What's it like for you?

[ArinMelissa]

Hi friends,
Curious what your Crohn's symptoms are like. I've been getting painful ulcers on my tongue for a couple years now but it seems like it's moved into my gums as well. Anyone have painful, bleeding patches around your teeth or mouth ulcers like this?

I just noticed that similar ulcers seem to be popping up around my fingers and elbows... and other patches on my arms. I suppose I'm just wondering if this could be Crohn's related or if it's something entirely separate. They're kinda red and itchy but not too bad.

I suppose I take some peace of mind in knowing that this is all part of one problem- Crohn's- and I consider you all more of experts in this case than I do my docs!

 

[EthanPSU]

My crohn's symptoms are way different. I think it's different for everybody.

I have never had a mouth ulcer or anything like that. No mouth problems whatsoever. Also, nothing on my hands or body.

My syptoms are only in my stomach. Severe stomach pains / cramps, Loose bowels and often, weight loss, ect.

 

[ArinMelissa]

Thanks Ethan! Here's hoping you keep feeling good on Humira; it worked pretty well for me too.

 

[vz101]

My Crohn's symptoms begin with a bm every day. No diahrea just a fairly normal bm. But it always results in a gut ache and cramping. Normally I eat two small meals per day. Each result in the some immediate nausea followed by cramping and gut pain. I also suffer from anemia and several vitamin deficientcies. I use pain meds for pain, zofran for nausea, venifur infusions to fight the anemia, B12 injections, and supplements to supplement my diet.

 

[Ckt]

My crohns symptoms have changed through the years. I have pain in my hips that's crohns arthritis. I also get those mouth ulcers and the corners of my mouth split and are painful. This year I started getting some very strange sores and nodules near the finger joints. They don't hurt so much but this is a new manifestation..a rheumatologist told me these hand sores are crohns related.
For the lovely gi symptoms, I have constant pain in my right side..always the right side. It gets worse about a half hour to an hour after I eat then it goes from a dull deep ache to sharp pains. My belly distends after I eat and I feel like urking. I also have another new symptom of tenesmus..the feeling of wanting to poop but can't. It really hurts!..did I mention I have pain?!!Ou! How could I forget the diarrhea??sometimes 15-20 times a day..'normal' for me is like 3-6 times of silty,watery,mucusy,bloody diarrhea.and hemorrhoids due to diarrhea so now it's like pooping razor blades!
I haven't had any gum problems or eye problems. I don't have fistulizing crohns so I haven't had abscesses and/or fistulas.
When I get a bad flare, I have horrible belly pain that comes and goes and takes my breath away. I usually have to be admitted then.With a bowel obstruction for bowel rest..
Hang in!!i know it may seem like the never ending story of suffering but there have also been periods when I was symptom free and feeling really good! Loads of people work,have a really active social life,and learn to adjust. It's not easy that's for sure!!

 

[michaelearnest]

My crohns symptoms in the early days DID start with the ulcers in the mouth. They went away once I was on treatment medications.