Recent content by nelsonshan

Would like to hear anybody who has had success with Skyrizzi versus Stelara. My son was on Stelara for about a year and became his worst ever ending up in the hospital for nine days. After a few years on Entyvio, his doctor wants to switch him to Skyrizzi. Wondering if this will work being is...

Thank you both for the input. Ian was also on Stelara every 28 days - every 8 weeks didn’t do anything. Before he went on Stelara, I got a second opinion through Boston Children’s. Before we switched to Entyvio, we got a second opinion through CHOP. According to the biopsy results of his...

Hi Everyone - it's been a long time since I've been on. Ian is now 15. He's on 80mg Humira weekly and Entyvio infusions once monthly. He just had scopes on 12/23 and he still has an area of active inflammation at the cecum that his dr is concerned about. He's having an MRE tomorrow, so we'll...

No bridge - hoping to get Humira on board quickly. EEN didn't work for him. Would like to avoid prednisone if going to be on all 3 of Entyvio/Humira/Mtx, as he'll already be rather immunocompromised, especially with the pandemic. I was worried that 20mg might be too much, but seems...

Hi all - Our first Entyvio infusion is on Wednesday. Still trying to get the Humira approved. We stopped Imuran a couple weeks ago. We are going to be starting Methotrexate if he goes on the Humira to prevent antibody formation. She's thinking 20mg (0.8ml of the injection). Does this...

His dr thought his TI looked better on scope, but according to pathology, it's active inflammation. Here is his path report: Diagnosis: A. Distal esophagus, biopsy: No specific pathologic change. B. Gastric antrum and body, biopsy: Patchy chronic active gastritis. C. Duodenum and duodenal...

His upper scopes showed active inflammation in the stomach and duodenum, but esophagus was ok. If 13 weeks of EEN did nothing, I don't really see the point of it - we plan to stay on a couple boxes a day for nutritional support, but might as well let him eat if he wants to. They are working on...

We have seen occupational therapy before for his food aversions. After several thousands of dollars and much frustration later, the only progress we made was touching his tongue to bread and a green bean a few times. It's truly something mental for him that he would rather go to bed hungry...

I wish we could go to CDED or SCD, but my son is super picky. Last night, we asked him to try rice, and it took him 20 mintues to be able to eat a little spec. He wouldn't try potato. It's easier to do EEN for him that any sort of food diet. We will continue on the 2 boxes formula daily for...

So, overall there was still a lot of active inflammation. His stomach and first part of duodenum were moderately inflamed with edema, erosions and erythema. This is where he was worst 5 years ago. It had since improved quite a bit, but now is back to this. There was barely any problem with...

He's on week 13 of EEN and scopes are tomorrow. While his CRP and Sed rate have decreased, his calprotectin has increased to 750 now. We are anxious to see how the scopes look. We did the budesonide for a month and it seemed to help with his symptoms. They didn't want to keep him on it too...

What are the thoughts on using Entyvio with immunomodulators? Does Entyvio carry a risk of antibody formation that azathioprine could help with?

Hi - My son has already failed Remicade, Humira, and Stelara. They are looking at Entyvio as a possible option. First we are doing EEN, budesonide, and my hope is that he'll go into remission and we can continue on with Stelara. Should that fail, they are considering entyvio +- diverting...

Hi - I know some of you have already offered advice, but just want to be as prepared as possible... My son has already went thru Remicade, Humira, and now Stelara. We're looking at a possible ileostomy. We have a virtual meeting with CHOP VEO-IBD on Wednesday morning, and I want to make sure...

He was on 90mg q8 weeks, and after 4 months, his level was under 1 and he was still having inflammation. For the last 3+ months, he's done 90mg q4 weeks. We just tested levels again, and they are perfect at 5, but all of his inflammatory markers went up. She thinks he's a non-responder. I...