Hi gavin1,
Welcome to the forum. Have you felt any better since you started the steroids?
Do you know where in your bowel the ulcers were seen? Colon or terminal ileum?
And did you have any raised inflammatory markers in your blood or have a faecal calprotectin test done?
Sorry for all the questions! Just want to understand a bit better in the hopes of helping
Which steroid were you prescribed? Entocort or prednisolone? And the dose?
If you find that you don't respond to steroids then you might want to ask to try enteral nutrition to help get you into remission, but if you're on Entocort then you could swap to prednisolone (this has more side effects though).
If you have a confirmed diagnosis of Crohn's then usually you will also be put on a maintenance med which can also help to get you into remission as sometimes the first line therapy of enteral nutrition or steroids alone is not enough. Maintenance meds are usually an immunosuppressant like azathioprine, 6mp or methotrexate and/or a biologic like infliximab (Remicade) or Humira.
I would also expect your gastroenterologist to want to do some small bowel imaging now to look at the extent of the disease in the parts of the small bowel that can't be seen with the scopes.
The waiting for a confirmed diagnosis and to get started on a treatment plan is really hard. I think you are doing just the right thing to try and push for a follow up appointment sooner.
You could also see your GP to see if they can request a faster appointment. And I would get them to check out the swellings as these may not be related and I think it is important to get them looked at.
I would also ask your GP if they could prescribe an anti-emetic to help you cope with the nausea. Are you able to eat and drink normally?
Know that if the pain is severe and you are unable to cope with it, if you have a fever or have a rigid distended abdomen, or an absence of bowel sounds, or no bowel movements, or are getting dehydrated then these are all reasons to go to A&E.