Worried About Roo - Help!

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DustyKat

DustyKat

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Bad day for Roo today as she has just realised that her dream of joining the Armed Forces after uni isn't going to happen because of her Crohns. :(:(:(

Anyway in the wash up of all this she told me she has no appetite and is losing weight, this has been happening prior to the bad news of today. She was home at the weekend and she was picky with her eating but as she was out and about so much it didn't seem unusual. She looked a little on the thinner side of things but difficult to tell with the winter clothes.

She says she doesn't know why she has no appetite and has no other Crohns symptoms, she has been in remission for 4 years. She has short bowel syndrome and malabsorption so I don't expect her to find it easy to maintain weight but losing it is a worry. Oh yeah and she is a university student living on campus. I have suggested seeing a dietician and mentioned high calorie drinks but I think she is a bit resistive to that at present and insists she can handle it. (((shrug)))

What I want to know is......

Does anyone else experience this loss of appetite when in remission?

Could it be a phase?

Thanks in advance guys, any comments or opinions are most welcome.

I'm worried,
Dusty.
 
hi Dusty... i can completely understand why you're worried.

you know your daughter best - what do you think her mental/emotional state is just now? i'm wondering if that is more to do with her weight loss than anything medical at the moment... particularly if like you say she's flare-free. there is a massive trend for young girls to be stick thin these days, and that is a pressure which a lot of girls succumb to - once they're away from home and in control of their own diet, they can actually lose weight quickly by deliberately missing meals and just existing on snacks & fruit etc.. also if she really is heartbroken about not being able to follow her dream, she could be depressed, and this can also take away one's appetite..

maybe she needs a few mum/daughter talks, or even a bit of therapy, or a talk with your gp if he/she is the understanding type..
 
How is she getting on at uni? I'm sure stress can affect your appetite. Maybe she has a lot of work to do, or is finding it too hard or something?
 
@ Dusty I know how she feels. I tried every branch of the service and they all wanted me in officers school until they found out about the Crohn's.
 
I agree with Dingbat (usually do) and just give her a little more attention. Dreams are supposed to come true not go away. Hugs to you both!!!
 
Hopefully I can give you a little perspective and say that at least Roo didn't join the military and go through some tough training and then get discharged because of her illness. My brother just went through that - he joined the air force, made it through most of boot camp, including the really tough parts, but he ended up being discharged anyway because he was sleepwalking (they determined that he could be a danger to himself or others while he was sleepwalking, so he got sent home). For whatever that's worth. At least she didn't invest any sweat into her dream and then have it taken away - not that that makes it any better, but it could have been worse.

Can you get something like Ensures for Roo? I have a chocolate Ensure for breakfast every morning because I have a low appetite too and also a really hard time keeping or putting on weight. I never ate breakfast in the past because I always get really nauseous if I eat anything before about 11 AM, but I can get away with drinking a calorie-rich drink without feeling ill. I can drink an Ensure even when I don't have an appetite for solid foods. Good luck, I'm sure she'll be fine. I know you worry about her, but she's at the age where she's got to start taking care of herself.
 
Can't give much advice but I just wanted to pipe in to say how sorry I am for Roo that her dream of military service is being denied. I'm not very religious, but I do agree with the old adage about God closing a door but opening a window. There is always a bright side and always something to be gained from a disappointment, even if it takes several years to figure out.

Hope Roo is feeling better soon and gets that appetite back.

-Amy
 
Awww Dusty, I am so sorry for both of you. It is an awful feeling when we have to give up on dreams, but so much worse to see our babies suffer for it. May just want to ensure that the lack of appetite is not due to pain. It sounds like she could definitely use some "Kanga time" from her amazing mama. Hope things get better real soon.
 
I would have her go see her doc if these are relatively new symptoms. Losing a dream, not to mention being in school is very stressful...stress can cause a flare. When is the last time she had a colonoscopy or any other tests performed?

HUGS!
 
You know, there would be times when my mom would call me while I was away at school, while I happened to be in the middle of a flare, and say "OK, what's up?"... Not "how are you doing?" or "Just calling to say 'Hi'"... but... "What's wrong...cause you are not well and I am your mommy and I can feel it, even 900 km away."....

Mother's intuition??? Probably... and it is almost always right....

