xX_LittleMissValentine_Xx
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Hi everyone,
I had an appointment with my GI two weeks ago, and mostly I am doing really well on infliximab. I said I wasn't quite feeling as well since I had stopped Azathioprine too but he was reluctant to use combination therapy due to the increased cancer risks. He said we always have that to fall back on if we need it.
So anyway appointment is going fine, he is passing me blood test forms and kinda saying goodbye, he asks me to book me an appointment for four months time and says we will review if I stay on the infliximab in march... That last bit didn't quite sink in until I was on the other side of the door!
So I spent that afternoon feeling upset and worried that I would be coming off infliximab after a year. I don't want to, I want to stay on it! I remember reading somewhere on here that the NHS guidelines recommend a year?? If anyone knows where I could find these guidelines I would really appreciate it.
I asked the infusion nurse yesterday while I was having my infusion and she said it has to be reviewed every year due to it costing so much and so many people being on it. She said if I am doing well I should stay on it but the doctors have to really justify it.
So I feel fairly sure that my doctor wouldn't take me off it as it is going so well, but I kinda want to find as much information as possible about this for piece of mind, or to argue my case for staying on it in March.
Any info would be greatly appreciated!
I hope you all have a lovely Christmas... X x
I had an appointment with my GI two weeks ago, and mostly I am doing really well on infliximab. I said I wasn't quite feeling as well since I had stopped Azathioprine too but he was reluctant to use combination therapy due to the increased cancer risks. He said we always have that to fall back on if we need it.
So anyway appointment is going fine, he is passing me blood test forms and kinda saying goodbye, he asks me to book me an appointment for four months time and says we will review if I stay on the infliximab in march... That last bit didn't quite sink in until I was on the other side of the door!
So I spent that afternoon feeling upset and worried that I would be coming off infliximab after a year. I don't want to, I want to stay on it! I remember reading somewhere on here that the NHS guidelines recommend a year?? If anyone knows where I could find these guidelines I would really appreciate it.
I asked the infusion nurse yesterday while I was having my infusion and she said it has to be reviewed every year due to it costing so much and so many people being on it. She said if I am doing well I should stay on it but the doctors have to really justify it.
So I feel fairly sure that my doctor wouldn't take me off it as it is going so well, but I kinda want to find as much information as possible about this for piece of mind, or to argue my case for staying on it in March.
Any info would be greatly appreciated!
I hope you all have a lovely Christmas... X x