Jim (POPS)
Jim (Pops)
- Location
- Antioch, Ca
Hi there, I just need to vent. I found out I had crohns in Nov. 2011 when they went to take out my apendix and found crohns and did a resection on the spot. About 7 days after my resection it begain to leak and they had to go back in and fix it and they gave me a ostomy bag. I had that for 9 months and then it was reversed. I felt pretty good from the time they did the first resection, through the ilyostomy reversal (Aug 2012) until about Nov. 2012. Thats when I started to get alot of "D" again and in Jan-Feb. I started to get some pain in the righ lower side. I never had pain before. I started taking Imuran on Jan 3rd 2012 and I started to feel better starting around March 20th or so. I thought, how wonderful, maybe the Imuran is starting to work. But about 2 weeks ago I started getting more pain than I ever have had. And this last week the "D" is back to where I was back in Dec. 2012. I thought that I would be doing good for some time after the 3 operations, but I guess you can never tell with crohns.
I am so upset that this has happen. The GI told me that I could start taking Entorct. (spelling?) but I was told by the RX that the cost was over $1,200.00 a month with the kind of Insurance that I have. I'm retired and on a fixed income. Don't get me wrong, money is no real issue for me, BUT, if the cost of all of this keeps up, it could put a real DENT in what I have saved all my life for a good retirement. I get Medicare next Feb. so I hope that will help out.
I feel very blessed that I didn't have crohns much younger in my life,(or I feel blessed that it was mild and didn't hamper my work and I was able to work till retierment) My heart goes out to all the people I have met here that have lived with crohns much longer than I and most of all, the very young kids that are having a hard time with it. I would give my life to just take away the suffering of one young kid. It's just not far that some have to suffer all there life with this.
When I set and think back about the life I have had I feel so blessed to have been able to do all the things I have done. I got to play in a band and tour for 8 years, I was VP of a large co. for 9 years, I owned a Production Co. for 27 years. I have a wonderful wife of 39 years (she also has IBD, colitis) I have had a great life. But I do have alot of ""OO Poor me" days now since I have crohns, like, I wish I could eat some of the foods I like. I miss that more than anything. I set a watch the "Food Network" like a fool and think, "man, I wish I could just go back in time and eat like I used to". Learning how to get old is a job in its self, let along having crohns on top of it all. ("yep, I'm in a OO Poor me moment right now I guess")
I try to keep possitive as much as I can, but lately its been real hard. Like most of us, I just want to feel somewhat normal. I have all the time in the world now to enjoy life and I spend days on the sofa wishing I could feel good enough to do just some of the things I use to do.
As much as I don't want to start taking Pred or Entocort, I think I will spend the money and start Entocort to see if it helps. Pred. cost very little but I don't want to deal with all the side effects of it.
Thanks for letting me vet. If you have read ALL of this, than I consider you a true friend.
I know God has plans for me that are much better than what I'm going through. Just sometimes its really hard to see any light at the end of what I'm going through at the time.
Your friend,
Jim
(Pops)
I am so upset that this has happen. The GI told me that I could start taking Entorct. (spelling?) but I was told by the RX that the cost was over $1,200.00 a month with the kind of Insurance that I have. I'm retired and on a fixed income. Don't get me wrong, money is no real issue for me, BUT, if the cost of all of this keeps up, it could put a real DENT in what I have saved all my life for a good retirement. I get Medicare next Feb. so I hope that will help out.
I feel very blessed that I didn't have crohns much younger in my life,(or I feel blessed that it was mild and didn't hamper my work and I was able to work till retierment) My heart goes out to all the people I have met here that have lived with crohns much longer than I and most of all, the very young kids that are having a hard time with it. I would give my life to just take away the suffering of one young kid. It's just not far that some have to suffer all there life with this.
When I set and think back about the life I have had I feel so blessed to have been able to do all the things I have done. I got to play in a band and tour for 8 years, I was VP of a large co. for 9 years, I owned a Production Co. for 27 years. I have a wonderful wife of 39 years (she also has IBD, colitis) I have had a great life. But I do have alot of ""OO Poor me" days now since I have crohns, like, I wish I could eat some of the foods I like. I miss that more than anything. I set a watch the "Food Network" like a fool and think, "man, I wish I could just go back in time and eat like I used to". Learning how to get old is a job in its self, let along having crohns on top of it all. ("yep, I'm in a OO Poor me moment right now I guess")
I try to keep possitive as much as I can, but lately its been real hard. Like most of us, I just want to feel somewhat normal. I have all the time in the world now to enjoy life and I spend days on the sofa wishing I could feel good enough to do just some of the things I use to do.
As much as I don't want to start taking Pred or Entocort, I think I will spend the money and start Entocort to see if it helps. Pred. cost very little but I don't want to deal with all the side effects of it.
Thanks for letting me vet. If you have read ALL of this, than I consider you a true friend.
I know God has plans for me that are much better than what I'm going through. Just sometimes its really hard to see any light at the end of what I'm going through at the time.
Your friend,
Jim
(Pops)