Can you make Roo do anything about it?? Probably not (if she is like I was/am) ... lol... "Mom I am fine...jsut gotta get past this paper/exam/assignment/bad day... and we will be back to normal....

Then I would come home for summer break and sleep for the first two weeks...literally....

That being said, i always went for a yearly scope... each summer break... to see if/how much damage I had done to myself through the school year by stressing+not eating+ living on coffee and cigarettes....

Your "gut" is probably right... there is probably something up.... but it MAY resolve itself when she somes home for summer break....

In the meantime, don't "hound" her, but let her know you are concerned and she needs to watch herself... You sound like you have a pretty good relationship with her... maybe she will listen to you better than I listened to my own mother... LOL!

Take care, My Friend
:hug::hug::hug::kiss::kiss::hug::hug::hug:
:rosette2::rosette2::rosette2::rosette2::rosette2::rosette2:
 
@Ding, Jett and Jerman - Thank you so much for your words of wisdom. Roo and I have talking quite a bit today and I think we are finally getting to the bottom of the problem.

@Rebecca - Spot on! Thanks.

@Genio and Cat - Thank you for your thoughts about the the Armed Forces. You are right and I am glad that she is only 6 months into uni when finding out rather than much further down the track. It's sad when she says - I just would have loved to go into the Army as a Psychologist and help the soldiers - but she will overcome the disappointment and sadness.

@Maxi and Amy - Thank you for your kind words and support. It means so much to me.

@Tammy - I think she will go if she needs to. Roo has never had a colonoscopy but she is monitored monthly with blood tests and has regular GP and GI visits. Thank you for bringing this up.

@Joan - Thanks for that. It really is hard navigating an 18 year old isn't it? and as you say, well we'd have no idea! If only our poor parents knew. :lol:

@Silvermoon - Thanks mate. It's that fine line again between being a help or a hindrance and you are also spot on with the reasons.

Oh wow guys I can't thank you enough! Your thoughts and suggestions have given me the ideas I needed to ask Roo targeted questions. I was able to ask without sounding like I was telling her what to do but rather allowing her to think things through.

She feels it is stress and insists she has no other symptoms and it only started at the beginning of this semester. She has had many assignments due over the last 3 weeks and has been involved in many extracurricular activities. Roo doesn't think the extracurricular stuff caused her any stress but I think being so pumped up and busy all the time can dull your appetite. Thankfully the Federal Election is over now so the campaigning has ended and her pre-selection to the SRC is also finalised. She has a mid semester break coming up so that's good.

She also had some personal issues with friends that arose when she was home at the weekend but she has now resolved this. So all in all plenty of stress in her life over the past few weeks!

Once again thank you so much for helping me with this, I don't know what I'd do without you all and this forum.


:worthy::worthy::worthy::worthy::worthy::worthy:


:mademyday:

Dusty.

PS. Thanks Dex.
 
Dusty I am thinking about you and Roo and am sending you all my love and hugs. We were told that Meg may have days that she just won't want to eat anything and have a reduced appetite and to have an ensure instead of a meal just to keep her calorie intake up.

I will send you an email soon love. xx
 
Glad to see things are getting better for her. didn't realise you guys were in Australia forgot the school schedule is basically oppsite ours here. gl with everything coming up and exam time, i was not good around exam time last year and I didn't eat either when coming up to going for my first year and I didn't eat leading up to my exams, either semester, last year either. A nervous response I think.
 
First - I'm glad to see you and Roo have had a chat - my Mom always knows when something is up too.....even when I would deny it!

DustyKat;216158 @Genio and Cat - Thank you for your thoughts about the the Armed Forces. You are right and I am glad that she is only 6 months into uni when finding out rather than much further down the track. It's sad when she says - I just would have loved to go into the Army as a Psychologist and help the soldiers - but she will overcome the disappointment and sadness. [/QUOTE said:
You may want to work it in somewhere - just because the armed forces will not accept Roo because of hte Crohns' - doesn't mean she ~still~ can't help military families.....on the private side.....or what about other service members such as police or firefighters.....I'm sure there is a need.....you just have to think outside the box a little....

Good luck to her and you!
Click to expand...
 
@crazy, thanks for telling me your experiences. I think this is also another piece of the puzzle, thank you for that.

