Cat-a-Tonic
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- May 5, 2010
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I have been talking about exercise a lot in the Undiagnosed Club lately and figured it might need its own thread, so here we go. This first post might be particularly long and rambling, apologies in advance.
I'll start with a recap of how I got to where I am today. I used to work out regularly before I became ill, but I never really enjoyed it. I wanted to lose a few lbs, I wanted to look better, etc. It was all for superficial reasons and not for health reasons at all. I honestly hated going to the gym! I enjoyed things like going kayaking, but just plain working out in a gym? Hard work, not fun, boring! :boring: If I didn't feel like going to the gym that day, I'd skip it. I really had no concept of how important my health was or that I should make more of an effort to be healthy. I was shallow and unwise.
So, October 2009 rolls around and my life changes forever - I got so sick and never really recovered. Flare up after flare up and nobody could tell me what was wrong. I had so many tests and went into pretty significant medical debt. I lost a lot of weight - about 20 lbs, going from 136 (at 5'8") down to about 115. Exercise really didn't even factor into my thoughts at that time. I was very weak and was really struggling. I recall a time where I had to have my hubby carry laundry up and down the stairs for me and I was so weak and light-headed that I nearly passed out while folding the laundry. It was a really dark time. I didn't want to feel useless so I still insisted on doing the laundry, but really I couldn't even do it by myself without a lot of help.
October 2010 and my GI decides that enough is enough, he'd rather give me some relief from all the tests and the flares and try to put me into remission, even though I still didn't have a proper diagnosis (it's presumed that I probably have some form of IBD, but nothing is official). We already knew that I respond well to prednisone, so my GI put me on Entocort. I responded well to that too, and after about 7 months of being on it, I was officially in remission. Woo hoo!
But, as I was entering remission, I had been having some pain in my right hip. I went to my GP and it was diagnosed as arthritis. My GP felt like I was a good candidate for physical therapy as the arthritis was mild, so off to PT I went.
At my first PT appointment, my physical therapist assessed me. She was very thorough - I figured she would just want to look at the bad hip, but she looked at my whole body. She determined that my good hip was very weak, about as weak as the bad hip was. Also my knees were very weak, my ankles, and so on. I knew that I had lost muscle mass from being so ill, and I had also lost muscle mass from being on steroids for 7 months (corticosteroids apparently have the opposite effect as anabolic steroids; they rob muscle mass rather than build it up). But I didn't realize how far gone I really was. I was super weak, had almost no muscle mass at all and struggled to do even the simple exercises my physical therapist gave me to do. It was shocking and humiliating!
But it also drove me to action. I decided that day that I was going to start going back to the gym. Any physical exertion during the worst of my illness would just make my body get even more upset with me, but I was hoping that in remission I could get away with a bit of exercise. Fortunately I was right - my body responded wonderfully. I started working out 2 days a week, lifting very light weights. I knew I needed muscle mass so lifting weights seemed like the way to go. And it was, I felt very good doing it - sometimes I'd get pain from doing the abdominals machine, but other than that I felt great.
As I eased my way into a better and more stable incarnation of remission, I heard my body begging me for 2 things - food, and exercise! I hadn't really had either in a long time. So I gave it those things, and I felt great. I felt so strong, healthy and happy like I never had in the gym before. Suddenly the gym became a place I really wanted to go! I enjoyed working out, I felt like I was actively fighting to reclaim my health. I didn't feel like a sick person in the gym. For the first time in a long time, I could forget for a little while that I had an illness at all. And that was absolutely the best feeling in the world!
I pretty quickly moved up to lifting weights 3x per week and gradually increased the amount of weight I was lifting. I did that for about a year, 3x per week lifting weights. But I wondered if I might be doing myself some sort of harm by only really doing one type of exercise, so more recently I tried incorporating some cardio.
