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Crohn's Disease Forum

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  1. H

    LDN 5 years later

    Ldn Yes it is a prescription in the US. I am sorry I dont know anything of outside of the US. I know not every pharmacy carries it because I believe it is a compound medicine, which means it has to be made in the pharmacy by the pharmacist. My mom has to get hers out of Atlanta GA from the...
  2. H

    LDN 5 years later

    Ldn My mom gets her's from the Shepard's Clinic in Atlanta GA. She told me it is a compound so they make it there and mail it to her. It is a prescription in the USA.
  3. H

    Exhausted and still no answers

    Hey Trysha Yeah I saw Rheum but I am seeing another one next month. Yes my thyroids have been checked and nothing and I have been cleared of Lupus and Sjorden Syndrome. The inflammation they found was one my first scope but the 2 after that showed clean but the systems are still the same. My...
  4. H

    Exhausted and still no answers

    I started eating gluten again today so I can retake the Celiac antibody test. I am positive for the prominent gene for Celiac (but that does not mean I have it). Yeah they have suggest other things but they are all negative too. AAHH
  5. H

    Undiagnosed Club Support Group

    allieinwonder HI. I hate to hear anyone in pain cause I know exactly where you are. I have been checked for Lupus, Multiple Sclerosis, Sjorden Disease, Celiac Disease, Chrons, Colitis, Lime Disease. I have been to multiple Gastro's, Neuros, Cardio's (I have PVC's in my heart not harmful just...
  6. H

    Undiagnosed Club Support Group

    Yes I thought about the Mayo Clinic but the insurance only pays 50%. I am very fortunate right now to have military insurance because I am permitted any testing but I will be losing it soon. I went to one Rheum. a couple weeks ago but he was not very helpful so I see another one in a couple...
  7. H

    Undiagnosed Club Support Group

    allieinwonder I have never had success in the ER either. I am from Atlanta too but temporary in El Paso due to the military. I think I have been to every hospital there and always offered pains meds and told to go see my dr. so I refuse to go to the ER anymore. I am in the same boat as you. Pill...
  8. H

    Undiagnosed Club Support Group

    I am on my 14th year of abdominal pains, on and off diarrhea, extreme fatigue, vision problems, nausea, increased heart rate, and so on. I have had 2 pill cams (normal) 3 Colonoscopies (1st one showed inflammation where small and large intestines meet up), 2 after that showed clear, 3 endos (All...
  9. H

    LDN 5 years later

    My mother takes LDN for her multiple sclerosis and it has been her miracle drug. This seems to be a great drug for Chrons as well.
  10. H

    New, In pain, Scared

    The only treatment for celiac disease is to never eat gluten, wheat, barley, etc. Just when I think I am gluten free I find out no the food I have been eating has gluten. There are antibody testl a gene test and biopsy that can help diagnose Celiac Disease. I have read going Gluten free even...
  11. H

    Exhausted and still no answers

    I am on my 14th year of abdominal pains, on and off diarrhea, extreme fatigue, vision problems, nausea, increased heart rate, and so on. I have had 2 pill cams (normal) 3 Colonoscopies (1st one showed inflammation where small and large intestines meet up), 2 after that showed clear, 3 endos (All...
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