@pas, I'm glad you have brought this up. I started to think about this but was sidetracked and now you have put it down so clearly. Thanks!

Dusty. :)
 
She might look in to a civilian post at the Federal level. They have less strict health requirements.
 
Hey Genio, what sort of posts are they? I would imagine we have similar here.

Dusty. :)
 
Oh, I am glad to hear that Roo is getting along a little better. I know it had to be hard to hear/see her going through this and not be able to do anything. Big hugs!!!
 
Well she could try after graduation for an analyst position, work for a developer or other such positions.
 
@belle, thank you so much for being here for me. :)

@Genio, thanks for info, I'll look into that. :thumright:

Dusty. :)
 
hi, i feel so sorry for her :( im not in remission yet and its hard to study uni + cope with frequent hospital stays as well... i know what its like to be let down by your health...im 18 in a month or so so it seems like we are a similar age? (Im from QLD australia)

Tell her i wish her all the best and to keep on keeping on....im sure there has to be a way for her to achieve her dream, or even part of it!
all the best
~kat:ybiggrin:
 
Hey kat,

Thanks for posting. Yeah Roo is 18 and from your signature born in the same year as you. I will certainly pass on your best wishes and thanks for that. She was at one point looking at going to uni in Brisbane but decided on Sydney instead, we are in North West NSW.

It was a bit sad to see her post on fb - that even remission is too sick for the army :( - but that's a few days ago now. Even though the disappointment is still fresh I feel she is already moving on and she has so many great friends on campus that are helping her through it.

Once again thanks for your kind words and support kat.

Dusty. :)
 
Just as long as she has support - its so hard knowing that once again, your health has let you down....i find it increasingly frustrating! Give her a big hug for me and tell her things ALWAYS work out in the end - even its not the way you were expecting :)
make sure she starts eating!!
talk later,
~kat
 
Genio said:
She might look in to a civilian post at the Federal level. They have less strict health requirements.
Click to expand...

I don't know if you have the equivilant of Civil Service positions there?.....that is something else to look into if you do - usually pretty good health insurance coverage and benefits.....

I have been in the Civil Service sector for 16 years now - it has helped protect my job when I was pretty ill and out of work for over a month.....and my Remicade is covered 100%!.....

Over here, a Psychologist position STARTS at $52,000 per year! YERY well paying jobs! .....

Lisa/paso
 
@pas, Thanks for that info! Yes we have the Public Service here and if she follows her other passion, Politics, it may well lead down that road. At least we are fortunate here to have universal health care so we don't have that worry hanging over our heads. It's interesting what you say about your job protection because I was thinking along those lines with Roo and what career paths and places might offer that sort of security.

@Dallies, Thank you so much for your kind words and support particularly when you are going through such an emotional time yourself. Take care of yourself and that beautiful daughter of yours D. Always thinking of you. xx

I really feel I can say with confidence now that Roo is moving on and looking to the future once again. Again I can't thank you guys enough for the kind words, support, suggestions and spot on advice, it really is priceless! I owe you all!

:rosette2::rosette2::rosette2:

Dusty. :)
 
DustyKat said:
I really feel I can say with confidence now that Roo is moving on and looking to the future once again.
Dusty. :)[/QUOTE

I hope we can remain in contact for years Dusty cause I just know that Roo is going to surprise us all!! As active as she is already in her freshman year at uni!!! Look out world!!!

Your boy may be the one wondering how he's going to top her before it's all said and done. Good for Roo...leave the negative behind and concentrate on the positive.
Click to expand...
 
Thanks Dex.

BTW, the only way we are going to remain friends is if you stop picking on me....... waaaaaaaaaaaaaah.

:ylol2::ylol2::ylol2::ylol2::ylol2::ylol2:

Dusty. :)
 
Does anyone else experience this?

OK, so we are back to the weight issue again...........

Roo rang me today worried about her weight, what brought it about was when she was going back to the college last night, due to Oktoberfest celebrations there was more security on than usual, they were checking everyone's ID. The guy that looked at her's questioned her as he felt the girl standing in front of him was much thinner than the one in the ID photo. She didn't realise until that point it was noticeable. I told her, well that guy doesn't know you and the photo was taken at the beginning of the year which is why it would be more noticeable to him. Anyway she actually went and weighed herself today and she is 45kgs (about 100 pounds) and she would be about 5'4''. In her most recent photo she certainly looks on the slender side but well to me, it is on my profile page.

