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Crohn's Disease Forum

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  1. LonghornGirl

    Miralax prep question

    I also have only done it the previous day, the whole big bottle within the 2 hours the evening before. I would think the 2 days before you should be okay to work.
  2. LonghornGirl

    Remicade Club Support Group

    Oh boy, I was told I should be okay to drive after, thanks for the heads up. Hope the nausea goes away soon & you rest easy tonight!
  3. LonghornGirl

    Remicade Club Support Group

    Did you drive yourself home afterwards or have a ride? We're you able to eat a good meal today.... During or after the process? Good luck, I hope it brings you relief!
  4. LonghornGirl

    Joining this online group

    Oh, and Farmwife, so sorry to hear about your baby girl but hopefully she can get fixed up and overcome all of this! Terrible to think of a child dealing with this, it's hard enough to understand as an adult! Best wishes to your family and good luck with the next steps.
  5. LonghornGirl

    Joining this online group

    Thank you so much, Farmwife! As you might tell, I'm a college football junkie, and I'm half country/ half city. I do have family with horses. :) Thanks, Sarah, I actually found these forums by doing a Remicade search. Then kept clicking around and figured I should introduce somewhere. I like...
  6. LonghornGirl

    My Story/Colonoscopy Prep Advice?

    Hi, there! I did 2 colonoscopies with those exact prep ingredients and I found it helpful to drink through a straw instead of just sipping from the glass. I could down the liquid faster without swallowing air to get burps. Also, the first time I used all orange Gatorade and was sick & nauseous...
  7. LonghornGirl

    Joining this online group

    Hello, hope you don't mind if I pull up a seat to this table! I'm 32 years old and was diagnosed with Crohn's early this year after I was experiencing the main symptoms stemming from a bacterial infection (C-Dif). I never knew before this year that I had Crohn's, but my GI thinks I possibly...
  8. LonghornGirl

    Remistart enrollment - how long does it take?

    Hello, all. I was curious to see if you had enrolled in Remistart, how long did it take you to get approved and how were you notified? I faxed the signed form last week and realize it was a holiday week, but haven't heard anything as of yet. Do they send something in the regular mail, or...
  9. LonghornGirl

    Insurance Refusing Pentasa for Crohns

    I was originally on Pentasa, 2 pills at a time for 4 times a day, and because of the high cost (even with insurance), I was able to change my medication to Mercaptipurine instead. It's SO much less $$ and I have been improving since then. Just a suggestion if you haven't already tried this...
  10. LonghornGirl

    Can remicade be a lifetime treatment option?

    Well it may be true that it's hard to predict for certain how the fistula will evolve or if it will go away on it's own, and it may depend on where they are located. I'm not rally sure about perianal but mine are forming in the tissue lining of my intestines and are at-risk of branching off and...
  11. LonghornGirl

    Can remicade be a lifetime treatment option?

    I am not sure about longterm treatment, and I am curious to see what the average span of remicade treatment is for folks on this board. I'm just now beginning my treatments and have only the beginnings of fistula formations but not having any of the bad symptoms or any pain, so it's hard for...
  12. LonghornGirl

    Remicade Club Support Group

    Thank you, I just found the paperwork and sent it on to my Doc for signature and missing info. Hopefully it will help, I've already been thru the ringer this year financially with all this junk leading up to this treatment so any assistance I can get is much appreciated. Thanks to all for the...
  13. LonghornGirl

    Remicade Club Support Group

    Hello, I am a relatively new Crohn's patient (just diagnosed this year) and starting on Remicade IV treatments. I will have my first one in a couple of weeks and will be using this forum for tips, concerns, and guidance. Thanks for letting me join, hopefully I can find out about this...
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