Crohn's/UC rare disease or common treatment sequela?

This is not a judgement on anyone or an accussation that you are faking. Medicine is a corrupted science and IBD is one of the areas. You cannot depend on every physician for accuracy because we are more like overworked factory line laborers in a ford plant. Physicians rarely have control of their labor in a corporate hospital system and are inundated with mindless paperwork and pushed for productivity that you cannot hardly think, which is the point. They dont want the worker to think and spend time with the patient so you can follow the algorithm of treatment based on the corrupted science.

IBD is not a real disease but the sequela of invasive diagnostic studies and medication effect or its withdrawal effect. immunosuppressant drugs do not allow your body to fight off the infection introduced by colonoscopy/biopsy/rectal tube/hospitalization micro exposure, Inflammation causes pain but it has a purpose. It is your body fighting off infection and causes collateral pain. If you have surgery or a drain put in then this common complication will be worse

Narcotics are horrible for chronic pain and always cause dependence, its just how they work. When on them you are constipated and do not eat well so your body cannot further fight infection and repair itself (the body is better at taking care of itself then any doctor will ever be, and I am a doctor who recognizes this like all should). When you are withdrawing you have abdominal pain, diarrhea, and excruciating physical and mental pain that is worse than any presenting crohns flare.

If a person never had opiates before and is now dependent, I have seen others with long opiate hx in the ED who now have Crohn's so they can get regular opiates cheaper than on the street. The diagnosis also supports disability claims. I am not judging these people because I think its wrong a person enslaved by a drug to be taken advantage of my healthcare corporate profit. People have no job options these days so often disability is the only option to pay for basic housing/food and provide for dependents. These people are acting logically but made desperate

One Crohn's or UC patient is a goldmine to the corporate profitmaking. The patient requires procedures which pay well and require hospitalization which brings inpatient revenue, they require monthly visits for narcotic pain control, they allow chemotherapy drugs to be remarketed for a new disease and repackaged for a large profit margin. These drugs will cause colon and other cancers later on like all chemotherapy drugs do, secondary malignancy. This is goldmine down the line from t he unhuman corporate practice of medicine. Not doctors or even humans dictate the treatment plan.

Thats why few doctors even own their own practice anymore and are not allowed to unionize. We are very marginalized, but docs have pride and some may be deluted to think they are running the show. This is why docs tell their children not to go into medicine and are high suicide/drug dependence groups themselves. Because like all of us we are taught since grammar school not to question authority and raise their hand till they are called on. Think how much more effect this has with 12 more years of education past high school with an obedient hierarchal structure


Please reassess your treatment plan and how your symptoms presented before any treatment began. And ask if you also maybe too in sync with physical symptoms because of other stressors. and maybe asked for help for these out of proportion symptoms too soon. These diseases did not just pop up out of nowhere in the past few decades after millions of years of not existing in human history like a urinary tract infection or the common cold. Disabling human pathophysiology does not just show up basically overnight in human history. You need to ask yourself whats different now that it exists and the answer is the invasive diagnostic techniques and drugs. Thats whats new and thats where the morbidity/mortality, if not the entire disease itself which is probably a self limiting affliction if given time and conservative care.

I'm sorry but I bet anything in the future, i hope, they will write about profiteering on peoples health and IBD will have a chapter with other recent syndromes.

Both my parents have been zombies on fentanyl for years for an evolving diangosis of lymes to lupus to rheumatoid/psoriatic arthritis to finally fibromyalgia (basically nothing). SO this isnt a cold reality check, but a sympathetic voice with insight to medicine today

Medical school curriculum has been stressing "patient autonomy", which is important. But its only important to coroporations because by direct to patient marketing with tv ads and specific disease awareness groups they sell the disease and treatment.

The patient who has the same vague nonspecific symptoms, that anyone may notice if stressed enough goes to their doctor and says they have the disease and want the treatment. The doctor who is given limited time to diagnose and treat is influenced by this marketing the patient has just relayed to him, as well as from corrupted scientific journals and FDA drug trials (that provide minimal safety checks). They also want to solve the problem, make the patient feel better, and move on to the next 10 patients they need to see.

EMR makes this worse because now companies have real time information they can use for commerical research and development, as well as marketing. The electronic forms we need to fill out, or we are fired or told we will be sued over without, is deidentified (thanks HIPPA) and sold. Drug companies, insurance companies, healthcare systems and medical device companies spend hundreds of millions for this data a year. They don't spend this type of money for the hell of it, they expect a return and do. This is the safeguards provided by your government.

Please search for yourself on the internet on electronic health record data profits and who has access. Its the reason our healthcare system costs twice as much as any other country with the latest technology and physicians who go to school for the longest, but have worst healthcare outcomes. Because its not about curing anything, its about making as much money off your body as possible.

Including opiate dependence, like the millions of chinese strung out during the opium wars it still is the most unbeatable product to give to people. But unlike on the street where a person doesnt have a guaranteed payment source for opiates, when its paid by your insurance company pharma never has to worry about missing a sale

And just what should people with IBD do?

