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Crohn's Disease Forum

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  1. Joyce

    Remicade Club Support Group

    Just had my first infusion today so far so good.
  2. Joyce

    What is your biggest fear?

    My biggest fear has always been drowning in a lake or ocean and all those fish eating on me. And my second I would have to agree with ladyb about getting old and have to go NOW and having to depend on someone else to get you there. Because sometimes now with our crohn's that's not always easy now.
  3. Joyce

    Do Vitamins Help

    I'm not sure if the vitamins help but from my understanding we lose a lot of vitamins that we need with crohn's that's why I take them and everything I read says we need more b-12. I only have the b-12 that melts under your tongue. My dr told me after my surgery to be sure and take a good...
  4. Joyce

    Was in remission for years.. now flared up :(

    Hey need2. Welcome I'm kinda new on here too. I was in remission for a very long time like maybe 20 years I think, up until Aug/Sept. 2009 not sure if I'm back there yet or not, should be close. I hope.
  5. Joyce

    Surgery tomorrow!!!!

    Good luck.
  6. Joyce

    Question about 6mp

    Yeah glad to hear that. Hopefully it won't be to much longer for mine.
  7. Joyce

    Question about 6mp

    Hey I have another question for you all. How long after the pred. Does it take for the peach fuss to go away off your face? It looks like it has started to go away.
  8. Joyce

    Question about 6mp

    It actually does look pretty good I think it's shines pretty good I also used this stuff called moroccan hair oil it good also but it's about 45.00 a bottle and last a really long time. Thanks I'll check that website out
  9. Joyce

    Question about 6mp

    Thanks Joan and Sabrina I hope is was the pred. Wasn't sure since it's been a long time like back in 87 that I was on it. I'll go by see my hair dresser this week. Sabrina where did you find that conditioner. I have been using WEN cleansing conditioner it works pretty good you just have to comb...
  10. Joyce

    Question about 6mp

    Thanks Jettalady. I actually just came off of predinsone maybe three weeks ago. I do take a multi vitamin every day. Just checking cause I may need to call my dr about it. I know he said after my surgery he was saving remicade for later in case the 6mp and imuran didn't work. I was dx in 1987...
  11. Joyce

    Question about 6mp

    I have been on 6 mp for about 2weeks. Has anybody had hair loss? I did take imuran for a month and had to stop taking it because of a rash and I know 6 mp is a sister drug to imuran. I know I'm losing more hair than I normally do when I wash my hair I had really thick hair that is now kinda thin.
  12. Joyce

    Surgery - Final Answer?

    Good luck on your surgery I know you'll do great.
  13. Joyce

    Finally something works!

    Have you ever taken 6mp that's what my dr has me on now only with asacol I also take folic acid, bentyl, vitamins and b12 2500 mcg and found some probiotics from publix's I going to try. Tried imuran for a month but couldn't take it. I did take azulfidine for 20 years then he put me on Asacol...
  14. Joyce

    Finally something works!

    Swirl you can't just stop taking prednisone I never had the bumps on prednisone only when I started taking Imuran (only on it for a month) had a rash so Dr changed me to 6mp have bumps on my face not to bad. But my hair is getting thinner I think not sure if it's the meds or the new Wen hair...
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