After much discussion it turns out she is actually doing some fitness work, which would be the first time in I don't know how long! One of the guys she lives with is a marathon runner and a few of them go running with him, he does 17kms and they do about 5kms. She has told me if she looses any more weight she will switch to something like yoga, so that sounds sensible to me.

The thing I am wondering is..........Roo is in remission and has no symptoms of Crohns. She said she feels tired at times but in view of the fact that she has short bowel syndrome I'm not surprised. I have told her to make sure her B12 shots are up to date. The thing is though she said she really never feels hungry, it's almost like it has to be a conscious effort on her part, you know like...........oh I feel a bit tired..........oh yeah I haven't eaten for x amount of time I'd better have something.

As I said, she has no symptoms like pain that would be stopping her, it's almost like someone has turned off the hungry switch. Does anyone else have or has had this lack of appetite when in remission??

Thanks, :)
Dusty
 
You know I'd do anything to help you Dusty, but I can't help with this. Did she say how long her appetite has been like that?
 
Thanks Dex.

No she didn't say but maybe back to the start of the semester............I don't know. Perhaps it's one of those insidious sort of things that kinda creeps up on you. (((shrug))).

Dusty.
 
Hey Dusty, she is young and who can figure them out! My daughter eats one min and stops the next. However my daughter is conscience of her weight up or down. She loves cream of wheat, and stir fries and of course french baguettes. She is healthy mind you but she sees other girls in her rooming house and they eat alot of crap and they are all skinny. She knows good food feeds the brain. Roo may need more protein, so even in a shake or chicken it should help. Baked potatoes instead of fries. Hard being a mom, because we are not with them 24 /7 and they are picky eaters.

Keep us updated on Roo ok? Try not to worry. ((hugs))
 
This is the first time I am reading this. I feel bad that she is going through this. I have to say I have not had any hunger feelings since I got sick 4.5 years ago. I never feel hungry. I get dizzy when I go for long periods of time without eating. I do eat because I know I have to. My weight does go up and down at times but within ok limits, nothing dangerously low. I would say for your daughters height that is a very low weight. When I had to gain back weight after my surgeries I was forced to drink boost. (like ensures). I would definetly have her start drinking some kind of supplement like that because she probably needs the nutrition also.
 
Sorry to hear about Roo. My son has next to no appetite and has been in remission for about 5 months. The only time he is hungry since diagnosis was when he was on prednisone.

Can she eat peanut butter or nutella?
 
Thanks guys, I really appreciate the replies.

@ Pen, Thanks for the suggestions and yeah I do have a hard time figuring her out at times. :lol:

@ Jenn, Thank you so much for replying. I was curious to know if others had the same issue with no appetite and you have answered that for me. I know it sounds weird, but you will all understand, when I say it's comforting to know that Roo isn't the only one that experiences this. It just doesn't seem as big an issue when you know there are others out there with the same feelings.

@ Zoodles, Thank you too, you have also put my mind at ease. She doesn't eat peanut butter but she use to eat nutella, I'm not sure if she still does. Does this help your son?

As far as I can tell her diet is quite healthy. She is more in tune with her body now than ever before. Her diet would be more vegetarian based now as this seems to suit her. She doesn't like red meat or rather it doesn't like her, she does eat chicken and fish and has smoothies and yoghurt. I was wondering if this may have been caused in some way by her eating patterns over the years due to the short bowel syndrome but now I'm not so sure since others also experience it without a similar history............ hmmmmmmmmmmmm.

Thanks again for replies, you are the best!

Thank goodness for this forum, :):):)
Dusty.
 
My appetite, when I'm in remission or not, has a lot to do with how active I am. If I go to the gym regularly or play basketball my appetite is much better.

Something my brother did (he has Crohn's, as well) when he was younger and struggling to keep on weight was to drink two or three Carnation Instant Breakfast drinks at night (one when he goes to bed and he'd wake up once or twice at night to drink one). Maybe drinking one of those before bed or drinking it in place of something with fewer calories will help. They're pretty healthy, and vanilla is delicious.
 
