What maintenance meds are you on ? Since pred helps calm down the flare the maintenance med takes over and then you can be off pred .
I don’t think he has been on pred for a flare and taken abx for an infection.
have you seen an immunologist to rule out immunodeficiency that mimics crohns ?
Since if your having a lot of infection sinus /ear etc...
That is the one thing they tested Ds for more than once since somehow the constant battling of infections due to immunodeficiency causes signs and symptoms similar to crohns
Ds didn’t have immunodeficiency (tested twice at two different university hospitals -but he also didn’t get a lot of infections )
he does take erythromycin daily for delayed gastric emptying and has been on pred while on that .
Thank you so much for this reply. I have been suffering terribly so have not been able to respond.
I just started Stelara last week. Was on sulfasalazine but off that since it made me feel terrible.
They did do some kind of screening for immunodeficiency Dec. 2019 but I never got the results although tried twice. Just wrote to DR to get them now that you mentioned it. It's just a blood test but no immune type doctor saw me, just the PCP. The ENT doctor wondered if I had some type of immunodeficiency due to all the sinus infections.
I have a sinus appt on Friday to see what the deal is. I am just shaking from the prednisone but have to stay on it. Need to find a ride to appt. Am on 25 mg but tapering to 20 today.