May I just say here that I hated cardio at first? I've never liked cardio, but getting back into the gym after being ill for so long, I really liked lifting weights - not so for cardio! I had to force myself to do it at first. I tried jogging, but with the hip arthritis it is not possible for me to jog for very long at all. I can jog for about 1/2 mile before the pain sets in - that's only about 5 or 6 minutes of jogging. If I push myself to keep going, the pain only gets worse and worse. On a couple of ocassions, I pushed myself to run one mile. Because really, I'm trying to get healthy, at a bare minimum I should be able to run one lousy mile! But it is not so. I was in pain for about 4 days the last time I ran a mile, it is just not worth it.
So I sought out other forms of cardio. I started riding the stationary bike in the gym. Since I hadn't really done any cardio, I could not ride for more than a few minutes without being completely winded! Just like with weights, I had to start small and slowly and build myself up. At first it was just, can I keep pedaling? And then I increased the resistance a little bit. Now I'm at the point where I can do a 30 minute hill program and I can keep pedaling the whole time. I sweat like crazy and sometimes I still feel like I hate cardio, but I'm keeping up with it! I'm looking forward to spring so that I can ride my real bike outside. I'm planning ride routes already.
So that pretty much brings me up to where I am today. I currently do a 6 day workout schedule - I do weights one day, cardio the next, weights, cardio, weights, then a rest day. Then start the whole thing over again. Sometimes I do yoga on my rest day, and I usually walk my dog on the weekends too, so I'm doing something active pretty much every single day. I feel great, I have muscles again, and I'm still in remission.
I personally see remission, specifically staying in remission, as a multi-pronged effort. I need to take my meds and supplements, I need to eat as healthily as I can, I need to get enough sleep, I need to stay hydrated, I need to keep my stress levels as low as I can, and of course I need to work out as often as I can! I know that all of those components contribute to me fighting my illness, but honestly, working out is the only one where I actively feel like I'm really fighting. I push myself, and with every rep or every time I don't give up, it feels like I'm punching IBD in the face. I feel like I'm actively beating this thing one workout at a time. I know I'll never truly beat it and that it can always come back - and really, that only makes me want to work harder. I have endless motivation, and as long as I am able to I will never stop fighting.
Okay, so that was wayyyy too long, but that's the story so far! I'm going to use this thread hopefully in a similar way to David's holistic treatment diary - I'll log what I've been up to in the gym and how I'm feeling and so on. Input is welcomed, questions are fine, threadjacking is okay too.
I'll start with a recap of how I got to where I am today. I used to work out regularly before I became ill, but I never really enjoyed it. I wanted to lose a few lbs, I wanted to look better, etc. It was all for superficial reasons and not for health reasons at all. I honestly hated going to the gym! I enjoyed things like going kayaking, but just plain working out in a gym? Hard work, not fun, boring! :boring: If I didn't feel like going to the gym that day, I'd skip it. I really had no concept of how important my health was or that I should make more of an effort to be healthy. I was shallow and unwise.
So, October 2009 rolls around and my life changes forever - I got so sick and never really recovered. Flare up after flare up and nobody could tell me what was wrong. I had so many tests and went into pretty significant medical debt. I lost a lot of weight - about 20 lbs, going from 136 (at 5'8") down to about 115. Exercise really didn't even factor into my thoughts at that time. I was very weak and was really struggling. I recall a time where I had to have my hubby carry laundry up and down the stairs for me and I was so weak and light-headed that I nearly passed out while folding the laundry. It was a really dark time. I didn't want to feel useless so I still insisted on doing the laundry, but really I couldn't even do it by myself without a lot of help.
October 2010 and my GI decides that enough is enough, he'd rather give me some relief from all the tests and the flares and try to put me into remission, even though I still didn't have a proper diagnosis (it's presumed that I probably have some form of IBD, but nothing is official). We already knew that I respond well to prednisone, so my GI put me on Entocort. I responded well to that too, and after about 7 months of being on it, I was officially in remission. Woo hoo!
But, as I was entering remission, I had been having some pain in my right hip. I went to my GP and it was diagnosed as arthritis. My GP felt like I was a good candidate for physical therapy as the arthritis was mild, so off to PT I went.