Hi Dusty, I have PM'd you. I just want you to know I am here for you. I know that are worried and :hug: sending you a big squeezy hug. Has she seen a doctor and had her BMI done? perhaps there is something she can have as a supplement to get those extra calories quickly. xxxxx
 
Thanks a heap effdee and D for sharing your experiences, it means so much to me. Roo will be home next weekend so I will discuss with her the suggestions you have made and hopefully we can get something sorted.

Dusty. :)
 
just an idea if she likes to have drinks...something i do in remission and during a flare is drink BOOST choco drink...they have other flavors too...but it is like a third of a multi vitamin (one drink) and they don't taste that horrible..i imagine you could mix them with something else too...just a thought. the one i drink has 240 calories in it for 8oz.
 
Thanks lynx. I really like all these suggestions 'cause there more chance we will find something that she will like and that's gotta be good!

Dusty. :)
 
Something I do when I've lost too much weight is add a teaspoon of extra virgin coconut oil to a homemade smoothie. I usually use Greek yogurt, bannanas, a little cinnamon, a little nutmeg, a sprinkle of sugar,ice and the oil, put it all in the blender. It doesn't make it oily like you'd think, just kinda creamy-yummy! Adds a good amount of calories, too.

I know oil is off limits to alot of us, but coconut oil is alot more tolerable than most and has anti-inflammatory properties,too. You can use up to two tablespoons a day. I also like to put it in a dish in the fridge so it solidifies and use it instead of butter on toast.
 
Thanks heaps Jeanette for the tip about coconut oil. I will definitely speak to Roo about it. That is really interesting about putting it the fridge, never knew about that!

Dusty. :)
 
It's that bloody time of year again! Ugh!

Well here it is 12 months down the track and the weight issue has reared it's ugly head again.

I know it is stress related, she has too much on her plate...politics, work, uni and student elections and to top it off this year, she needs to move in the next couple of weeks.

So she has emailed me saying she is stressed, has no appetite, is having trouble sleeping and has lost 4 kilos in the last week. God I hate this with a passion and I hate this time of year! Argh!

Vent over, thanks for listening guys!

Dusty. :heart:
 
Awww, Dusty, that's not so good :frown: Certainly sounds like she's got an awful lot to cope with at the moment. Sorry I haven't got any advice to give, but sending big, big hugs to you all :hug::hug::hug:
 
She's just like her mother!! She tries to take on too much!!

Why is she moving already??
 
I know if im busy I can go virtually all day without eating. Its not until i sit back to relax I realise im hungry (then its around 8-9ish so I grab a small meal before bed).
I found that if I have snacks scattered in my rooms I tend to realise thta I havent eaten. Even if its just a bag a crisps, i normally eat those then realise im still hungry and make some crackers.

Stress does make your appitite do strange things. Maybe the Yoga idea would help destress her. Also she could have a protein drink afterwards to help rebuild those muscles shes just stretched and add more weight on.

Lifes definately not worth stressing about, nothings is that important. Cant leave some of the high stressed ones and replace them with something else?

Even though I really wanted a maths degree, about halfway through it I was stressing so much i was making myself ill, so I stopped it. Had a year and a half off and think i will be starting it up again this year now im feeling better. Life didnt go to plan but im definately feeling happier because of it
 
I agree this is a stressful time of year even for the healthy. Young adults are starting anew, like starting a new job...remember that? Can't sleep, can't eat. She will be ok, the first week is very hard but once she gets settled, all will be ok. My daughter starts the 12th and she works up to the 9th and in a golf tournament...she hates wasted time. NOT like her mother lol.

Sometimes life isnt fair, and being with this disease makes it worse. Don't dusty, she will be ok, but if she likes the Ensures, she is best to get it down. Hugs to you all.
 
:shifty-t::shifty-t:

I agree with Dex, but I bet if you try and tell her to slow down it will just go in one ear and out the other! I'm sure she gets her determination from somewhere.

When she doesn't have an appetite, is she good about drinking protein shakes and such?

