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Crohn's Disease Forum

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  1. K

    Help!

    help! Has anyone had the issue with not absorbing enough water? I only have small intestine left and the kidney doctor is threating to put a port in my chest since I am not absorbing properly. I guess my stage 2 kidney disease jumped up to four. Scared to death! I have tried pasta, bananas...
  2. K

    Difficulty in absorbing?

    difficulty in absorbing? Has anyone had the issue with not absorbing enough water? I only have small intestine left and the kidney doctor is threating to put a port in my chest since I am not absorbing properly. I guess my stage 2 kidney disease jumped up to four. Scared to death!
  3. K

    Rash/broken skin around stoma

    what helped me with issues was putting a moisture protective wipe on prior to adhering the bag on. I strickly use 3m no sting wipe. I had a pretty deep ulcer from the leakage, but when it finally went away with having it cortozoned and a burn cream the surgeon gave me I keep that skin...
  4. K

    Social Anxiety

    My experience is that people hear the noise and always assume it is belly issues. Prior to the surgery it really was the stomach and large intestine. They do sell products to put in your bag for the smell.. I believe hollister is one, there is another that literally is one or two drops and it...
  5. K

    Convatec Ostomy reviews

    I always use coloplast products.. they work the best for me. I actually tried them with a free sample. I also found that 3m no sting wipes makes an awesome moisture protector wipe.. helps avoid getting skin ulcers. I also use hollister paste. I prefer to use a variety for my needs. A lot of...
  6. K

    Life after treatments

    life after treatments I have had symptoms of crohn's since I was 13. I was diagnosed at the age of 18 with crohn's and that summer hospitalized for over a month to "rest the bowel". I was on prednisone, 6mp and pentasa. Still was in a lot of pain, was put on remicade, it helped for a month...
  7. K

    Anyone else having issues?

    anyone else having issues? Seems that either the crohn's or the medication (biologics remicade and cimzia) I have taken has caused female issues. I tried ivf, the eggs are deformed or genetically mutated. I swear it is the biologicals I have taken in the past. I know the remicade cause...
  8. K

    Biopsy scheduled

    yes they can tell by the way it looks. When they took my biopsy they knew right away that I had crohn's. It will also determine if it is just ibs (irritable bowel syndrome). Hope this advice helps!
  9. K

    Biologics side effects?

    biologics side effects? I underwent several rounds of remicade at the age of 18 and recenty cimzia age of 26. It is now apparent that it has changed my female cycle. I no longer get my monthly friend and when I went to go for ivf treatment, the eggs are deformed. The gi insists that it isn't...
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