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Crohn's Disease Forum

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  1. M

    Is there hope???

    Yup cannabis butter in cookies. Also tried cecemet. I'm fairly confident my biggest problem is the partial obstruction from stenosis. The pain whe. The bowel gets blocked is so bad. I stop eating and after a few days 2-4 it finally gets through and gets out. Then I start eating a bit again and...
  2. M

    Is there hope???

    I've also went into full early menopause 3 years ago. Not to downplay asthma. I had that since 3 till now and it was severe up to age 20 but at least I could get on my maxi mist machine and get relief. Unfortunately I can get no relief from crohns and I really need some relief. It has been...
  3. M

    Is there hope???

    Thanks I would like to know if anyone has had any luck with remi helping with stenosis. I started going to the hospital for diarrhea over 13 years ago at that time the colonoscopy and endo showed inflammation from throat all the way through to anus. Sodium chromoglycate helped for about 5 years...
  4. M

    Is there hope???

    Hi;:sign0085: I have posted previously, but lately have been having very bad days, almost living in the bathroom in the tub. I am confused and so very frustrated. I am 47 yrs old just diagnosed 2 years ago after a bowel obstruction, yes late in life and because of being diagnosed so late I...
  5. M

    Does anyone elses stomach swell past bloated?

    Gripe water is a blessing for me
  6. M

    Can You Get Pain Killers For Crohn's Disease?

    Oh my, you guys are oh so lucky not to have intense pain every day. I've been in moderate to severe pain everyday for years. I will also be hugging the toilet without taking zofran everyday. My doctor told me last year I was in remission took me off pain medication and I became stuck in a hot...
  7. M

    Help with cap endoscopy results

    Thanks so much. I have a lot of problems trying to understand this stuff. I've never had any interest in bio, so any and all info in laymans terms is very much appreciated. Have a great day, Mag
  8. M

    Help with cap endoscopy results

    Botox has really helped my migraines, would have been great if a side effect was to help my stomach problems. Any thoughts of what may be potentially safe foods? I haven't been able to find safe foods. I have even tried the specific carb diet to no avail. I do know some items that are...
  9. M

    Help with cap endoscopy results

    I have a lawyer on the case, letters have been sent. My job was with a major bank as a manager. Loss of my benefits really is hard, had to apply for financial assistance for the remicade co pay as my spouses medical plan only covers 80%. But to lose life insurance, dental, medical, etc is...
  10. M

    Help with cap endoscopy results

    Yup only in small bowel. Used to be constipated now back to running to the bathroom all the time with the runs. I also get overheated all the time and start sweating like crazy. Here is a list of meds I am currently on: Azathioprine (since April 2011) remicade hydromorphone (max 6 mg/day)...
  11. M

    Help with cap endoscopy results

    Hi SarahBear; Thank you so much for your reply. I suppose could say always sick, at birth I could not tolerate formula and required a special hypoallergenic formula. Just started remicade last week, Jan 7, 2013. I suspect I likely had flares all my life but just kept going. I do not like...
  12. M

    Help with cap endoscopy results

    Had a cap endoscopy done and the results are summarized as follows: 195 min Generalized edema 198 min small ulceration with deformity 220 min aphthous ulcer with non surgical stricture , marked edema, erythema (45 min to pass) 289 min black base aphthous ulcer, surgical stitch, stenosis, small...
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