Hang in there mom,
much love,
~T~ :rosette2:
 
Hi Dusty,

Sorry that you and she have to worry about this... seems like there's always a worry! :frown:

Can she tolerate dairy? If a meal is too much for her appetite, how about cream soups? Can be made with lots of healthy ingredients plus the cream would add some calories. Perhaps she could make a pot and freeze individual portions for when she needs to eat but just isn't very hungry.

With all she has going on, no surprise that she's lost weight but how do you slow down a teenage girl with the world at her feet?? :yrolleyes:

Good luck! :ghug:
 
I am so sorry Roo is overwhelmed and its affecting her weight. I was an overachiever in college and was often stressed out. Similarly to Roo, I would lose weight. I didn't take the time to prepare and eat a proper meal. But, even when I did eat well, the anxiety would just burn it off. What helped for me was having several small meals/snacks prepared and ready for the day, especially when on the go.

I hope Roo's load lightens up a bit and she starts to feel a little better.
 
idk...

Tell her theres people with active Crohns that isnt in remission and flairing for like four years who'd love to eat like anything. If her symptoms arent back tell her to get it together and at least she doesn't have to deal with active Crohns again.
 
Aww not good. She definitely sounds like someone who just loses weight when they are stressed. Luckily it happens with many people in the general public and doesn't always mean a flare is about to rear it's ugly head.

Can she get some ensure drinks to stop the weight from coming off?

Hope she feels better soon xxx
 
@Helen - Awww thanks mate. :hug:

@Dex - Nooooo, she only gets the good characteristics from me! :lol:

@Rygon - Thanks so much for your advice, very much appreciated. :thumleft:

@Pen - Big hugs to you Pen! Thanks for the words of wisdom hun. :hug:

@Ben - Thanks buddy. :) . I reckon I'll get a script for that too!

@T - I will blame her father for all the bad traits! :ylol: With the vegan diet I have no idea what's what! I do know she makes smoothies with Soy milk so that is a start. Thanks mate. :heart:

@Tess - Thanks for the suggestions hun. She doesn't do dairy but has substitutes. Haha, you don't slow them down do you, they are invincible! :)

@Jill - I will speak with her about the meals/snacks. Thanks you! :ybiggrin:

@Endded - Hopefully she is getting it together as we speak! Thanks mate. :)

@Jordan - Thanks hun. I am doing my best to convince myself that all is okay! :lol:

@Misty - Thanks buddy. No ensures but I think she will try and do some soy milk smoothies. :hug:

I spoke with Sarah this morning and she still sounds down. :( But this evening she told me she has found somewhere else to move to so hopefully that will take some of the pressure off, fingers crossed!

Thank you all so much for your support, comfort and wise words! :thumright:

Dusty. xxx
 
Hey Dusty,
Similar to Roo I struggle with appetite and maintaining my weight even in remission. Life in Sydney is too stressful for its own good sometimes. Something that I find that can help is to have a Boost Juice, that way you end up consuming a lot of nutrients without really realising. It is also nice to have something that is considered 'normal' by everyone else. I hope she feels better soon!
 
My meds used to kill my appetite over a decade ago, but now I'm always hungry. I think it's the long term use of Prednisone, so many, many courses of it.

Still, 5'4" and 100lbs doesn't exactly sound skeletal, to me. I mean, I wouldn't think she should lose any MORE weight, but that doesn't sound dangerous.

I've been down to skeletal before when I was seriously stressed out. I would definitely question whether this is Crohn's related at all or whether Crohn's is just a component of her stress. What else is going on? Boys? Classes?
 
Just wanted to chime in and send a hug to you and Roo! I hope she gets thru this stressful time quickly and is able to start eating and putting a little weight back on.

It's a busy time of year, and stressful for everyone. Hopefully once her move is over things will settle down.

xo - Ames
 
@Ames - Thanks hun...:hug: Fingers crossed that it does indeed all settle soon! :)

Dusty. xxx
 
:hug: Aw, Dusty! You remind me of my mom so I just wanted to give you a hug! I'm just now at a point in my life where I realize just how hard it must have been (and probably still is!) for my mom, worrying about me. So part of me is really glad that Roo is involved and the other part is really sorry that you have to worry about her!!! She's very lucky to have you for a mom :hug:
 
Oh Dusty. I'm sorry just catching up with this!

