So this coming up Monday I have and appointment in the morning to meet with a surgeon and later that day I will meet with my nurse practitioner. I'm not really nerves and It doesn't really bother me that I might have to have surgery but What are some good question I should ask? From what I have been told he is really good and has done a few operations on other family members before and all went well.
I will give you a little run down of what has building up to this point. I have never truly been in a good remission for a year now and this past July I had a bad flare got it kind of under control then in August had two partial blockages second left me in the hospital for a week. From what I have been told in the past is my crohns is located in my ileum but, my girlfriend said when in was in the hospital after my last CT scan it looked like it may have spread I was never told this I think. I'm pretty sure there is also a really bad stricture in my ileum area which led to the blockages and is still causing me pain and discomfort.
List of meds:
Remicade (third infusion Nov 10)
Asacol HD
Azason 75mg
Prednison 30mg
Multi vitamin
Calcium/vitamin D
I assume he will cover most of this anyway but here are some that I have thought of so far.
1. Where is my crohns located and has it spread?
2. If you have to remove a lot of my Ileum how will this effect me?
3. How long will I be out of work/recovery time?
4. How will this be performed?
5. What medications will I stay on afterwords?
I'm very open minded about this and want to learn more before I go in to see him. I have done some research but still would like to know more so I dont feel overwhelmed and can actually have a conversation with him. I will hopefully have my mother with me a RN or my girl friends mom also a RN and crohns patient. I already know most of the answers to my question but doesn't hurt to ask right? So is there anything else I should ask or go and read to be more informed?
Edit: I love google found this web page http://www.ccfa.org/info/surgery/surgerycd
I will give you a little run down of what has building up to this point. I have never truly been in a good remission for a year now and this past July I had a bad flare got it kind of under control then in August had two partial blockages second left me in the hospital for a week. From what I have been told in the past is my crohns is located in my ileum but, my girlfriend said when in was in the hospital after my last CT scan it looked like it may have spread I was never told this I think. I'm pretty sure there is also a really bad stricture in my ileum area which led to the blockages and is still causing me pain and discomfort.
List of meds:
Remicade (third infusion Nov 10)
Asacol HD
Azason 75mg
Prednison 30mg
Multi vitamin
Calcium/vitamin D
I assume he will cover most of this anyway but here are some that I have thought of so far.
1. Where is my crohns located and has it spread?
2. If you have to remove a lot of my Ileum how will this effect me?
3. How long will I be out of work/recovery time?
4. How will this be performed?
5. What medications will I stay on afterwords?
I'm very open minded about this and want to learn more before I go in to see him. I have done some research but still would like to know more so I dont feel overwhelmed and can actually have a conversation with him. I will hopefully have my mother with me a RN or my girl friends mom also a RN and crohns patient. I already know most of the answers to my question but doesn't hurt to ask right? So is there anything else I should ask or go and read to be more informed?
Edit: I love google found this web page http://www.ccfa.org/info/surgery/surgerycd