DJW said:

And just what should people with IBD do?

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I'm just saying this as caution before seeking aggressive diagnosis and treatment if you're functional. No narcotics ever is good advice for anyone, unless they are at deaths door in my opinion and in horrible pain.

Make sure you have exhausted addressing basic things that can affect bowel habits and abdominal pain. Drink enough fluids (urine is clear when hydrated), eat balanced, minimize other meds that can affect bowel habits, not too much caffeine, don't become dependent on stimulant laxatives if you're constipated. More than 3 days without a BM or hard stools is technically constipation. Keep active because it helps digestion and maintaing regular BMs. Make sure you have exhausted any other sources of diarrhea: infectious, med side effect, food allergy, whatever before you start on a rode to surgery and chemotherapy drugs.

How many loose bowels a day and for how long? without any other identifiable trigger. I have bad bowel habits and sometime loose, but I know its usually I ate a bunch of crap, drank alot of caffeine, or am nervous about something coming up. But I just replace what I lost with fluids and food, then move on. You can't pay too much attention to your body because it really does no better than us. If you are getting older don't expect the same perfect BM a day, as you start to get bone aches other things don't work perfect like they used too.

And if you are have recently used any drugs (opiate, stimulant) then your symptoms are related to that till proven otherwise with sufficient sobriety

This is just general cautionary advice because I have been seeing a trend with this, but your doctor and you know your individual situation better than me

I'm just saying make sure you exhausted other conservative solutions. And gave your symptoms enough time to work themselves out before going down an irreversible downward spiral of surgery, immunosuppressant agents that cause cancer, and narcotic pain meds that have this country in its grips right now. Because those 3 things cause small bowel obstructions, inconsistent bowel habits with diarrhea, abscesses, and fistulas. Make sure your Crohn's is that malicious before you get it treated by methods with complications identical to its symptoms


Here is a common outcome for someone who had abdominal surgery: few years go by no problem and they double over in pain with nausea vomiting. They go to ED and obstruction series shows small bowel obstruction secondary to adhesions from surgery. Surgery is then needed to lyse and relieve obstruction. Years goes by and it happens again pain and NV and obstruction. Section of bowel is strangulated and loses blood and dies. That section is removed and ostomy is placed so their feces now drains to a bag on their stomach for life.

Maybe not as much of a downer if 75 years old, but if youre 35 and this was for Crohn's 10 years before then it is. Try explaining it on a date or concealing it for your significant other. Maybe they resection bowel together that time so you dont have it, but the next time this cycle repeats itself you have an ostomy. So if for anyone out their that has any underlying secondary gain from Crohn's like meds or disability, I'd do something else. I'd rather wear a diaper for life or have a leg amputated personally. Dont oversell or obsess over symptoms you are functional with because when you go to a doctor these days asking for relief repeatedly, they have an obligation to investigate it and treat with the means available. And the means are not something they developed and researched, its something a pharm company or your government funded. Then ask how much you want to put your life in their hands. Its really how everything works but in medicine people aren't as informed so they can end up more vulnerable. Doctors aren't the ones making billions from sitting on their ass. Thats people with money making passive income from something they dont have to hear about. Not to say there arent A hole docs, but I trust a person I can see before I trust a shareholder I can't

This applies to medical tx in general too, like surgery for back pain. I would never get surgery electively for pain relief unless I was doubled over daily with 10/10 pain, and not related to substance withdrawal. When opiates started being pushed for chronic pain physicians were pressured to control it and not worry about the sequela. They were told that a person reporting pain is what they would be liable for and possibly lose their license. Even if the patient was in objective distress and still functioning enough to make it to their appointment though. So people need to be aware and say no for themselves if opiates are offered, when they think they can get by without it.

Also rather than share your story and compare treatment to strangers you cant see, find a support group where you can see others with the disease and treatment sequela, You see how bad it can get as a disease and its complications with your own eyes. I don't think its healthy though to spend too much time commiserating with others who are symptomatic. If I was in a group of people who said their back constantly hurt, eventually I would pay attention more to my back and say yea mine kinda hurts too. Maybe I should do something about it. The best treatment for chronic symptomatic disease is a distraction from it, not reflecting/focusing on it

IBD is not a real disease but the sequela of invasive diagnostic studies and medication effect or its withdrawal effect.

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There is one problem with your hypothesis jojoshabadoo, my daughter never had invasive tests or medication prior to her diagnosis, unless one CT scan a week out from surgery is deemed invasive. Instead the doctors sat on their hands and IBD flew right by them like it didn’t exist. She became increasingly ill over a 18 month period that culminated in emergency surgery that was more exploratory than anything else. On opening her up they found her bowel had ruptured, was infarcted and basically the area affected was in tatters (the surgeons words), also her abdominal cavity was full of pus. It was then that she was diagnosed. The wait and watch approach for us resulted in my daughter coming within a whiskers breadth of losing her life.

You have piqued my curiosity, if my daughter doesn’t have Crohn’s what caused the utter destruction of her bowel?

Dusty.

Forget it mate, you are banned.