At 19 I was invincible! At 40 I was invincible!! At almost 50, I STILL think I'm almost invincible!!! (my bowels have other plans sadly)

Only way to learn is the hard way for most of us with stubborness in spades. Roo will learn what her limits are in her own good time. And it must SUCK to be her mum while you're watching from afar and not able to do much. Thankfully for her, bless her, my mum passed in 1994. Otherwise she would frippin KILL ME.

Dusty, I can only send hugs your way, and wish the patience fairy visits you, and that you do what you always do, and be the most incredible mum in all of the southern hemisphere. :hug::kiss:
 
Thanks so much Sabrina! I always love a hug...:)

I have absolutely no doubt that your Mum is very lucky to have you too, I know I would be...:hug:

Dusty. :heart:
 
Wow, she certainly does have a lot going on!! Way to go Roo!!! :dance: No wonder she has no time to eat! LOL You must be so proud of her! :medal1:

(And, I don't think 'crash and burn' is anywhere on her agenda! :emot-dance: )
 
Hi Dusty, I'm newly diagnosed so yet to reach that wonderful place called remission but I do know that my appetite was one of the first symptoms for me, it just changed really then I lost it completely....it's so simple to do a CRP or a fecal calprotectin, maybe drop it into the conversation casually?! Both good early indicators of inflammation and you'd be able to nip any nastiness in the bud? Maybe it's the nurse in me but I love numbers and values in relation to blood tests etc and always feel the need to study them in relation to my symptoms, therfore I must advocate them!:thumleft:
 
@Misty - Aww thanks hun...:blush:...Yes invincible rings a bell!...:lol:

@Tess - Thanks mate...:hug:...No room on her plate to eat ay? :lol:

@soretum - Thanks for your thoughts hun, they are much very appreciated. I have broached a visit to the doc and bloods with her and she has said she will attend to it, just didn't say when! :lol:. Haha I love blood numbers too, the irony with Sarah is she always had normal bloods, CRP included, even when she was in a huge flare. I still cling to those normal values even when I know there is every likelihood they are false! :eek2:

Dusty. xxx
 
Ugh Dusty. I can appreciate not wanting to succumb to your Crohn's but we've also got to be realistic. I hope she doesn't learn the hard way to respect her limits with this disease. :(

Nothing but well wishes from me, but I'd be frantic in your position. I don't shelter Sarah.. my Sarah that is.. but we did have a talk about joining the basketball or soccer teams. She does robotics, chorus, band, drama instead.

She's already becoming unmanageable at 13 I can't yet imagine having to cut her loose and let her handle this herself. Ack.
 
Dusty - I hope Roo's appetite comes back soon.
Soretum - Thanks for mentioning the fecal calprotectin test. I never heard of it before and just read about it. I plan to ask for it and the eosinophil protein X test.
 
Thanks hun! I am hoping that things will start looking up soon...the sooner the better!

Dusty. :hug:
 
Hi there, when I was diagnosed my calprotectin was >500 and normal value is <5...I'm not sure if it's being universally used as an indicator of inflammation but i know some places/doctors do regular calprotectins to look for inflammation and possible relapses in people who are in remission.

dannysmom said:
Dusty - I hope Roo's appetite comes back soon.
Soretum - Thanks for mentioning the fecal calprotectin test. I never heard of it before and just read about it. I plan to ask for it and the eosinophil protein X test.
Click to expand...
 
DustyKat said:
@Misty - Aww thanks hun...:blush:...Yes invincible rings a bell!...:lol:

@Tess - Thanks mate...:hug:...No room on her plate to eat ay? :lol:

@soretum - Thanks for your thoughts hun, they are much very appreciated. I have broached a visit to the doc and bloods with her and she has said she will attend to it, just didn't say when! :lol:. Haha I love blood numbers too, the irony with Sarah is she always had normal bloods, CRP included, even when she was in a huge flare. I still cling to those normal values even when I know there is every likelihood they are false! :eek2:

Dusty. xxx
Click to expand...

Oh I'd forgotten about her normal tests....wow amazing that your body can be in so much trouble and yet wont show up on the tests, how frusatrating that must be... I'd HATE that I love watching my numbers go up and down according to how I feel (ICU nurse = slighty ocd about such things), I guess you have to find something you can like about this disease Will be interesting to see in the future if her tests stay normal if she has any further flares
 
Hi Dusty!!!!

