My husband is 3 weeks away from his next rem infusion, which will be his 4th one. He's been in contact with his gi since his current flare started. Each day he's getting progressively worse. The doc's nurse told him this afternoon to go to the ER to be started on IV prednisone. He has been asking for another infusion, but they aren't willing to give him an early dose. Is there some sort of protocol that has to be followed when it comes to remicade???? Wondering why exactly they wouldn't give him another one?? He isn't due for his fourth infusion until June 28th. The remicade seemed to be working for him thus far. When he received the first infusion in the hospital he started to feel better the next day. Before the third infusion he could tell when it was wearing off about a week prior. He got the infusion and felt great again. Hope that's a good sign that the rem is working and maybe just the dosing needs to be adjusted???? Any input would be great, I feel completely helpless/hopeless.
Last night was awful and the worst night todate. Fever, chills, toilet trips every hour almost, lots of blood along with some clots, very tired and now severe abdominal cramping with pain to the touch of the belly. I'm not sure that iv prednisone is the answer. During the time of his first major flare the iv pred didn't get it under control, wasn't until he had the infusion. UGH!!!
Last night was awful and the worst night todate. Fever, chills, toilet trips every hour almost, lots of blood along with some clots, very tired and now severe abdominal cramping with pain to the touch of the belly. I'm not sure that iv prednisone is the answer. During the time of his first major flare the iv pred didn't get it under control, wasn't until he had the infusion. UGH!!!