Mild lymphoid nodular hyperplasia.

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Here's a paper on some of my findings. You'll have to wait till the scope biopsies come in to determine the true cause. Remember I'm just a mom giving her opinion not a doc! However if you paid me as one I would take it!

http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2036.2012.05062.x/full

More recent studies[3] have shown an elevated frequency of colonic LNH in a large series of consecutive children undergoing colonoscopy for various symptoms (i.e. severe chronic or recurrent abdominal pain and chronic constipation refractory to laxative therapy). Colonic LNH was associated with other endoscopic and/or histological findings pointing to a final diagnosis of IBD in a number of the cases. However, in the vast majority of the patients, who had colonic LNH as the sole endoscopic finding, an appropriate elimination diet followed by food challenge with the offending food(s) led to a diagnosis of FH. Cow's milk was the only causative food protein in the majority of these cases, whereas multiple hypersensitivity was observed in the remaining patients. In addition, as clinical symptoms reappeared some days after the food challenge, it is clear that most patients had a delayed-type reaction to the offending food(s). The consistency of the association between FH and colonic LNH was confirmed by the fact that a much lower number of patients without colonic LNH had FH. The mean age of patients with isolated LNH and FH was 7.5 years, thus supporting previous studies showing that FH might persist or manifest itself in school-age children and in adults.[25, 28, 29]
 
Farmwife said:
Here's a paper on some of my findings. You'll have to wait till the scope biopsies come in to determine the true cause. Remember I'm just a mom giving her opinion not a doc! However if you paid me as one I would take it!

http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2036.2012.05062.x/full

More recent studies[3] have shown an elevated frequency of colonic LNH in a large series of consecutive children undergoing colonoscopy for various symptoms (i.e. severe chronic or recurrent abdominal pain and chronic constipation refractory to laxative therapy). Colonic LNH was associated with other endoscopic and/or histological findings pointing to a final diagnosis of IBD in a number of the cases. However, in the vast majority of the patients, who had colonic LNH as the sole endoscopic finding, an appropriate elimination diet followed by food challenge with the offending food(s) led to a diagnosis of FH. Cow's milk was the only causative food protein in the majority of these cases, whereas multiple hypersensitivity was observed in the remaining patients. In addition, as clinical symptoms reappeared some days after the food challenge, it is clear that most patients had a delayed-type reaction to the offending food(s). The consistency of the association between FH and colonic LNH was confirmed by the fact that a much lower number of patients without colonic LNH had FH. The mean age of patients with isolated LNH and FH was 7.5 years, thus supporting previous studies showing that FH might persist or manifest itself in school-age children and in adults.[25, 28, 29]
Click to expand...

Your a doll! But no biopsies were done, only the barium Cray. Well they have to do a biopsy ?
 
Farmwife said:
I thought scopes were going to happen in the future? Did I get confused?
Click to expand...

I assumed the GI was doing the barium studies to check for narrowing and structures in order to do a colonoscopy and to be on the safe side but I called them this afternoon because she still hasn't pooped and all they say was give her a mineral oil suppository they are never on the same page I've never gotten an actual diagnosis just seems stupid test after stupid test in more torture so who knows if she'll get scoped I have no idea
 
AW hugs hun:ghug:...I can imagine how frustrating and heart breaking this is. But you have to figure the docs can't give you a dx until all the tests are run.

Who gave you the LNH dx?

Perhaps the doc is waiting to review the report and discuss with you the next steps at your next appointment. Please tell me you have an appointment to discuss these things.

Have you gotten anywhere with trying to get her seen by a doc at another children's hospital?
 
I have access to her records via internet portal, and the radiologist had determined lnh. And I do have a follow up appt but not until Dec 2. I had sought out a second opinion, and the first GI caught wind of it and was offended and was going to speak with my pediatrician about why she gave me a referral to a second opinion. Which I thought was weird. (I'm usually a non confrontational person and felt really anxious after he said that) I'm going to call Nemours tomorrow and see how I go about seeking an opinion from them and I've gotta call the pediatrician as well
 
I thought you posted that the radiologist saw something else on the barium enema she just had done and recommended a sooner appt
Did you call the office today about that ???
 
Yes she mentioned hirshprungs disease repeatedly and even went into detail on what it entailed. I didn't get any where with the nurse practitioner who called back after hours so a scheduler couldn't help me I have to call back tomorrow.
 
Ask to speak directly to the Gi
Not the nurse practitioner.
If you use the word "directly"
Typically they will call you back

Good luck
 
It was explained to me years ago that Hirshprungs disease is typically caught in infancy but some can have a more mild form which can take awhile to dx.

As far as the confusion......? Your not the first parent to go through this with doctors!

Hugs and hang in there!
 
I just feel like I'm getting no where with these doctors because she is so young they keep telling me. I need to be more of b*tch I guess. These circles are driving me crazy and I try to research as much as I can so I can ask questions and not fall into a rut of what ever the doc says goes type of care.
 
Our GI told me that any doctor that is offended because you want another opinion isn't a doctor worth having. He's consulted with CHOP about my daughter and arranged for us to go to Atlanta's IBD clinic as well. He set us up with a Nemours Immunologist then found us a physician at ACH he thought would be more thorough. I trust him completely because he knows that he doesn't know everything and he cares enough to point us in the right direction.
 
Same here our Gi arranged multiple second opinions when DS was having issues
Got us earlier appt etc....
Told us fresh set of eyes are a good thing
 
Our GI Dr arasu actually said he was going to call the pediatrician and ask her why she referred us to another GI. I need to go elsewhere and will be actively pursuing the pediatrician to get us into Nemours pronto
 

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