• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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Hi Laragirl, I see you checked my story out as I have Crohns now for 48 yrs. What is your story or history or problems to check out some of us on this site, since you read mine, curious what your dealing with? I feel sorry for anyone showing up with this Disease as its a problem rest of your life, but to do what you can with what ever you have, you can find ways inbetween Flare Ups or p roblems to deal, . 48 yrs ago didnt know anyone with it, Drs didnt know much, eat what ever doesnt bother me?? Had to get sick to rule that food out, no help back at that time as DR were learning with patients like me so long ago. Now its common and people I know and many you meet another new one SAD as lots to deal with and still try to have some kind of a life, and year by year, I found out how do so most all and not let it stop me from trying to live a semi normal life and do most with full time Diarrea from intestines being removed, I am now left with only 1/2 small intestines with full time Diarrea, cant go anywhere not knowing if bathrooms close by, but have made most work in 48 yrs with Crohns.
What is y our story or what are y ou dealing with? C J
Hi CJ, You have had a rough time as you say, they didn't have the meds and treatment they have now. Of course, this is subjective as it is a vey individual illness and what treatment suits one person, may not suit another. I know that from ,my own experience of bad reactions to meds : Pancreatitis because of one . I am pleased to hear you are more settled as I am at the moment, and feeling better. I hope you now keep well. Kind regards.
I have had Crohns Disease since age 20 for now past 48 yrs. 4 resections for the first 20 yrs with Crohns as it first hit me big and hard in the beginning first 20 yrs of this. Last resection was 1988 and no surgeries since, thankful and better medicine so not more removed. I now am left with 6 ft only small intestine as 48 yrs ago they didnt have the medicines they have now so removed some when flare up and in hospital over and over, removed the bad parts of intestine collasping. I have been on Humira for 3 yrs, and active Crohns returned 2 X so they took me off that and now on Stelara past 6 months, so far doing better.
I kept working full time, good owners felt my work was more valuable then so often in and out of hospital from intestines collasping and flare ups but as years and removal went on, I became less sick, learned better diet and foods to help me feel better adn past 20 yrs of it I get by and deal with it, fewer hospital and dont always feel great, but do good, active and learned how to try and keep up what I want to to and not let it take over or ruin my day, work thru it as much as I can and happier, and active with it and do ok over all.
J
jazzygirl52
I had ulcerative colitis from age 13 to my 40s then it was crohns, had colon cancer in 2011 and they removed my large intestine and appendix. Surgeon now wants me to start thinking about ileostomy . this option freaked me out but if m y rectum has to go, I guess it has to be. Any ostomy folks?
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