Indeterminate CROHN'S pt. with IBD and UC found this site. Have had past good experience with Xifaxan ten years ago. In major flare now since late July. Using Budesonide and unfortunately Pred. Swore I would never use Pred again! Checked site to see if anyone is using Xifaxan these days for off label usage. Gastro got remission with me ten years ago after 11 days into treatment at 107 lbs. the Xifaxan. Hoping to get back to a doc that will consider helping me get access to the drug.
Pain in right side of ribs and into back from large bowel CROHN'S is horrible.
I was one of only four patients in Dr's. Practice that did respond. It was a miracle. I am away from home and don't see that doc any longer. Will find dosages on file. The drug was taken off formulary and is hard to get! Hoping to not have to mail order from out of U.S.
Can't use Remicade, rare neuro impairment/optic neuritis. Lots of other drug allergies. Many drugs don't work. Two recent tests negative for C-diff. Never test positive for typical infections.
Bad chills. Pain, pain, pain. At least the nausea is gone, no more blood and mucous. This disease sucks. Mono with brittle spleen age 16, then all digestive issues began as proctitis and have had bouts of pan colitis and right sided colitis. Now 54 years old. No surgery. If pain doesn't subside I am so done with this.
Tried mental health, bio feedback, no wheat, no dairy, no sugar, shilagit, acupuncture, German liquid digestive products, probiotics, the list goes on and on. The disease comes and goes like a phantom.
Pain in right side of ribs and into back from large bowel CROHN'S is horrible.
I was one of only four patients in Dr's. Practice that did respond. It was a miracle. I am away from home and don't see that doc any longer. Will find dosages on file. The drug was taken off formulary and is hard to get! Hoping to not have to mail order from out of U.S.
Can't use Remicade, rare neuro impairment/optic neuritis. Lots of other drug allergies. Many drugs don't work. Two recent tests negative for C-diff. Never test positive for typical infections.
Bad chills. Pain, pain, pain. At least the nausea is gone, no more blood and mucous. This disease sucks. Mono with brittle spleen age 16, then all digestive issues began as proctitis and have had bouts of pan colitis and right sided colitis. Now 54 years old. No surgery. If pain doesn't subside I am so done with this.
Tried mental health, bio feedback, no wheat, no dairy, no sugar, shilagit, acupuncture, German liquid digestive products, probiotics, the list goes on and on. The disease comes and goes like a phantom.
