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Thanks for the reply

Itchy Hello, I have had 5 infusions of Remicade and symptom wise my Crohn's is a lot better. I have a few issues though and would love to hear suggestions or experiences. I have found that I have lost a lot of hair in the shower etc. It seems to be getting worse. Also I get soooo ITCHY...

Thanks everyone! :)

I went for my 1st Remicade infusion last Tuesday, it was pretty scary for me. I wasn't sure about all the risks with Remicade but decided that I needed to try it considering the success rate for remission etc. I would love to hear experiences and any suggestions you may have for me. :)

Im sorry to hear about all the pain you are in!! I have extreme belly swelling too and i also tend to look pregnant. Some days it is very painful and makes me feel sick and other days it doesn't bother me at all, and my GI said it was a side effect from taking Prednisone...so at least i know...

I'm pretty new to this site too and it has already helped me out a lot! welcome :) Good Luck with everything!

My experiences with prednisone have been both good and bad. Good because it seems to work!! Bad because it makes me irritable, I don't sleep well, my tummy swells so big some days I look at least 3 months prego, my face puffed a little (not as noticable to others as it is to me) and my face...

Thanks for all of the messages! It is nice to finally have some people to talk to that understand what i'm talking about! Feels like a breath of fresh air! I will keep you all posted on what happens from here! :)

Thank you!!

I was diagnosed with Crohn’s Disease in October of 2008. I first started to notice something wasn’t right when I was in grade 10. I went to see my family doctor a number of times, who referred me to a few specialists. I had colonoscopy’s and ultrasounds but nothing was ever found. Things...