We live 4 hours from there and our insurance will cover it.
They're 90% certain they want to do remicade tomorrow.
So, finally, my question: what does remicade preclude? I'm greatly encouraged by everything I hear about low doee naltrexone, but given the current rather nasty state of her colon, it seem remicade may be prudent at this moment. I'm also very interested in SCD and the like (but of course no doctor is).
I've got to hop on the phone, but I can assure you, I'll be posting more, as this seems to be the only site both a) not affiliated with drug companies and b) extremely current.
Thanks-
Ryan
My wife went to the local clinic about 8 weeks ago for severe abdominal pain, which we orig thought was related to a January miscarriage. OB sent her home saying it was nothing to worry about.
Week later, pain had become ridiculous, we went to Urgent Care. Did CT scan (which iwe did not see at that time, just a GP). We're given scrips for pain and anti-biotic, told to come back and see a GI doc.
Week later, went in to see GI doc. Talked with him for about a hour and a half, he thought it was infectious colitis, and that we should finish out the antibiotics. Toward the end of the conversation I said "have you looked at the CT scan?" He pulled it up. It was plain as day that 80% of the colon was inflamed (from terminal ileum, continuing toward rectum, but stopping short by like a foot), with about a pencil's worth of room in the middle.
He said: we need a colonoscopy right away. Next day, went in for the scope. Nasty pictures of badly inflamed colon, ulcers. Couldn't get into terminal ileum for fear of damaging the colon. Doc diagnosed Crohn's. She was admitted and put on IV steroids and pain meds.
Left hospital a week later. Doc prescribed 40mg of prednisone and mesalmine.
Went to a different GI doc for 2nd opinion. He does a barium x-ray and tells s the terminal ileum is also inflamed (no surprise here) but also tells us that the Prometheus test came back with negatives for all 7 tests (the prometheus test was done at the previous doc, but no one mentioned it to us). So that's a little odd.
So I said screw this, we're going to Mayo. We live 4 hours from there and our insurance will cover it.
They're 90% certain they want to do remicade tomorrow.
So, finally, my question: what does remicade preclude? I'm greatly encouraged by everything I hear about low doee naltrexone, but given the current rather nasty state of her colon, it seem remicade may be prudent at this moment. I'm also very interested in SCD and the like (but of course no doctor is).
I've got to hop on the phone, but I can assure you, I'll be posting more, as this seems to be the only site both a) not affiliated with drug companies and b) extremely current.
Thanks-
Ryan