Hi everyone,
I am new to the forum, just trying to vent/get advice from people who know what it 's like to live with GI pain. Briefly, I have had GI issues my entire life but decided to just live with it. About 5 years ago my signs worsened enough to seek medical care and they started with the typical diagnostics- upper endoscopy as well as colonoscopy with biopsy. Of course all came back normal and I was told I likely had IBS, maybe Celiac's, to avoid gluten and to deal with it. My signs worsened slowly up until last year, where the pain, diarrhea, and general discomfort have completely destroyed my quality of life. I basically go to work, sit on the flood holding my abdomen, come back home, sit on the couch and continue holding my abdomen. I avoid eating as it makes the pain worse. I went to see a new gastroenterologist, they ran multiple stool tests (I am a veterinarian so exposed to many little parasites) and all were negative. Repeated colonoscopy with biopsies, and of course still normal. The doctor then accused me of wanting pain medications and called me an addict (I never actually asked for any medications at all). I went to see a third gastroenterologist and he ordered a CT which was of course normal.
I do have a family history of Crohn's - my uncle's diagnostics always came back normal for years on end. He was not diagnosed until he was in such severe agony that an abdominal exploratory surgery was performed and he required an aggressive bowel resection.
I have tried dicyclomine (bentyl), Rifaximin (Xifaxan), Eluxadoline (Viberzi) with no effect.
My new doc prescribed Xanax to help with pain- all it does is place me in a mental trance.
I have spent the last month confined to my couch and my bathroom. I am miserable and just want to give up on everything. I am weak from the lack of nutrition and emotionally exhausted.
Thanks for reading... any advice is greatly appreciated.
I am new to the forum, just trying to vent/get advice from people who know what it 's like to live with GI pain. Briefly, I have had GI issues my entire life but decided to just live with it. About 5 years ago my signs worsened enough to seek medical care and they started with the typical diagnostics- upper endoscopy as well as colonoscopy with biopsy. Of course all came back normal and I was told I likely had IBS, maybe Celiac's, to avoid gluten and to deal with it. My signs worsened slowly up until last year, where the pain, diarrhea, and general discomfort have completely destroyed my quality of life. I basically go to work, sit on the flood holding my abdomen, come back home, sit on the couch and continue holding my abdomen. I avoid eating as it makes the pain worse. I went to see a new gastroenterologist, they ran multiple stool tests (I am a veterinarian so exposed to many little parasites) and all were negative. Repeated colonoscopy with biopsies, and of course still normal. The doctor then accused me of wanting pain medications and called me an addict (I never actually asked for any medications at all). I went to see a third gastroenterologist and he ordered a CT which was of course normal.
I do have a family history of Crohn's - my uncle's diagnostics always came back normal for years on end. He was not diagnosed until he was in such severe agony that an abdominal exploratory surgery was performed and he required an aggressive bowel resection.
I have tried dicyclomine (bentyl), Rifaximin (Xifaxan), Eluxadoline (Viberzi) with no effect.
My new doc prescribed Xanax to help with pain- all it does is place me in a mental trance.
I have spent the last month confined to my couch and my bathroom. I am miserable and just want to give up on everything. I am weak from the lack of nutrition and emotionally exhausted.
Thanks for reading... any advice is greatly appreciated.
Last edited:
oo::dusty:
