- Joined
- Feb 20, 2013
- Messages
- 3
Hi,
My husband was diagnosed with UC in November 2010 at the age of 22 after being rushed into hospital. He first fell ill 2 months before and was so ill he was in intensive care for a week. He struggled a lot to control his condition, he was in and out of hospital, on many types of medication and underwent many tests. In May 2012 he was started on yet another new medication and we had his diet monitored and for the first time since his diagnosis, he began to co trol his UC - just in time for our wedding in June 2012.
However on christmas eve 2012, he woke up to a blinding headache and taken to hospital 2 days later with suspected mengitis. Tests for meningitis were negative and so he was taken for an mri. The scan showed a massive blood clot in his brain which had caused a bleed. He was started immediately on blood thinners but this caused the bleed to worsen making him seize. 4 days later after many procedures and an operation to remove his skull to ease pressure, he suffered a massive stroke and was pronounced brain dead. We said our goodbyes and turned off his life support.
We thought our biggest concern with his condition would be losing his bowel to a colostemy bag. Before his clot diagnosis, neither of us knew that IBD increases the risk of clots. We need to make more people aware. I am currently fund raising for crohns and colitis and I intend to make more people aware of the risks.
My husband was diagnosed with UC in November 2010 at the age of 22 after being rushed into hospital. He first fell ill 2 months before and was so ill he was in intensive care for a week. He struggled a lot to control his condition, he was in and out of hospital, on many types of medication and underwent many tests. In May 2012 he was started on yet another new medication and we had his diet monitored and for the first time since his diagnosis, he began to co trol his UC - just in time for our wedding in June 2012.
However on christmas eve 2012, he woke up to a blinding headache and taken to hospital 2 days later with suspected mengitis. Tests for meningitis were negative and so he was taken for an mri. The scan showed a massive blood clot in his brain which had caused a bleed. He was started immediately on blood thinners but this caused the bleed to worsen making him seize. 4 days later after many procedures and an operation to remove his skull to ease pressure, he suffered a massive stroke and was pronounced brain dead. We said our goodbyes and turned off his life support.
We thought our biggest concern with his condition would be losing his bowel to a colostemy bag. Before his clot diagnosis, neither of us knew that IBD increases the risk of clots. We need to make more people aware. I am currently fund raising for crohns and colitis and I intend to make more people aware of the risks.