I hope Roo is doing better. I came back on here today, I seem to never have time to come on here and check on everyone. When the baby is napping, I usually am too :)

I'm sorry she's having a bit of a rough time. It will get better!

You hang in there too. I can't imagine how hard it is for the loved ones of us Crohnies. Take care!
 
Hi Dusty - Just reading everyone's responses and wondering if Roo ever comes on the forum to see how much we all love her!! Give her a big hug (and Matt, too!) from all of us!!!

xo - Ames
 
@soretum - At least with Matt I get to see the numbers! :lol: His bloods are very sensitive. It worries me a tad that Sarah's aren't. She had an episode of acute pain a few months ago that sent her off the ER, it ended up resolving and her bloods were normal, again. I'm hoping it was a one off and it seems that it was but it still leaves ya wondering about those bloods. :wink:

@rygon - I know she doesn't hide it from her friends or work colleagues and until Matt was diagnosed I don't think she really spoke about it to any other crohnies, not sure about that though. It has certainly brought the two of them much closer together though which is nice to see. :)

@Amanda!!! - Thanks hun...:heart: I was perusing the pregnancy forum the other day and was wondering how you were getting on. I was so hoping that no news was good news and it sounds as if that may well be the case! :panda::panda::panda: I'm so happy for you...:hug:

@Ames - Awww thanks mate...:hug: She knows I am a member here, as does Matt, but as to whether they visit...that remains a mystery! But I shall pass the hugs on with the greatest of pleasure. :ybiggrin:

Well the move took place yesterday and today Sarah is sounding a little more relaxed and chatty. :) She still has quite a bit on her plate but maybe, just maybe she is starting to see light at the end of the tunnel. I have everything crossed!

Dusty. xxx
 
Awwww, Sadie is soooooooooooooooooooo cute! I bet you are just bursting with pride! :)

Sarah is doing just fine now hun. She has had bloods done and has been to see the specialist and all is AOK! Plus after next week most of the extra workload she has had will be finished with. YAY!

Thanks for asking mate. :heart:
Dusty. xxxxxxxx
 
Hey Dusty so glad Sarah is doing good! My daughter in 3rd year has a 6 course overload and she is perfectly healthy. She knows nutrition is so important but never finds the time to cook. Hasn't even been a full month of Uni and she is burnt out already. She has too many fingers in the pie, but I am sure she will realize she took on too much. Her intentions are good but I worry with lack of sleep and not eating properly that she could become ill. I try not to think about it much, because that is stress and we all know what happends to Crohnies when we stress. We are close but she can get very defensive so I leave her alone...I guess I knew it all at 23 years old too! :lol:

How long does your daughter having schooling? What is her major? Hugs to you both, and Matt.
 
Aww, thanks guys...:hug:

@Pen...Sarah is in her second year of a three year politics degree. Our academic years go from January to December and being uni it means she only has about a month of this year to go. I think she will go on and add teaching to that as she always says..."Well Mum, you just can't go straight into politics so you need to have a credible job, in the eyes of the electorate, behind you." :lol: We'll see if that changes! All of her extra curricular pursuits and work are politically based.

Dusty. :)
 
Wow only a few months? My daughter starts in Sept and goes to April. Full term courses. :yfaint: But she loves it. Good that Sarah is doing well. Kids need an education these days, don't matter what you are going to be :lol2:
 
No they are longer than that. Because the seasons are reversed our school/university year follows the calendar year. For school they start at the end of January and go through to mid December. For university they generally start toward the end of February and go through to about mid November.

Dusty. :)
 
I'm so glad she's doing good again! How is matt doing?? :)

Thank you! I am so proud of my pretty little girl!! She's pretty amazing!
 
Hey Amanda!

Yes! it would seem all is settling. She loves her new apartment and flat mates, her workload is lessening and she just got re-elected into her position as Welfare Officer at the uni today! :panda::panda::panda:

Matt is also powering along. He had bloods done last week and all is normal, he looks well and I honestly can't remember the last time I have seen him so relaxed and full of vigour and humour. :)

Sadie certainly is a stunner! Please give her a big squishy from me! :hug:

Dusty. :heart:
 

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