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Crohn's Disease Forum

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  1. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    We really do have great care here in PGH :) Dr. Reguiero is the current National Chair for Professional Education on CCFA's Medical & Science Advisory Board, he's rock star good. And I'm pretty sure he's still a feature writer for Crohn's Advocate magazine. Just one of many reasons why I...
  2. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    I actually just got those done at my last appointment :D Everything else came back OK, but, I've got a vitamin D insufficiency (I measured in at 24ng/ml) and so I've been taking 4000IU a day.
  3. PGHCrohnsGirl

    Crohn's + Period = Aaaaaaaargh!

    Those might come in handy when the first two days fall on a weekend, or some other day where I could pass out after taking them if need be.
  4. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    :ywow: Dr. Binion was almost my GI here in PGH, but, they had to squeeze me in to see Dr. Swoger at the Monroeville location so I could get a refill for Humira before the start of December. I'm glad I found the UMPC Presby DD group - my GI from NJ had only one recommendation for me as far as...
  5. PGHCrohnsGirl

    Crohn's + Period = Aaaaaaaargh!

    haha, yea, sometimes it feels like it is trying to claw its way out anyways, so, might as well give it a little assistance, amiright? Sorry to hear about the cyst :( That absolutely sucks. Hmm. Vicodin might help on the awfulest months...though I'd have to take vicoprofen because of my...
  6. PGHCrohnsGirl

    Crohn's + Period = Aaaaaaaargh!

    I could check w/ my OB-Gyn, nay, should. I'm still getting used to having health insurance since I've been without it for so long lol. It just really sucks because I'll get severe pain in my right hip the day or two before my period hits, so, I guess at least I always have a warning, even if...
  7. PGHCrohnsGirl

    Crohn's + Period = Aaaaaaaargh!

    There's the rub for me. I don't take birth control pills because of personal reasons. I've got such a finicky body as it is, and it is overly sensitive to many things and, they have hardly ever worked for me aside from the whole not getting pregnant part. That, and my NJ GI had told me that some...
  8. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    Yep, he is located in Pittsburgh. I see Dr. Swoger with the UPMC gastro group at the Monroeville office. GREAT doctor. You know, except for sending me for bloodwork and wanting me to get a colonoscopy after my first appointment with him haha.
  9. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    Seriously...ugh! Skinny =/= good/healthy My partner gets annoyed by people who tell me I look good when I lose weight, too. This past summer, my partner and I were at a BBQ and someone who hadn't seen me in a while, but knew I had Crohn's, was telling me how fantastic I looked now that I...
  10. PGHCrohnsGirl

    How do you know when your well enough?

    I would have, and have, done the same thing. I have found that some days I am great, but some days I just can't do it. For me, it depends on what the pain is, where it is, and how severe it is. If it is gas pain, or just mild discomfort, I know that getting out and moving around will help...
  11. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    Aw, man lol. You'd think your MIL had never seen a sexy moon face before. I bet your moon face brought all the boys to the yard. :ybiggrin: Funniest part of it, for me, was all the people who told me how "great" I looked on pred, how it was so great that I had gained back all that weight I...
  12. PGHCrohnsGirl

    Sometimes, I think my immune system/bowels hate me...

    Thanks, kllyeve and xX_LittleMissValentine_Xx. So far, I am feeling better today. I'm hoping it lasts. And yea, it is definitely sucky when it springs up out of nowhere on you. Probably one of the things I hate the most about any episodes with my Crohn's is the lack of predictability at...
  13. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    Hi Feather :) When my GI told me he wanted to put me on Humira, he said that it was due to being easier to administer (self-injection fortnightly vs. infusions) and less cost prohibitive when compared to Remicade. As I didn't have insurance at the time we started treatment and were not 100%...
  14. PGHCrohnsGirl

    Sometimes, I think my immune system/bowels hate me...

    ...but not as much as I hate them sometimes. Today sucked. I have been super conscious of what I've been eating lately because I'm not due for another Humira shot until next week. The off week also tends to be the worst for me - so my GI might increase my dosage to weekly rather than every...
  15. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    Hi Sybil! I'm sure if my GI had had his way, I would have been on it for only a few months, too. Actually, if he had his way I would have been on Entocort and never would have been on pred at all. First, I had to get a PPD test, a Hep immunity test, and all of my vaccinations updated before I...
  16. PGHCrohnsGirl

    Crohn's + Period = Aaaaaaaargh!

    And not a pirate-y Aargh :arghmatey_ani:, either. Think, Charlie Brown when Lucy pulls the football away from him for the umpteenth time. I've perused some of the other threads on this board, so, at least I know I'm not alone in this, which is very comforting. Sometimes it is horrible...
  17. PGHCrohnsGirl

    Humira Club Support Group

    It took me somewhere in the proximity of 6 weeks to feel better after starting Humira. I hope that it starts to help or that you otherwise find something else to help soon :( I know the frustration of having treatments not work out as hoped.
  18. PGHCrohnsGirl

    Humira Club Support Group

    Hi all!! I've been a part of the Humira Club since 1/13/11. I prefer getting my shots in my thighs versus my stomach. The actual injection hurts the worst in the thigh, but, I find that the injection site is definitely tender for longer periods of time when I get it in my stomach. I...
  19. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    Pen: Aha! Yes, quite cost prohibitive for someone without insurance. Thankfully, I have insurance now (yay!) so I can get all of those lovely blood tests and colonoscopies that my Pittsburgh GI wants me to get. I swear, his eyes lit up on my first visit with him when I said "I have good...
  20. PGHCrohnsGirl

    New to the forum, still relatively new to Crohn's

    Thanks for the welcome, Pen & KWalker :) Pen: Yea, prednisone was absolutely awful after a month or so. My GI wanted to put me on the better alternative (I don't even know what it was called) that has the benefits of Pred with minimal side effects, but, since I didn't have insurance at the...
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