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Recent content by nelsonshan

  1. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    No bridge - hoping to get Humira on board quickly. EEN didn't work for him. Would like to avoid prednisone if going to be on all 3 of Entyvio/Humira/Mtx, as he'll already be rather immunocompromised, especially with the pandemic. I was worried that 20mg might be too much, but seems...
  2. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    Hi all - Our first Entyvio infusion is on Wednesday. Still trying to get the Humira approved. We stopped Imuran a couple weeks ago. We are going to be starting Methotrexate if he goes on the Humira to prevent antibody formation. She's thinking 20mg (0.8ml of the injection). Does this...
  3. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    His dr thought his TI looked better on scope, but according to pathology, it's active inflammation. Here is his path report: Diagnosis: A. Distal esophagus, biopsy: No specific pathologic change. B. Gastric antrum and body, biopsy: Patchy chronic active gastritis. C. Duodenum and duodenal...
  4. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    His upper scopes showed active inflammation in the stomach and duodenum, but esophagus was ok. If 13 weeks of EEN did nothing, I don't really see the point of it - we plan to stay on a couple boxes a day for nutritional support, but might as well let him eat if he wants to. They are working on...
  5. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    We have seen occupational therapy before for his food aversions. After several thousands of dollars and much frustration later, the only progress we made was touching his tongue to bread and a green bean a few times. It's truly something mental for him that he would rather go to bed hungry...
  6. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    I wish we could go to CDED or SCD, but my son is super picky. Last night, we asked him to try rice, and it took him 20 mintues to be able to eat a little spec. He wouldn't try potato. It's easier to do EEN for him that any sort of food diet. We will continue on the 2 boxes formula daily for...
  7. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    So, overall there was still a lot of active inflammation. His stomach and first part of duodenum were moderately inflamed with edema, erosions and erythema. This is where he was worst 5 years ago. It had since improved quite a bit, but now is back to this. There was barely any problem with...
  8. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    He's on week 13 of EEN and scopes are tomorrow. While his CRP and Sed rate have decreased, his calprotectin has increased to 750 now. We are anxious to see how the scopes look. We did the budesonide for a month and it seemed to help with his symptoms. They didn't want to keep him on it too...
  9. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    What are the thoughts on using Entyvio with immunomodulators? Does Entyvio carry a risk of antibody formation that azathioprine could help with?
  10. nelsonshan

    If small bowel and colonic activity - is Entyvio a good choice?

    Hi - My son has already failed Remicade, Humira, and Stelara. They are looking at Entyvio as a possible option. First we are doing EEN, budesonide, and my hope is that he'll go into remission and we can continue on with Stelara. Should that fail, they are considering entyvio +- diverting...
  11. nelsonshan

    Advice on questions to ask VEO-IBD Dr.

    Hi - I know some of you have already offered advice, but just want to be as prepared as possible... My son has already went thru Remicade, Humira, and now Stelara. We're looking at a possible ileostomy. We have a virtual meeting with CHOP VEO-IBD on Wednesday morning, and I want to make sure...
  12. nelsonshan

    Anyone's child fail 3 biologics?

    He was on 90mg q8 weeks, and after 4 months, his level was under 1 and he was still having inflammation. For the last 3+ months, he's done 90mg q4 weeks. We just tested levels again, and they are perfect at 5, but all of his inflammatory markers went up. She thinks he's a non-responder. I...
  13. nelsonshan

    Anyone's child fail 3 biologics?

    PDX - I see your daughter tried budesonide - did that work quickly for her? They are putting my son on that in the meantime.
  14. nelsonshan

    Anyone's child fail 3 biologics?

    Hi all - On my last post, we were looking into Stelara, after failing both Remicade and Humira. It's been about 7 months, and he's failing Stelara. His dr believe he's a primary non-responder. All of his inflammatory markers are up, and he's having pain even just walking. She wants to do...
  15. nelsonshan

    Calprotectin 926, Sed Rate increased

    He hasn't been doing well. He did well the first 8 weeks after the initial infusion, and we thought it was too good to be true. Since the 10 days before his first injection he hasn't been doing well. His ESR and CRP are up, calprotectin slightly up, RBC, HG, HCT are all low. He's been having...
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