At my first PT appointment, my physical therapist assessed me. She was very thorough - I figured she would just want to look at the bad hip, but she looked at my whole body. She determined that my good hip was very weak, about as weak as the bad hip was. Also my knees were very weak, my ankles, and so on. I knew that I had lost muscle mass from being so ill, and I had also lost muscle mass from being on steroids for 7 months (corticosteroids apparently have the opposite effect as anabolic steroids; they rob muscle mass rather than build it up). But I didn't realize how far gone I really was. I was super weak, had almost no muscle mass at all and struggled to do even the simple exercises my physical therapist gave me to do. It was shocking and humiliating!
But it also drove me to action. I decided that day that I was going to start going back to the gym. Any physical exertion during the worst of my illness would just make my body get even more upset with me, but I was hoping that in remission I could get away with a bit of exercise. Fortunately I was right - my body responded wonderfully. I started working out 2 days a week, lifting very light weights. I knew I needed muscle mass so lifting weights seemed like the way to go. And it was, I felt very good doing it - sometimes I'd get pain from doing the abdominals machine, but other than that I felt great.
As I eased my way into a better and more stable incarnation of remission, I heard my body begging me for 2 things - food, and exercise! I hadn't really had either in a long time. So I gave it those things, and I felt great. I felt so strong, healthy and happy like I never had in the gym before. Suddenly the gym became a place I really wanted to go! I enjoyed working out, I felt like I was actively fighting to reclaim my health. I didn't feel like a sick person in the gym. For the first time in a long time, I could forget for a little while that I had an illness at all. And that was absolutely the best feeling in the world!
I pretty quickly moved up to lifting weights 3x per week and gradually increased the amount of weight I was lifting. I did that for about a year, 3x per week lifting weights. But I wondered if I might be doing myself some sort of harm by only really doing one type of exercise, so more recently I tried incorporating some cardio.
May I just say here that I hated cardio at first? I've never liked cardio, but getting back into the gym after being ill for so long, I really liked lifting weights - not so for cardio! I had to force myself to do it at first. I tried jogging, but with the hip arthritis it is not possible for me to jog for very long at all. I can jog for about 1/2 mile before the pain sets in - that's only about 5 or 6 minutes of jogging. If I push myself to keep going, the pain only gets worse and worse. On a couple of ocassions, I pushed myself to run one mile. Because really, I'm trying to get healthy, at a bare minimum I should be able to run one lousy mile! But it is not so. I was in pain for about 4 days the last time I ran a mile, it is just not worth it.
So I sought out other forms of cardio. I started riding the stationary bike in the gym. Since I hadn't really done any cardio, I could not ride for more than a few minutes without being completely winded! Just like with weights, I had to start small and slowly and build myself up. At first it was just, can I keep pedaling? And then I increased the resistance a little bit. Now I'm at the point where I can do a 30 minute hill program and I can keep pedaling the whole time. I sweat like crazy and sometimes I still feel like I hate cardio, but I'm keeping up with it! I'm looking forward to spring so that I can ride my real bike outside. I'm planning ride routes already.
So that pretty much brings me up to where I am today. I currently do a 6 day workout schedule - I do weights one day, cardio the next, weights, cardio, weights, then a rest day. Then start the whole thing over again. Sometimes I do yoga on my rest day, and I usually walk my dog on the weekends too, so I'm doing something active pretty much every single day. I feel great, I have muscles again, and I'm still in remission.
I personally see remission, specifically staying in remission, as a multi-pronged effort. I need to take my meds and supplements, I need to eat as healthily as I can, I need to get enough sleep, I need to stay hydrated, I need to keep my stress levels as low as I can, and of course I need to work out as often as I can! I know that all of those components contribute to me fighting my illness, but honestly, working out is the only one where I actively feel like I'm really fighting. I push myself, and with every rep or every time I don't give up, it feels like I'm punching IBD in the face. I feel like I'm actively beating this thing one workout at a time. I know I'll never truly beat it and that it can always come back - and really, that only makes me want to work harder. I have endless motivation, and as long as I am able to I will never stop fighting.
Okay, so that was wayyyy too long, but that's the story so far! I'm going to use this thread hopefully in a similar way to David's holistic treatment diary - I'll log what I've been up to in the gym and how I'm feeling and so on. Input is welcomed, questions are fine, threadjacking is okay too.