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I have now had a spine mri to rule out cauda equina. They only saw minor issues, such as a very small cyst on my spine, and changes due to the back surgery. Nothing that looked as though it could cause my symptoms. It has subsided quite a bit now, but still comes back if I am on my feet too...

Thank you for your kind words. You are right, people just can't grasp what we go through, and I understand that. I also know it is difficult for the people who live with us. I have mostly been on this side of things, but it has given me the ability to have compassion and understanding of others...

It's too bad your spouse is non supportive. It can be much lonelier to be with someone such as that than to be alone (in my experience). My husband has been supportive as far as accepting the ostomy situation, but not so much with other health issues. I am dealing with a difficult health...

I was young when I started my struggles with crohns. I know about the issues from being single/dating and having to explain things about your health. It wasn't too much fun. I am now married (16 years). I met my husband 3 weeks after my ileostomy was made permanent. He has been very...

I just found this site this evening. I will tell you a little about my journey. I am a 56 yr old female. I have an ileostomy, total colectomy, rectum/anus removed also. How's that for getting to know someone? My struggles began in my 20's in the 80's. First surgery for an obstruction/crohns...