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Recent content by PENWESTERN

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    Remicade? Every 6 weeks or 8 weeks?

    Hi, I wonder after the three inductions how many CD patients take Remicade every six weeks? I thought it was every 8 weeks. Does an infusion wipe you out too?
  2. P

    Monthly B-12 Injections

    I had an ileocecectomy last month and twelve inches of ileum/cecum were removed. I am going to be taking monthly B-12 injections. Anyone have thoughts or advice? Any experience? I am also on Remicade (300 mg) and Imuran (50 mg) to keep the inflammation away.
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    Sore right upper Arm after Surgery

    Has anyone come home from the hospital after crohns surgery and found their right arm stiff and painful? It starts above my elbow - inside of the arm and ends at the front of my shoulder. This same arm went stiff after my Remicade transfusion a week prior to surgery. I self medicated 20 mg of...
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    Florastor Anyone?

    I had a resection. My surgeon gave me a week's worth of Florastor. I just bought fifty more capsules. Anyone have opinions on Florastor good or bad? Could I be wasting my time and money? It costs me over $35.00 for 50 capsules.
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    Meds After Resection

    Surgeon removed a foot of ileum and cecum. I do not feel pain. The remaining bowel is healthy. Any tips on how to maintain a clean bill of bowel health? I plan to start remicade again though I prefer Humira - will need to ask GI if I can switch. I am on 50 mg Imuran and Florastar...
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    Meds after Small Bowel Resection - CD

    Hello, I had 12 inches of severely inflamed ileum/cecum removed last week. It was four times normal size and no infection. I will see my GI next week. Any advice on keeping well? Did you go back to Imuran immediately as I did?
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    Surgery after Prednisone Taper

    I stopped Prednisone two weeks before surgery after a twelve week regiment. Surgeon says if I am still on it at time of surgery he will give me a 100 mg prednisone boost. Does this mean I will be back on a taper schedule? It has been less than a week since my last prednisone tablet (10 mg)...
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    Hand Assisted Laporoscopic Ileocecectomy

    I am scheduled for hand assisted laporoscopic ileocecectomy next month. I am worried because my ten year old six inch stricture of the ileum used to cause great pain. Five years ago the pain stopped probably as active inflammation subsided and fibrosis and scar tissue settled in. Does...
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    What if Remicade is Not Necessary?

    If we start feeling well how do we know if we still need remicade transfusions? Would a sediment test work? How does Dr. determine if we need more if we are feeling fine. I am on prednisone, imuran and will take remicade so it is hard to know which drug is helping. Between flares I...
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    How Many Remicade Therapies?

    My GI Dr. mentioned 3 Remicade treatments. I wonder what happens after that? Do treatments go on forever if you are tolerating?? Thank you!
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    Penwestern

    Hello, I joined today because I have questions on a severe Crohns Attack that is nothing like my last one in 1999. It was terrible stomach pain then. I was hospitalized, treated and for about four years followed up and took meds. The Remicade transfusions really hurt my liver so the Dr...
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    Crohns Attack of the Roof of Mouth and Face

    Hello, I joined today because I have questions on a severe Crohns Attack that is nothing like my last one in 1999. I had a severe crohns attack in mid Nov. I only had ileum involvement in the past and was diagnosed 9/9/99. This time was much much worse. I never felt a stitch in my...
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